Discussions By Condition: I cannot get a diagnosis.

Weak in the Knees

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Anonymous
  • June 6, 2008
  • 06:21 AM

It all started with tingling in my hands last Monday. I woke up and couldn't feel my hands at all. Within hours of the tingling I broke out in a bright red rash on my feet and legs. It wasn't raised above the surface of the skin but just looked like I was wearing red high socks. It didn't itch at all, but rather created a burning, stinging sensation. When I took a shower my skin felt like it was burning and sloughing off. I took Benadryl and went to bed. By the next day the rash spread to my thighs, hips, forearms, and hands. At this point my hands and feet were completely numb and my joints were painful. Within a few hours of waking the numbness and tingling spread up to knees and I couldn't stand or walk. I was taken to the ER and they ran tests for Epstein Barr, Lyme, Rocky Mountain Spotted Fever, Lupus, Rheumatoid Arthritis, and Guillain-Barre. They did an MRI of my skull and spine, performed neurologic exams, breathing tests, placed me on a continuous EKG and pulse ox, and ran a standard CBC/CHEM/COAG. The bloodwork and MRI came back negative, and my EKG, pulse ox, blood pressure, respiration, and temperature were normal. I was in the hospital for almost two days and the only thing the doctors could think of was a viral infection. I have a history of Non-Hodgkin's Lymphoma which has been in remission for 6 years now. Within hours of being hospitalized I regained full feeling and mobility in my legs. I could stand, walk, step up, hop, and stand on my toes without any assistance. After being discharged the only complaint I had was mild joint pain and stiffness in my fingers, knees and lower back. Only one lymph node (located on the back of my neck) is enlarged and none of my WBCs are elevated. I just want to know what is wrong with, and whether or not I am contagious. The last thing I want is for other people to possibly contract this illness from me.

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1 Replies:

  • Ok please look at the mail: can anyone help of today June 7 2008. Look at my replie and please join lymenet. the normal test for lyme in not good...You have rashes and you have pain and neurological problesm which is lyme for sure and your node in neck, a lot have it....I know you had a test, please join lymenet you'll understand more and find a dr....What a crazy world...Fannie
    Fannou 111 Replies Flag this Response
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