My mother has been diagnosed with VIPoma, but seeing as it's an extremely rare condition, we're having trouble finding out if this truly is a correct diagnosis, or exactly what's going on.
Main symptoms are chronic, extreme, watery diarrhea for the past 8 months (12 - 15 times a day), some face flushing, bloated belly.
She has had all kinds of tests performed - stool tests, urine tests, colonoscopy, tested for various parasites and tropical 'bugs', and recently had a nuclear scan done . The test results 'appear' to point to VIPoma, but we're having a hard time trying to find a doctor who has actually had a patient with this condition.
She's currently doing the Long Acting Octreotide, but that's not really making too much of a difference for her.
Any help or suggestions would be greatly appreciated.
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