Discussions By Condition: I cannot get a diagnosis.

Weight gain, digestive issues, peeling face, fatigue, overwhelming hunger... help!

Posted In: I cannot get a diagnosis. 10 Replies
  • Posted By: timeshadow
  • November 14, 2008
  • 00:42 PM

Hi everyone,

I need some help in figuring out what's wrong with me. The doctors all insist that there's "nothing wrong" or it's "low priority", which is making me insane. I am a mid-20s female. The issues:

--Weight gain (I've always been overweight, even since I was a small child (think since about 2yo), but last year I put on about 60 pounds in 2 months and I've been unable to lose it since)
--Inability to lose weight (I could work out every day and eat only salad or lie on the couch eating lard and I would be this (large, low 300s) weight)
--Digestive issues (3-5x/week or so, of varying severity... when they are severe, they are "attacks")
--Very, very foul flatulence (sulfurous at times)
--Constant fatigue
--Overwhelming hunger (not just "hmm, I want to eat", but the actual physical sensation of hunger; no, that's not the reason I've been gaining, I resist it as much as possible)
--Cracked corners of the mouth and peeling lips (I don't just mean chapped, I mean "peels like a sunburn, in chunks" peels)
--Mild anemia (might be nothing)
--Dry skin (might be nothing)

and, I don't know if it's related, but in the last week or two I've developed facial twitches. Those could very well be stress, though.

I've had standard bloodwork done; my insulin/glucose/thyroid levels are all normal. I've been tested for food allergies, all normal. I was tested for celiac's antibodies, none. I'm scheduled for a colonoscopy in December, because it's "not a priority", but I *think* things are getting worse in the meantime.

I'm on a ton of vitamins (which I went on after the symptoms started, so I know they're not the cause), which I went on when my lips started cracking/peeling, and that fixed it for a while, but they're back at it and vitamins aren't helping. I'm on a standard women's multi, an extra B complex, and extra E, with no results.

Please... I'm desperate enough to ask in a public forum on the internet. If ANYONE can help, please say something.

My thanks,
Arilyn
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10 Replies:

  • Are you considered short in height? If so, look up Turner syndrome. Your weight gain & constant hunger is all too familair to me-- I have this. http://www.nlm.nih.gov/medlineplus/ency/article/000379.htm Also, ask your doctor if s/he has thought about polycystic ovarian syndrome. These two conditions can be related.
    aquila 1263 Replies
    • November 17, 2008
    • 08:47 PM
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  • At your weight you may be developing type 2 diabetes. From your symptoms I would guess you have more then one thing going on. You could also be suffering from Thyroid problems.I have both Hyper-thyroid and type 2. If you've been on any type of Steroids that could be worsening your weight problems. Its hard to loose weight when you feel awful. Switch Dr.'s until you can find one that will help. Good Luck!
    Anonymous 42789 Replies
    • November 18, 2008
    • 01:06 AM
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  • I'm not considered short in general (I'm about 5'10; I inexplicably shrunk from 6'), but doctors HAVE commented that I could have ended up taller; what the hey, I'll look this up. Thank you for the link!As for PCOS, I actually asked about that first, because my little sister was being tested for it, but she ended up without and my hormone levels were fine, so they didn't need to test me.Thank you for your reply!
    timeshadow 3 Replies
    • November 18, 2008
    • 06:33 PM
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  • The chapping and cracking may be angular cheilitis. It's a yeast infection which is often associated with high blood sugar, which you say you don't have, but it can be caused by other conditions as well. Try here: http://symptoms.wrongdiagnosis.com/cosymptoms/angular-cheilitis/hyperglycemia.htm
    aquila 1263 Replies
    • November 18, 2008
    • 08:26 PM
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  • At your weight you may be developing type 2 diabetes. From your symptoms I would guess you have more then one thing going on. You could also be suffering from Thyroid problems.I have both Hyper-thyroid and type 2. If you've been on any type of Steroids that could be worsening your weight problems. Its hard to loose weight when you feel awful. Switch Dr.'s until you can find one that will help. Good Luck!I've had the tests done-- glucose and insulin normal, thyroid normal. No steroids.The chapping and cracking may be angular cheilitis. It's a yeast infection which is often associated with high blood sugar, which you say you don't have, but it can be caused by other conditions as well.Yes! The picture on wikipedia might as well be me... and I see it's also caused by malnutrition (as well as fungal infection (which I'm taking enough zinc not to have) and an iron deficiency, but I'm on an iron supplement and am usually at or just below the red cross donation threshold), which would be a cause of the intestinal and weight issues... now, the question remains... what's causing the malnutrition?Thanks, all.
    timeshadow 3 Replies
    • November 19, 2008
    • 02:24 AM
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  • Have you checked out celiac disease? If you did and the test came back neg. it might be worth cutting out gluten for a while. Some people are just intolerant and have normal tests. You might also want to have your cortisol levels checked. Elevated cortisol can cause raging hunger! Kiera
    Anonymous 42789 Replies
    • November 19, 2008
    • 09:51 PM
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  • Have you checked out celiac disease? If you did and the test came back neg. it might be worth cutting out gluten for a while. Some people are just intolerant and have normal tests. You might also want to have your cortisol levels checked. Elevated cortisol can cause raging hunger! KieraI'd been checked for celiac's, but I didn't realise that I could be intolerant without having the disease. I'll have to check that out.And I also didn't know about cortisol levels... Another thing to get checked.Thanks!
    timeshadow 3 Replies
    • November 20, 2008
    • 02:46 PM
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  • You sound like you have hashimoto autoimmune tyroid disease. Usually in this the TSH is normal or at least above 3 but your Dr. needs to check for Thyroid antibodies to tell for sure. The symptoms are very common to you. Your hair also falls out. I would ask to be sent to endocrinology. Good luck I have been working on a diagnosis also for 10 + yrs be persistant.
    Anonymous 42789 Replies
    • November 20, 2008
    • 03:17 PM
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  • Get help with the celiac diet. Lots of things have gluten in them that you would never suspect would contain it--like ice cream and candy.
    aquila 1263 Replies
    • November 20, 2008
    • 08:03 PM
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  • I think HCG with vitamin B12 can be the ideal solution for you. HCG Diet is based on regular dosage of Human Chorionic Gonadotropin (HCG) hormone (found in the body of pregnant women during 12-14 weeks of pregnancy) and Very Low Calorie Diet (VLCD). It can stimulate one pound weight loss per day. After reading your post, I can guess that you are having the crisis of RBCs. B12 supplement can help your body to produce healthy Red Blood Cells. By speeding up your metabolism, HCG can solve your digestive problems. It is good for skin health as well.
    johnmarten 1 Replies
    • August 19, 2010
    • 11:08 AM
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