Discussions By Condition: I cannot get a diagnosis.

Wave of dizziness and "fogginess" followed byMyoclonus effecting my face and shoulder

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: melnev
  • May 17, 2011
  • 08:30 PM

It all started one night out at dinner and I started to get dizzy, almost felt drunk..then I lost my coordination and started to have some twitching of my face/head and right shoulder, and could not walk. We immediately left to go to the ER and I was "twitching" so badly that my friend had to hold me down so I did not hit my wife who was driving. At the hospital they said my electrolites were low and they gave me meds to calm down the twitching and perscribed me vitamins and sent me home. In the morning, I started twitching again and could not walk straight so my wife took me back in. After a ton of tests and an MRI, all they could find was a veinous angioma, so the Dr sent me to Mass General for them to diagnose and treat this. When I got down to Mass General I starting having waves of fogginess with dizziness followed by these twitches of my face head and shoulders ever 10-30 minutes lasting about 2-4 minutes each. I could do simple commands during these episodes. My pupils where not dialated, I could track with my eyes, but thinking and talking where very difficult during them. I was not able to walk at all for 4 days and my foot reflex was active which is not supposed to be in an adult. Flashing lights also would cause the episodes but they checked for seizures and there was no activity. I had multiple neurologist and neurosurgeons on my case and they all decided that is was not the veinous angioma in my pons region, but they did not know what it was. I got to were I could walk with a cane so they sent me home with a diagnosis of myoclonus. Light flashes, looking to the side while riding in a car, and much movement would cause the episodes. They got better for a while and then I went on a carousel with my kids and it sent me into episodes again. Now I get little episodes when I'm tired, getting sick, see flashes of lights, or something moves too fast by me. The neurologist I have been seeing still doesn't know what it is.....Help....please.

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