After yrs and I do mean yrs of always being tired, taking caffine pills from the age of 13 to 29 to aid with not falling down sleeping I went to see a sleep Dr. who gave me a over night w/ naps test . Went back got results I was told you have borderline sleep apnea however you have a very bad case of Narcolepsy (Wow I'm thinking I'm 29 have 5 kids what the ***l IS NARCOLEPSY and how can it be cured). I must have been the only person in the free world who didnt pay attenion to the movie Duece Bigalo cause that was the first thing outta friends mouths do people have to hold your hair to keep you up right lol. Well Doc put me on Provigil well no change after 3 months so now Doc puts me on a new drug called Nuvigil so heres the big drum roll NOTHING , NODDA ,still sleeping 10+ hours a night and passing out during the day. So now this Doc sends me to another Doc he talks to me now were gonna add Ritalin to Nuvigil so 250mg Nu's and 10mg Rit's. well that started in sept./oct. 2010 now were at 250mgs of Nuvigil and 20mgs Ritalin at 5am then 10 mgs Ritalin at 10/11am then 10mgs Ritalin at 4pm, that was ok for about 2months but the sleepiness is so bad even with meds I was on the back of a crotch rocket during the summer and was out cold( I know the laws of gravity were on my side). So this Doc becomes floored and sends me to IU medical center to see a Doc there and get some Recomendations well first her asst. Resident comes in talks listens asks then talks to her now another Doc comes in she sits down and here we go you dont have NARCOLEPSY(hmmm now I feel like Im crazy I know I fall sleep faster than a coma patient). This Doc explains I could not have NARCOLEPSY I used to be a bad acholic and people with NARCOLEPSY are missing the chemical in the brain that allows them to be addicted to anything and from looking at my sleep test results I would be out full blown not cohearant and not refreshed after naps of 10/15 mins I have no cataplexy and when I explain how I feel it's like being put under for a surgery or swimming in an under current you can feel it comming but your helpless to fight it. It really does feel like your fighting an unknown unseen thing your fighting for the ability to remain awake . So if anything you can shower,take care of your family/children,clean your house,make dinner and last but not least to be a girlfriend/wife/bestfriend. Because now due to the fact that my Doc is waiting on the written responce from this other Doc they upped me again to 250mgs NUVIGIL& 20mgs RITALIN at 5am by alarm then 20mgs of RITALIN at 10/11am and last 10mgs of RITALIN at 4pm this is still not working I yawn every 5/10 mins and feel exhusted as well as fall asleep riding in the car,watching tv writting this I've nodded off . Now I had to have a hysterectomy in Nov of 09 and hormone levels are messed up but with this added to it its hard for my fiance as I will come to bed with the idea of making love get his hopes up but 2 mins after climbing in the bed I pass out cold and wont wake until the alarm wakes me for meds @5am not even remembering falling asleep in the first place......... Now after much to say and getting all this off my chest WHATS NEXT WHAT MEDICINES WORK THE BEST FOR THIS DISORDER SO I CAN FUNTION AS A MOTHER AND WOMAN I BEG YOU IF ANYONE READING THIS HAS ANY ADVICE OR COMMENTS PLEASE I REPEAT PLEASE LET ME KNOW . I JUST WANT TO KNOW I'AM NOT ALONE OUT THERE THAT MAYBE JUST MAYBE SOMEONE ELSE HAS/IS DEALING WITH THE SAME THING......
THANK YOU