Discussions By Condition: I cannot get a diagnosis.

Weakness aching elbows Vit D low - Had Pneumonia 8 months ago.

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: Jennyicb
  • August 15, 2010
  • 03:49 PM

Hi, I thought I would post as am now quite frustrated in my endeavours to get back to normal health. Briefly: I had Pneumonia at the end of Dec 09 and was hospitalized treated with Vancomyicin drip and erythromyicin left hospital after 10 days. This took a long time to recover from and I returned to part time work this April 2010. I have gradually got strong and got my working hours up to 6 hours a day by July.

In June I felt very weak again and saw GP who tested and found my Vit D was very low at 10. I started to take a strong supplement of 20,0000 every other day for 8 weeks during this time my elbow joints started to get sore. (I also took iron to correct some anaemia). I stopped after 8 weeks and was due to be tested again - 3 days after I stopped I got sick with headache diahorrea weakness and very very painful elbows (no swelling). I had last week off work and slept for most of it GP thought I mayb had a virus. I retested to check Vit d and have been told it is better but still low and had a bone profile test and have to see my GP for results of this.

My work place won't take much more of this illness and time off work I think after being off for so long at the beginning of the year (even though I wasn't off sick at all for the 2 years before this). I feel better than last week but very very weak can't get to shops unless I drive etc and spend most of time resting (make myself move a bit) my elbows hurt most of the time and get stiff sometimes - they feel ok when I don't move them much.

Anyone else had any similar things going on? Any advice?

I had also been taking Omeprazole as I had stomach pains and Doc said these are antacid.

I am wondering if deficient in another way and also why/how did Vit D get low anyway? I live in UK its been quite sunny this year here but I was indoors for several months begining of year (but no sun around then anyway).

Cheers

Jenny

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5 Replies:

  • I dont think my suggestion is likely right now but is a possibility esp if you find yourself with more symptoms and worsening. So keep it in mind. "Slow onset" CFS/ME. I have CFS/ME and in for the first 9 mths of my illness it was on and off and every time i got it again doctors kept on telling me i must have a virus (thou none of them could say what). i was constantly getting ill on and off (headaches, fevers.. maybe diahearr, i cant remember now.. in my own case it also included swollen glands and a sore throat). Anyway.. what im trying to say is this can often be mistake for "a virus". it can cause all kinds of weird pains.. in joints or muscles or both. It will cause tiredness and weakness I dont know why but most with this have D deficiency. i myself have a very severe deficiency with it and i live in sunny Australia!! (and as my D2 level is good and its my D3 level with is deficient.. the D2 shows im getting plenty of D from the sun... its just not converting or something? when i supplemented with normal supplementation doses..on retesting my D levels were even lower. Hospital ended up giving me a massive dosage. (beware that if you do have this illness.. in England they dont know how to deal with this medical issue so over there it's treated very badly thou things may be about to change... and they often put it down to being a psych. issue which it isnt. I suggest you to find info on Canadian consensus definition Chronic fatigue syndrome In England they thou are just about to put in place a permanent ban on people with this illness donating blood as they truely dont know what causes this issue.. so if you do end up being diagnosed with it make sure you are educated on it so you can educate those who may wrongly think it is a psych. issue). i hope your issue is something else.. but there is a slight chance it could be this illness in its early stages esp since you havent been quite right since the Pneumonia. Note that an infectious illness is often the trigger for this illness esp things like CMV, EBV, lyme (thou the underlaying cause is something else, still not discovered). Severe Pneumonia can trigger off CFS/ME and its symptoms. Symptoms from studies on this are on http://wwcoco.com/cfids/bernesx.html My advice to you is to try to get all the rest you need.. if one with this is pushed.. it usually gets worst and end up properly coming in full swing (and many dont improve). Rest is vital in its early stages (and after that too but early stages of it are cruticial). Best luck. (if you do get worst and it does then appear to be this .. the "not crazy CFS forums" are a good one for this illness).
    taniaaust1 2267 Replies
    • August 16, 2010
    • 10:59 AM
    • 0
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  • Thanks for your reply Tania and sorry that you have this condition. I hope that I dont have CFS or ME my energy levels are up and down at the moment. I have just checked with my GP and my Vit D3 is now up from 10 to 47 so that is good news I guess. I still feel weak but a little better than yesterday. The doctor has put post viral fatigue on my form for work but I hope to go back if I improve by end of week or beginning of next week (I spent all of last week in bed). She has tested for just about everything she can think of with blood tests so all the 'usual' routes have been exhausted. I have a scan booked for the abdominal pains I have to check nothing sinister is lurking there. Keep all crossed for me as I already feel like I'm going mad as not been able to return to my normal life of exercise and dancing etc etc. Thanks for your info will keep in mind (and hope I don't have to use it!). All the best! Jenny I dont think my suggestion is likely right now but is a possibility esp if you find yourself with more symptoms and worsening. So keep it in mind. "Slow onset" CFS/ME. I have CFS/ME and in for the first 9 mths of my illness it was on and off and every time i got it again doctors kept on telling me i must have a virus (thou none of them could say what). i was constantly getting ill on and off (headaches, fevers.. maybe diahearr, i cant remember now.. in my own case it also included swollen glands and a sore throat). Anyway.. what im trying to say is this can often be mistake for "a virus". it can cause all kinds of weird pains.. in joints or muscles or both. It will cause tiredness and weakness I dont know why but most with this have D deficiency. i myself have a very severe deficiency with it and i live in sunny Australia!! (and as my D2 level is good and its my D3 level with is deficient.. the D2 shows im getting plenty of D from the sun... its just not converting or something? when i supplemented with normal supplementation doses..on retesting my D levels were even lower. Hospital ended up giving me a massive dosage. (beware that if you do have this illness.. in England they dont know how to deal with this medical issue so over there it's treated very badly thou things may be about to change... and they often put it down to being a psych. issue which it isnt. I suggest you to find info on Canadian consensus definition Chronic fatigue syndrome In England they thou are just about to put in place a permanent ban on people with this illness donating blood as they truely dont know what causes this issue.. so if you do end up being diagnosed with it make sure you are educated on it so you can educate those who may wrongly think it is a psych. issue). i hope your issue is something else.. but there is a slight chance it could be this illness in its early stages esp since you havent been quite right since the Pneumonia. Note that an infectious illness is often the trigger for this illness esp things like CMV, EBV, lyme (thou the underlaying cause is something else, still not discovered). Severe Pneumonia can trigger off CFS/ME and its symptoms. Symptoms from studies on this are on http://wwcoco.com/cfids/bernesx.html My advice to you is to try to get all the rest you need.. if one with this is pushed.. it usually gets worst and end up properly coming in full swing (and many dont improve). Rest is vital in its early stages (and after that too but early stages of it are cruticial). Best luck. (if you do get worst and it does then appear to be this .. the "not crazy CFS forums" are a good one for this illness).
    Jennyicb 2 Replies
    • August 16, 2010
    • 07:47 PM
    • 0
    Flag this Response
  • Hi, I thought I would post as am now quite frustrated in my endeavours to get back to normal health. Briefly: I had Pneumonia at the end of Dec 09 and was hospitalized treated with Vancomyicin drip and erythromyicin left hospital after 10 days. This took a long time to recover from and I returned to part time work this April 2010. I have gradually got strong and got my working hours up to 6 hours a day by July. In June I felt very weak again and saw GP who tested and found my Vit D was very low at 10. I started to take a strong supplement of 20,0000 every other day for 8 weeks during this time my elbow joints started to get sore. (I also took iron to correct some anaemia). I stopped after 8 weeks and was due to be tested again - 3 days after I stopped I got sick with headache diahorrea weakness and very very painful elbows (no swelling). I had last week off work and slept for most of it GP thought I mayb had a virus. I retested to check Vit d and have been told it is better but still low and had a bone profile test and have to see my GP for results of this. My work place won't take much more of this illness and time off work I think after being off for so long at the beginning of the year (even though I wasn't off sick at all for the 2 years before this). I feel better than last week but very very weak can't get to shops unless I drive etc and spend most of time resting (make myself move a bit) my elbows hurt most of the time and get stiff sometimes - they feel ok when I don't move them much. Anyone else had any similar things going on? Any advice? I had also been taking Omeprazole as I had stomach pains and Doc said these are antacid. I am wondering if deficient in another way and also why/how did Vit D get low anyway? I live in UK its been quite sunny this year here but I was indoors for several months begining of year (but no sun around then anyway). Cheers JennyYour other responder could be quite right about the CFS, but basically you probably have a VDR genetic mutation (Vitamin D Receptor). I do. I just take 10,000 mg Vitamin D/day (sometimes I skip a day or to because I'm really only supposed to take it 5x/week). If you are getting CFS, you probably have methyl cycle biochemical pathway genetic mutations or vitamin deficienncies (which can look like the same thing). I believe the fix is the same whether the problem is genetically caused or dietary. Checkout this board: http://forums.wrongdiagnosis.com/showthread.php?p=238092#post238092. The protocol is here (read only): http://forums.wrongdiagnosis.com/showthread.php?t=62327 Many people at this board have noticed various pharmaceutto interfere with the methyl cycle biochemistry. I, myself, am basically afraid of pharmaceuticals since it seems I am sensitive to all of them. But there are others who have identified particular ones as actually being the culprits. I do not say that the protocol above cures CFS, but I believe everyone with CFS has these problems. Whether they can cure or only improves themselves is beyond me since I don't have CFS. Good luck. Mad Anthony
    madanthony 1087 Replies
    • August 17, 2010
    • 00:19 AM
    • 0
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  • Thanks Mad Anthony (great ID by the way). My Vit D has increased with the high dosage I had am only on 3,000 D3 per day for next 8 weeks. I saw a reflexologist who said that lots of people seem to be low on magnesium too so am taking some of this as of yesterday. Your posting was very interesting. I have had none of these issues until this year (I am now 45) and of course the Pneumonia at the beginning of the year. I will never take good health for granted again. My thyroid tests came back normal as did iron (was anaemic but now normal) been tested for arthritis, glandular fever (mono) had full blood count etc - think gp doesn't know what to suggest now and is hoping i am just exhausted having had a virus last week (if it was a virus). I sincerely hope she is right. She suggests my elbown pain may be tennis elbow. I guess time will tell but I have to return to work next week and am still weak. Thanks for your post will keep all in mind if I continue to be weak and not right. Jennyicb
    Jennyicb 2 Replies
    • August 18, 2010
    • 00:28 PM
    • 0
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  • I'd be interesting to hear how things go. I'd love it if you gave an update a couple of months. ....If you find yourself still sick in a couple of mths time, i think you will need to find yourself a doctor who specialises in CFS for a diagnoses and some help (stay away from any with psych. suggestions. stay away from GET and CBT, to many patients have been made far worst by those treatments some permanently) .. there is world famous CFS/ME expert in UK by the name of Dr Sarah Myhill. or get some advice on a good doctor throu one the the CFS/ME orgs. (the ones on that list starred.. avoid..as they focus psych. stuff, the others i think are fine). (there are so many orgs for this in your country, due to a big battle which went on with your health system on this illness as the patient groups fought to get all the crap going on there changed). UNITED KINGDOMME Research UK (MERUK) http://www.meresearch.org.uk/index.htmlMEActionUK www.meactionuk.org.ukAssociation of Young People with ME www.ayme.org.uk *Action for ME www.afme.org.uk *CFS Research Foundation www.cfsrf.comThe ME Association www.meassociation.org.ukME North East www.menortheast.orgThe National ME Centre www.nmec.org.ukThe Young ME Sufferers Trust www.tymestrust.org25% ME Group www.25megroup.orgWelsh Association of ME and CFS support www.wames.org.ukInvest in ME www.investinme.org
    taniaaust1 2267 Replies
    • August 18, 2010
    • 02:12 PM
    • 0
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