Discussions By Condition: I cannot get a diagnosis.

very itchy legs

Posted In: I cannot get a diagnosis. 15 Replies
  • Posted By: czexrus
  • June 30, 2008
  • 05:08 PM

I was hoping someone had some idea on what is wrong with me. I have had very very itchy legs for 3 years now. At one point my legs got so swollen that i went to emergeny room. They said scabies. The next day i went to my GP and he said no way it was not. Sent me to dermolotologist #1, she took biopsy, showed just inflammation. She gave me cream to use for a month. Cream never worked. Went to dermotologist #2 and he said it looked like irration from shaving, gave me 2 creams, 1 for AM and 1 for PM. They never worked. I went back to Dermo #2 and he said oh now it looks like follicle irritation and gave me a different cream. Well this doesn't work either!!!!
The itching happens all different times of day. I have tried using more expensive shavers, i have used all different kinds of shave gel. i have tried different laundry soaps. NOthing helps.
i did have varicose veins bad on my legs but i got the Closure procedure so that took care of the veins.
My legs itch so bad that i use a serated steak knife to get relief.
Has anyone had issues like this?
Now i'm thinking there is something realy wrong with me. And it is only itchy on my legs that is it.
HELP>

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15 Replies:

  • Interesting that you mention the varicose veins. This might be a vascular issue.Where is the swelling? Are both legs equally affected? How old are you? Any pregnancies?
    Felsen 510 Replies Flag this Response
  • You go, Felsen! I like your style! czexrus try here: http://www.dermatologyinfo.net/english/chapters/chapter40.htm
    aquila 1263 Replies Flag this Response
  • Thank you both for responding!!!I am 38 years old and have had 2 pregnancies (7 years ago).The swelling that occurred was my whole leg (both) but doc thought it was an infection from scratching my legs with a dirty object.I don't get much swelling anymore since i had that Closure procedure for the varicose veins.It seems like when they are freshly shaved i'm good but if i dont and once the hair starts to grow that is when i itch. It even wakes me up at night!!!
    czexrus 3 Replies Flag this Response
  • What I’m getting at is that you might have stasis in your veins for some reasons. Even if they have performed a closure procedure (I am not sure what it is, have they closed a vein with non-functioning valves?) it does not mean that they have examined the cause for the stasis and the varicose vein. Itching, swelling and sometimes pain are typical symptoms for stasis. Since you have it in both legs, the cause could be high up in the system, even in vena cava. It could be an artery compressing a vein. These are rare conditions but they do exist and are vastly underdiagnosed. The typical patient is a middle-aged, otherwise healthy woman. It is difficult to discover such a compression. The best way is to perform an IVUS (intravascular ultrasound).There are of course other causes for itching and swelling.Are you in US?
    Felsen 510 Replies Flag this Response
  • Yes, I am in the US. The closure procedure closes the main vein in the leg and YES i did have non functioning valves. i have had dopplers to check for blood clots but that is it. i think i should scrap the dermolotologst and go see my GPractioner.
    czexrus 3 Replies Flag this Response
  • See, the doctors often will repair the valves or close the vein with bad valves and let other healthy veins take over, which is OK, but they should also examine what caused the valves to give in in the first place. That is rarely done, because it’s difficult. Ordinary ultrasound is not enough to examine this, it might discover it but it can also miss it. IVUS is a method when they put a probe inside your veins which gives a perfect picture. Not even a phlebography is good enough in all cases. No matter what, you need an assessment of your venous outflow from your legs. It seems to me that you might have too high venous pressure in your legs and in such a case something must be causing it. Are your problems strictly confined to your legs? Do you have any problems in your lower pelvis? Lower back pain? I’m trying to figure out on which level the possible hindrance might be.You are lucky to be in US. The best doctors (vascular surgeons) are Neglen & Raju in Jackson, Miss. The have by far the biggest experience of such cases. About 20 articles published on Medline.
    Felsen 510 Replies Flag this Response
  • Hi - I went through this for about three years. It was awful - the itching was so bad I would kneel in an ice-cold bath to get an hour of relief. I had tried everything to treat it and my poor housepets did not get a chance to have a flea as they were given any preventive and maintainence treatment my vet could prescribe. Anyway, the entire problem went away very rapidly as soon as I listened to the advice of my physician brother who told me to get off wheat for my digestive difficulties. Since having my condition confirmed by a specialist, I have learned a few important things you need to know. Some people have celiac even without a diagnosis as even very good bloodwork will miss it 10% of the time and even a colonoscopy will miss it. Some people have celiac without obvious digestive symptoms. The relief from the itching (called dermatitis herpetiformis) is so wonderful I would have given up the wheat just for that alone. Also, I was convinced the scars would never be gone but I now wear dresses again. I will be thinking about you.
    glutenfreeisbest 3 Replies Flag this Response
  • As far as the wheat allergy, i did go to my allergist and was tested for all foods and nothing came up. And what's weird is only my legs. I think i will give the surgeon a call who did my closure and ask him (thank you for the idea). I thought at first it was something i was eating because it's not 24/7 that my legs itch. i can't seem to place any corolation between the itching and what i'm eating,etc. Thank you all.
    czexrus 3 Replies Flag this Response
  • I should mention that my celiac digestive problems started after the birth of my children. I think the skin problem started after my system just had had it with gluten. I did not mention before that the four adult triggers of celiac are pregnancy, childbirth, surgery, and stress. Also, most doctors are very, very ignorant about this kind of skin problem. And they need to trust your history more than the chancy bloodwork.
    glutenfreeisbest 3 Replies Flag this Response
  • Do you have a copper IUD? Read this thread http://forums.wrongdiagnosis.com/showthread.php?t=2254
    Chiqqy 4 Replies
    • August 29, 2008
    • 01:39 PM
    • 0
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  • No, I do not have any IUD. For me, it was going glutenfree that gave me total relief. It had been so painful. I really sympathize with anyone going through this and hope that the cause can be identified for them.
    glutenfreeisbest 3 Replies
    • August 31, 2008
    • 03:23 AM
    • 0
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  • I have this SAME problem! I think I do have varicose vein issues. I have been itchy for going on a year now. So terribly bad on my lower legs and even up to my inner thighs. And, for the record, I have been gluten and dairy free for 2 years now, so that hasnt been an issue in this for me. Ugh...it's awful!
    Anonymous 42789 Replies
    • September 22, 2009
    • 01:38 PM
    • 0
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  • Hi - I went through this for about three years. It was awful - the itching was so bad I would kneel in an ice-cold bath to get an hour of relief. I had tried everything to treat it and my poor housepets did not get a chance to have a flea as they were given any preventive and maintainence treatment my vet could prescribe. Anyway, the entire problem went away very rapidly as soon as I listened to the advice of my physician brother who told me to get off wheat for my digestive difficulties. Since having my condition confirmed by a specialist, I have learned a few important things you need to know. Some people have celiac even without a diagnosis as even very good bloodwork will miss it 10% of the time and even a colonoscopy will miss it. Some people have celiac without obvious digestive symptoms. The relief from the itching (called dermatitis herpetiformis) is so wonderful I would have given up the wheat just for that alone. Also, I was convinced the scars would never be gone but I now wear dresses again. I will be thinking about you.I had 'itchie' lower legs for YEARS, several docs misdiagnosed as folliculitis, stress reaction, nerves, allergy to nylons - well maybe it was not a misdiagnosis but failure to find the cause of the itch. I was also diagnosed with GIRD and given meds to treat the GIRD for 15 years. After a recent accident, I went to a sports medicine/nutrionist/chiro, and she recommended dropping the wheat/soy/dairy/eggs. The Itch went away, and so did the GIRD, within six months of eliminating those items from my diet. To this day, when I eat wheat - be it a slice of toast or a pop tart, my legs will itch like crazy for three to four days and nights following ingestion. I've been following the wheat free practice for two years, and only when I 'indulge' in wheat do I re-experience the itch that never ends in any relief - scratching until I bleed and beyond - I wholeheartedly recommend abstinence from wheat/gliadens for the relief it will bring to your itchy legs. Remember that itching is a low grade indicator of body pain.
    Anonymous 42789 Replies
    • September 23, 2009
    • 03:48 AM
    • 0
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  • Yes, I am in the US. The closure procedure closes the main vein in the leg and YES i did have non functioning valves. i have had dopplers to check for blood clots but that is it. i think i should scrap the dermolotologst and go see my GPractioner. I believe the gel they used for the doppler test gave me a rash and swelling very itchy, this is not the first time i got the itching from the gel they usemaybe this could be your problem also.----millie
    Anonymous 42789 Replies
    • September 6, 2010
    • 01:33 AM
    • 0
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  • I have this SAME problem! I think I do have varicose vein issues. I have been itchy for going on a year now. So terribly bad on my lower legs and even up to my inner thighs. And, for the record, I have been gluten and dairy free for 2 years now, so that hasnt been an issue in this for me. Ugh...it's awful!I have a vein issue as well. I have been flour (any kind) and sugar (any form of) free for 2.5 years. I know this has nothing to do with gluten I haven't had ever trace amounts.
    hazebis 3 Replies
    • August 15, 2011
    • 05:19 AM
    • 0
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