Discussions By Condition: I cannot get a diagnosis.

Week-long purple toes -- Raynaud's?

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Anonymous
  • March 9, 2009
  • 11:27 PM

I'm a 22 year old female with no other health issues/surgeries in the past and of normal weight/height. Nonsmoker. I'm currently taking Yaz (birth control). My grandmother (father's side) had diabetes.

I've been to two different Doctors in the past week regarding my second and fourth toes. Last Monday, my second toe developed a dry patch on the first joint closest to the nail (it has visibly white, dry skin), turned purple, and had two small blisters. A day later, the first time I saw a Doctor, my fourth toe had developed the same symptoms, but no dryness. Doctor #1 said not to worry, because it's probably just an allergy to my shoes or hand, foot, and mouth disease. I've been wearing these sneakers for over a year, not constantly, but switching them out with other pairs, and never had an issue. I also wear socks. HFM just sounds unreasonable to me.

So, I saw Doctor #2 today. The blisters are gone, but both toes are still purple (though, slightly less so). She suggested Raynaud's. I'm just not sure. When I rub my toes, they turn less purple, but dark blotches still remain and the purpleness comes right back. They aren't numb and don't hurt. I spend a lot of my time inside, where I have the heat set to a constant 75 degrees. They started turning purple when I had been inside for at least 6 hours.

I've been having headaches lately and over the last six months or so, my lymph nodes have frequently swelled (which has never happened to me before). I can't help but feel that Raynaud's is the 'easy' answer here. I can't find any resources that point to the discoloring lasting this long.

Ideas? I'd hate to find out later that I've been misdiagnosed and end up losing a couple toes.

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2 Replies:

  • I'm a 22 year old female with no other health issues/surgeries in the past and of normal weight/height. Nonsmoker. I'm currently taking Yaz (birth control). My grandmother (father's side) had diabetes. I've been to two different Doctors in the past week regarding my second and fourth toes. Last Monday, my second toe developed a dry patch on the first joint closest to the nail (it has visibly white, dry skin), turned purple, and had two small blisters. A day later, the first time I saw a Doctor, my fourth toe had developed the same symptoms, but no dryness. Doctor #1 said not to worry, because it's probably just an allergy to my shoes or hand, foot, and mouth disease. I've been wearing these sneakers for over a year, not constantly, but switching them out with other pairs, and never had an issue. I also wear socks. HFM just sounds unreasonable to me.So, I saw Doctor #2 today. The blisters are gone, but both toes are still purple (though, slightly less so). She suggested Raynaud's. I'm just not sure. When I rub my toes, they turn less purple, but dark blotches still remain and the purpleness comes right back. They aren't numb and don't hurt. I spend a lot of my time inside, where I have the heat set to a constant 75 degrees. They started turning purple when I had been inside for at least 6 hours.I've been having headaches lately and over the last six months or so, my lymph nodes have frequently swelled (which has never happened to me before). I can't help but feel that Raynaud's is the 'easy' answer here. I can't find any resources that point to the discoloring lasting this long. Ideas? I'd hate to find out later that I've been misdiagnosed and end up losing a couple toes.I am a 17 year old female and am experiencing similar symptoms while taking Yaz for just two months. The tops of my toes on both feet initially blistered and were extremely itchy at times. They then turned purple with dark spots and the pain has gone away. I was recently diagnosed with Pernio but live in a climate that is constantly 70 degrees with no exposure to cold. I too am skeptical of my diagnosis and this was after a visit to a second doctor. I had a biopsy and ten blood tests and will be seeing another doctor soon. I have no idea what is going on but our two sets of symptoms sound eerily similar. Best of luck.
    Anonymous 42789 Replies Flag this Response
  • I am a 21 year old male experiencing what I think is the same as you two.It's been about a week and a half where my middle toe and fourth toe (from smallest) have had small roundish purple marks that are quite itchy. There are now marks on my second toe aswell its red and dry, all marks are on top of toes with one small one on the side.Originally I thought it was a spider bite or due to the fact I wore socks from another country but after reading this I think I'll go see my doctor.
    Anonymous 42789 Replies
    • August 15, 2011
    • 01:30 AM
    • 0
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