Discussions By Condition: I cannot get a diagnosis.

Very ill dad, no diagnosis...

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: AJsmom
  • January 18, 2008
  • 01:32 PM

Okay long story short as possibe, about a year ago my dad almost died, no explanation just suddenly got very sick. After several trips to the doctors with no answers he went from 200lbs healthy active man to 140 lbs very weak frail man. Turns out his gall bladder was enlarged to the size of a fist with gangarine. Emergency surgery saved him. He slowly got about 15 lbs back on him, a little more strength, but still for the most part very inactive. Doctors still saying "no idea" He developed a lump a few months ago on his shoulder, doctors said he pulled a muscle, now they say "it may be cancer" He has lost 11 lbs since Christmas back down to about 140, in total pain, no strength and absolutely no quality of life. They did a biopsy, results say negative for cancer. He hasn't really eaten in 2 years now, says every thing taste disgusting, can't swollow, fatigue, very very weak and in pain. He was always a very active healthy man that never had much more then an infrequent cold, he is only in his 60's, has been tested, scanned and exrayed more than the average 10 persons would be in a lifetime, just in the past year but everything is negative. Any ideas?

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  • Has your dad been tested for Celiac Sprue? My father almst died a few times, and some doctors even said it was "all in his head!" This is an allergy to the protein found in wheat, rye, oats, and barley. He would have to have a biopsy of the small intestine to see if he has any villi left (those are the finger-like projections that help us digest our food). I, too, have sprue. I have to say, my father did much better - he was six feet tall and weighed 130 pounds at diagnosis; he went back up to 180! I also feel like a totally new person after changing my diet. I had the biopsy done and they said my villi were so flat that it had a colon-like appearance! Anyway, I hope that helps. I'll be praying for you and your dad. Good luck!:)
    porphead 2 Replies
    • January 19, 2008
    • 03:25 AM
    • 0
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  • The most frequent etiology of empyema of the gallbladder is unresolved acute calculous cholecystitis in the face of contaminated bile. The most frequently isolated organisms include Escherichia coli, Klebsiella pneumoniae, Streptococcus faecalis, and anaerobes, including Bacteroides and Clostridia species. Suppurative inflammation ensues, tightly filling the gallbladder with purulent debris. Localized or free perforation occurs if drainage or resection is not performed at this juncture. Generalized sepsis frequently accompanies this progression. Translation: The gall bladder dies (possibly from stones or twisting) and becomes gangrenous because the backed up bile was infected with various bacteria. It attacked the tissues which formed pus to the point of practically bursting. Blood poisoning may have occurred. (Yes I know this is simplistic) Has your dad had blood cultures done? What other lab work has he had?
    rad-skw 1605 Replies
    • January 19, 2008
    • 00:21 PM
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  • Thanks for the prayers and advice, I certainly will ask about these things to be certain. This whole mess is just so frustrating and heart breaking.
    Anonymous 42789 Replies
    • January 22, 2008
    • 04:16 AM
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