Discussions By Condition: I cannot get a diagnosis.

VIPoma

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Anonymous
  • January 8, 2009
  • 11:14 PM

My mother has been diagnosed with VIPoma, but seeing as it's an extremely rare condition, we're having trouble finding out if this truly is a correct diagnosis, or exactly what's going on.
Main symptoms are chronic, extreme, watery diarrhea for the past 8 months (12 - 15 times a day), some face flushing, bloated belly.
She has had all kinds of tests performed - stool tests, urine tests, colonoscopy, tested for various parasites and tropical 'bugs', and recently had a nuclear scan done . The test results 'appear' to point to VIPoma, but we're having a hard time trying to find a doctor who has actually had a patient with this condition.
She's currently doing the Long Acting Octreotide, but that's not really making too much of a difference for her.
Any help or suggestions would be greatly appreciated.
Thankyou.

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1 Replies:

  • Dr. Tom O'dorisio at the University of Iowa hospital in Iowa City, Iowa has been dealing with this type of cancer for many years
    VIPoma 1 Replies
    • January 9, 2010
    • 11:26 PM
    • 0
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