I am (or was) a healthy 28-year-old non-smoking male who walked 7 miles per day. 2 months ago I started having chest pains unconnected with exercise. I went to my GP, who sent me for a chest X-ray, which was clear, so he diagnosed costochondritis.
2 weeks later I started to feel ill, like I had the flu. I started coughing and wheezing. My GP gave me a 10-day course of Cipro XL, but I was worse by the end, with intermittent fevers, joint and muscle pain, and night sweats. He sent me for another chest X-ray, which was still clear, so he referred me to a lung specialist.
I saw the lung specialist after getting another completely normal chest X-ray, the wheeze and the dry cough getting worse. He sent me for a pulmonary function test, which showed some small airway obstruction, but very little methylcholine response.
By this time I was also getting nose and sinus pain (my sinuses hurt when I press on them), along with nosebleeds. The lung specialist then sent me for a chest CT and blood tests, which included ANCA, ESR, creatinine, ANA, liver function, HepA+B, calcium, potassium and sodium tests. All came back normal (except the CT showed a nodule on my thyroid).
Then the pain in my scrotum started getting worse. It initially started 2 years ago, and I thought it was a varicocele (I still do). But now it is much more painful, and there is another pain where my prostate is. I am also now having trouble urinating.
Other symptoms include tinnitus and dizziness when the ear pain is at its worst, clear fluid leaking from my ear, extremely cold toes, tiny white bumps all over the back of my mouth and throat, pain and tenderness around my nipples, no appetite and dry eyes and mouth.
I have been off work for 3 weeks now, and am extremely worried. I have been researching my symptoms, and the only things I can find that fit all the symptoms are various types of vasculitis, especially Wegener's. However, the ANCA test and even the ESR test have come back normal.
I feel absolutely awful right now, and am in considerable pain. I am terrified that my kidneys will become involved before the doctors decide to believe me. The lung specialist has referred me to a ENT specialist, a urologist and an immunologist, but I am afraid that going to so many different people will only delay a diagnosis.
Please someone tell me what I should do next.
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