Discussions By Condition: I cannot get a diagnosis.

What's wrong with me?

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: medusa
  • April 15, 2008
  • 07:14 PM

I have a list of symptoms a mile and a half long. I've been diagnosed with a couple of things and I'm taking medication to treat those, but I've found that sometimes symptoms overlap, so I won't omit anything. Maybe some of you can help me - I'm starting to wonder if I'm simply falling apart.


My list of symptoms (most of which are daily issues):
- fatigue
- muscle and joint pain
- migraines
- severe heartburn
- random fevers
- painful bowel movements and gas pains
- muscle cramps
- horrible menstral cramps and extremely large, painful clots
- chest pains but no heart problems (so far) so I suspect this is musclular
- dizziness and blurry vision
- aversion to loud noises, bright light and strong scents
- mild but repeated rubbing anywhere on my body can produce a bruise or a burn/rash (I've had this problem for years)
- random shooting pains in various body parts (and frequent "mini headaches"; sudden, blinding pain gone almost immediately but leaving me shaking, sweaty and weak)
- acne
- hair loss
- neck and back pain (this is from an injury to my spine but it bears mentioning)
- swelling in abdomen after eating just about anything


Things about me:
- I'm 29 years old and female
- I am in a very happy, healthy relationship
- I eat reasonably well and try to avoid too much of anything; salt, fat, etc.
- I drink an average of four units of alcohol in any given month, usually beer, rarely hard alcohol
- I smoke about eight cigarettes a day and that's down from a pack, sometimes two packs a day for almost 12 years
- I am sincerely making an effort to quit!
- I do not do drugs of any kind
- I am on Nexium for Acid Reflux Disorder and Toradol for my back pain
(I take a Nexium maybe twice a week and it took me a year to get through 30 Toradol, because I only take a pill if I absolutely must)
- I rarely eat sweets of any kind
- I'm about 55 lbs overweight for my size and frame
- I do not exercise much, preferring low impact walking due to back pain
- I read a lot, don't watch much TV and work with computers
- I have gone through 60 Advil liquigels in the last 2 weeks
- I'm generally an optimistic person, cheerful and funny, and I have a lot of friends
- I bruise easily but heal very quickly
- I have a pretty decent immune system but I'm susceptible to colds as the seasons change, as well as headaches from pressure changes (i.e. in the Spring and during electrical storms)
- I was in a fairly serious car accident 12 years ago and sustained damage to my spine and neck, which has gotten worse over the years and I now have several fused vertebrae in my lower spine - this prevents me from having a totally normal life and sometimes causes numbness in my legs and feet
- I had allergy shots as a child which spanned, I believe, three years of my life; I began with allergies to roughly 80 items in the 88 item test and finished with nothing worse than some seasonal allergies and an intolerance of dairy products


I've been diagnosed as having the following:
- Chronic Fatigue Syndrome
- Acid Reflux Disorder
- Endometriosis
- Ankylosing Spondylitis

I'm sure I'm leaving things out, too.

As you can tell, there's a lot wrong with me. I think my concern is that my problems seem to be varied but could point to something serious when combined, especially if there's been a misdiagnosis (i.e. Chronic Fatigue).

If anyone can offer me any advice at all, I'd appreciate it. Thanks for taking the time!

Reply Flag this Discussion

6 Replies:

  • Have you gone to any holistic docs such as acupuncture/naturopathic/kinesiologist/NAET practitioner? Are you taking any other meds other than the ones mentioned? Do you take birth control pills or some other hormonal birth control? DOM
    acuann 3080 Replies Flag this Response
  • Thryoid can cause a lot of those symtpoms and be a bit tricky to diagnose if not under the care of the right doctor. Many GP do not properly test for this very common problem...especially among women...do you have a family history of thryoid? Even if you don't it is a strong possibility. Get tested for FT4, FT3, TSH and the antibodies for Hashimotos Disease and Graves Disease the autoimmune diseases of the thryoid...very common. ANd check out Mary Shomon's site on thryoid...great info and a forum with great ladies who can help you get started and understand your lab results...do test the thryoid...I have seen many folks suffer needlsesly for YEARs, yet testing is only a simple blood test...and it is often fairly easy to treat as well....Joan
    Joan5555 316 Replies Flag this Response
  • My list of symptoms (most of which are daily issues):- fatigue (CFS )- muscle and joint pai n (CFS try antixodiants w/ magnesium)- migraines (magnesium issue)- severe heartburn (could be magnesium, b12, supplement w/ HCl or pancreatic enzymes- random fevers (sign of infection -low grade?)- painful bowel movements and gas pains (sign of GI infection (parasite/bacterial/yeast), dysbiosis, possible digestive enzyme deficiency (HCl & pancreatic enzymes) - muscle cramps (classic magnesium deficiency or potassium def.)- horrible menstral cramps and extremely large, painful clots (magnesium?)- chest pains but no heart problems (so far) so I suspect this is musclular (possibly from the GI tract, magnesium and other nutrient co-factors)- dizziness and blurry vision (probably from an infectious agent)- aversion to loud noises, bright light and strong scents (this is definately a magnesium/adrenal issue= google mildred seelig, magnesium, adrenals = you will find what you are looking for)- mild but repeated rubbing anywhere on my body can produce a bruise or a burn/rash (I've had this problem for years) ((easy bruising can be from a vitamin C or copper deficiency)- random shooting pains in various body parts (and frequent "mini headaches"; sudden, blinding pain gone almost immediately but leaving me shaking, sweaty and weak)- acne- hair loss- neck and back pain (this is from an injury to my spine but it bears mentioning These are classic signs of CFS/FM which are primarily caused by infectious agents in the body, stressing the system.
    LINENUP 122 Replies Flag this Response
  • see this link ::: .allaboutanxiety.net/magnesium
    LINENUP 122 Replies Flag this Response
  • I'm sorry to contradict you, but if you have ankylosing spondylitis, you have an autoimmune disorder, and your immune system is essentially attacking itself. This can make you tired, susceptible to colds, and provoke headaches. You may have food allergies or even celiac disease. Find a good allergist who can help you nail this down.
    aquila 1263 Replies Flag this Response
  • I had some but not all of your symptoms and was diagnosed with Hashimoto's Encephalopathy. It's a rare complication of autoimmune thyroiditis and it's diagnosed by checking thyroid antibodies- even if your hormones are okay... some of your symptoms do sound thyroid-y. HE can produce profound fatigue and headaches.You might also want to get checked for other autoimmune things, since you already have one autoimmune disorder. One worth looking into might be celiac disease.Sorry you are going through all of this!Best Wishes.
    Anonymous 42789 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.