Discussions By Condition: I cannot get a diagnosis.

Very Desperate - Need Insight Asap

Posted In: I cannot get a diagnosis. 19 Replies
  • Posted By: Chassidy Hokkanen
  • October 27, 2007
  • 07:35 PM

I have 3 children...the middle, Jacob is 5. In Dec. of 06 he had his first upper resp. inf. - bronchilitis which gave to my infant the RSV virus. The baby had never been in daycare. Since then Jacob has been ill with either a viral infection or a respitory infection. (Only 3 resp. infections since laster year). However, he has been ill since Sept. 10, - I brought him in for high fever (103.5) - they found nothing...assumed it was viral, sent us home. We were back 4 days later and he had one of his upper resp. inf. - antibiotics, pulmocort, etc.- he got better for 4 days...then high fever yet again, went to doc., no sign of bac. infection. (this fever lasted 6 days) - by this time he missed approx. 8 days of school. - He developed some sores in and around his mouth - pedi. gave him antibiotics only for the one sore that looked infected. Three days after off meds...fever came back (unsymptomatic again) - it has been a continuous fight! He has missed 17 days of school since 08/27 - Baby has had some viral illness also. Finally had "basic" blood drawn - came back "Able to fight infection, but allergen level was off the charts at 700" - Went to see Rhemotologist/Immunologist who said that the blood work is not sufficient - they took an addtional 4 viles of blood - and test wil come back next week. - Both boys have a genetic skin disorder also - not sure if this is all tying in. - Can anyone AT ALL tell me if any of this sounds familiar - or most importantly, would the first blood test have ruled out autoimmune disorders or leukemia? PLEASE, PLEASE HELP ME - DON'T KNOW IF I CAN MAKE IT THROUGH THE WEEKEND WITHOUT SOMEONE'S INSIGHT. Thant you for your time.

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19 Replies:

  • I can tell you are anxious and I hope they find out what it is. There is that nasty virus going around that maybe the doctor should check for. Maybe you should call and see if they checked for mrsa:http://en.wikipedia.org/wiki/Methicillin-resistant_Staphylococcus_aureus
    Monsterlove 2921 Replies
    • October 28, 2007
    • 07:30 AM
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  • have you had him tested for lyme disease. I watched a program on discovery health about same symptoms...lots of tests. Final diagnosis was lyme disease. Let me know.
    Anonymous 42789 Replies
    • October 28, 2007
    • 08:45 AM
    • 0
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  • I have 3 children...the middle, Jacob is 5. In Dec. of 06 he had his first upper resp. inf. - bronchilitis which gave to my infant the RSV virus. The baby had never been in daycare. Since then Jacob has been ill with either a viral infection or a respitory infection. (Only 3 resp. infections since laster year). However, he has been ill since Sept. 10, - I brought him in for high fever (103.5) - they found nothing...assumed it was viral, sent us home. We were back 4 days later and he had one of his upper resp. inf. - antibiotics, pulmocort, etc.- he got better for 4 days...then high fever yet again, went to doc., no sign of bac. infection. (this fever lasted 6 days) - by this time he missed approx. 8 days of school. - He developed some sores in and around his mouth - pedi. gave him antibiotics only for the one sore that looked infected. Three days after off meds...fever came back (unsymptomatic again) - it has been a continuous fight! He has missed 17 days of school since 08/27 - Baby has had some viral illness also. Finally had "basic" blood drawn - came back "Able to fight infection, but allergen level was off the charts at 700" - Went to see Rhemotologist/Immunologist who said that the blood work is not sufficient - they took an addtional 4 viles of blood - and test wil come back next week. - Both boys have a genetic skin disorder also - not sure if this is all tying in. - Can anyone AT ALL tell me if any of this sounds familiar - or most importantly, would the first blood test have ruled out autoimmune disorders or leukemia? PLEASE, PLEASE HELP ME - DON'T KNOW IF I CAN MAKE IT THROUGH THE WEEKEND WITHOUT SOMEONE'S INSIGHT. Thant you for your time. What does Jacob eat on a daily basis? What foods does he eat and what does he drink? Sounds like he has a food allergy causing his immune system to go into hyperdrive...Best wishesDOM
    acuann 3080 Replies
    • October 29, 2007
    • 03:47 AM
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  • If the blood tests showed allergens 'off the charts', if I were you (I'm not a doctor, this is only my gut instinct as a mother and natural health practitioner) try to remove as much allergens from your childrens' surroundings as possible: ie. dust, perfumes - soaps, detergents, airfreshners, lotions - dairy, wheat, ... pets? These are just some of the more usual allergens that could cause problems. Look for herbs that can support the immune system such as echinacea, garlic, astragalus, slippery elm, mullein. These herbs are multi-functional, do some web searches for information on some of the other benefits. I hope it all comes out all right for your angels.
    Anonymous 42789 Replies
    • October 29, 2007
    • 05:42 AM
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  • Could be anything from gluten intolerance/allergy to a number of autoimmune illnesses. Kiera
    Anonymous 42789 Replies
    • October 29, 2007
    • 07:53 AM
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  • I guess it very well could be an allergy issue. His initial blood work came back with an extremely high level (the hgc??? or something like that came back at 700+). Although, he never gets sneezing or sinus problems. They are doing more extensive blood work and results should be here within the next couple of days...thanks for the reply, this helps to move my mind away from a possible autoimmunie disease, or something worse.
    Chassidy Hokkanen 5 Replies
    • October 29, 2007
    • 03:26 PM
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  • What do you mean by "hyperdrive"?
    Chassidy Hokkanen 5 Replies
    • October 29, 2007
    • 03:27 PM
    • 0
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  • Look into NAET or Bioset therapy as a way to permanently "cure" allergies. I was a skeptic but all 76 of my symptoms have "disappeared" Just visit www.bioset.net or www.naet.com for practicioners in your area. This is the only thing that will help your son...believe me. I've lived it. Take Care...mommy cat:)
    mommy cat 1654 Replies
    • October 29, 2007
    • 11:09 PM
    • 0
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  • What do you mean by "hyperdrive"? An allergy is due to a hyper or overactive response from the immune system. The brain, sensing an allergen, signals to the immune system to respond as though the allergen is a deadly invader. It is really a miscommunication as most allergens are usually harmless for most people. Does this make sense? Dr. Devi Nambudripad, who is the creator of the technique Mommy Cat posted about, believes most chronic illnesses have their basis in allergies. If you are interested, read her book Say Goodbye to Illness. I agree that NAET is very helpful. Best wishesDOM
    acuann 3080 Replies
    • October 30, 2007
    • 00:45 AM
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  • Have any of you heard of ichtyosis? Both of my sons have it pretty badly.
    Chassidy Hokkanen 5 Replies
    • November 2, 2007
    • 01:26 AM
    • 0
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  • I guess it very well could be an allergy issue. His initial blood work came back with an extremely high level (the hgc??? or something like that came back at 700+). Although, he never gets sneezing or sinus problems. They are doing more extensive blood work and results should be here within the next couple of days...thanks for the reply, this helps to move my mind away from a possible autoimmunie disease, or something worse. Most people think an "allergy" will involve sneezing or sinus problems, or skin rashes, or anaphylaxis. While this can be true, often there are much subtler symptoms that come about...autoimmune dysunction has a basis in allergies IMO. Ichytosis is often hereditary. Allergies also have a hereditary component. Again, I ask what are their diets and what foods and drink do they consume on a daily basis? What foods do they crave and what foods do they abhor? This can be a key in determining food allergies. Please look into NAET. NAET is also very helpful for a variety of skin disorders. Best wishesDOM
    acuann 3080 Replies
    • November 2, 2007
    • 03:15 AM
    • 0
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  • Went to specialist - Rheumatologist - blood draw - results came back negative for anything - other than a high ige level again...yest. we did the skin test - negative again....i believe the only thing that they have not tested for is food. - Dr. told me that he has asthma and that children with asthma tend to have high ige levels...he is on zopenex and pulmacort everyday - twice daily. Dr. instructed me to give him the pulmacort even when well - So, NOW I AM CONFUSED AND UPSET - Is this how things are going to be - my child is going to live sick? Anyone think I should go and see another specialist, or what? He is sick now - fighting another respitory problem...next week I am sure he will contact some type of viral infection again - which btw - dr. says that the hairs in his lungs are damaged and that is what is causing him to catch anything and everything he comes into contact with. OH MY! I AM AT A LOSS!
    Chassidy Hokkanen 5 Replies
    • November 8, 2007
    • 06:33 PM
    • 0
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  • What skin condition do your childrenhave?
    aquila 1263 Replies
    • November 9, 2007
    • 01:59 PM
    • 0
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  • It is called itchyosis - i have appt with specialist (dermatologist) in Jan. -
    Chassidy Hokkanen 5 Replies
    • November 9, 2007
    • 04:45 PM
    • 0
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  • Went to specialist - Rheumatologist - blood draw - results came back negative for anything - other than a high ige level again...yest. we did the skin test - negative again....i believe the only thing that they have not tested for is food. - Dr. told me that he has asthma and that children with asthma tend to have high ige levels...he is on zopenex and pulmacort everyday - twice daily. Dr. instructed me to give him the pulmacort even when well - So, NOW I AM CONFUSED AND UPSET - Is this how things are going to be - my child is going to live sick? Anyone think I should go and see another specialist, or what? He is sick now - fighting another respitory problem...next week I am sure he will contact some type of viral infection again - which btw - dr. says that the hairs in his lungs are damaged and that is what is causing him to catch anything and everything he comes into contact with. OH MY! I AM AT A LOSS! Since you live in Louisiana, it may be hard to find a NAET practitioner near you (but if you can find one, please go!). I HIGHLY suggest putting your kids on a restricted diet, and cut out ALL dairy, wheat, and sugar. Food intolerances are one of the leading causes of childhood asthma. Please understand that Western allopathic medicine is pharmaceutically driven, and if you want to help your kiddos you should look at their condition more holistically. This is my opinion, but I really believe in helping the body heal itself without the use of pharmaceutical drugs. I have adult onset asthma, and control it with diet, NAET, and herbs. Have used my albuterol only twice in the past 9 months. I would have a severe asthmatic reaction to Juniper, which is filled in my back yard. Spent $1500.00 on Western allergy testing and they told me I had NO allergies - NONE. I was so upset - I have very little faith in Western allergy testing. I have since found out to be allergic to many things with NAET. After my first NAET treatment I spent the afternoon in the back yard with my kids and the juniper, and had no problems! It works. Please do your research: there are helpful websites you can look up for alternative approaches to treating asthma, and skin diseases. Look into Homeopathy and get a good book on this at the library - HOMEOPATHY is fantastic for children as it is nondrug based and very safe and effective. I have effectively used Hyland's homeopathic remedies for both of my children, and have since they were babies. Please research this. There are many paths towards healing. Your path of only relying on Western docs and pharmaceutical drugs is only going to impair your son's immune system further - IMO. PLEASE consider a holistic approach. Best wishesDOM
    acuann 3080 Replies
    • November 9, 2007
    • 06:30 PM
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  • Have they said anything about enteroviruses? Primarily gastric, but a symptom is upper respiratory problems.
    rad-skw 1605 Replies
    • November 10, 2007
    • 10:43 AM
    • 0
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  • Please re-read Acuann's post. She is correct. The allergies are a big component of all of this. Also, people do not catch viruses due to damaged cilia (fingers) in the lungs....they catch them becaues their immune system is not strong enough to fight them. NAET or Bioset will help the immune system as well as everything else. PLEASE consider this therapy.....it brought me back from the dead!!! best wishes, mommy cat
    mommy cat 1654 Replies
    • November 10, 2007
    • 02:30 PM
    • 0
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  • Why would a five year old complain to me..."Mom, my bones hurt" and then point to his elbows and knees?
    Anonymous 42789 Replies
    • November 19, 2007
    • 03:33 AM
    • 0
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  • Your five year old is having 'Inflammatory response" causing severe joint pain. Joint inflammation...joint painIt is all allergy related, believe me.I had it so bad, I would "wimper" as I walked...and I am a grown woman.I was "allergic" to countless items, some of which were causing me joint pain....inflammatory response. Your son says "bones" because he hasn't learned the word "joint" yet. PLEASE consider NAET or Bioset for treating him. Like acuann says, it also helps with skin conditions. Take care and please take the advice...I did and now ALL of my symptoms are gone!! We are brainwashed into thinking only one way in regards to medicine...have a test, get a diagnosis and take some pills. What western med does is "mask" symptoms with chemicals that corrode your liver, kidneys and other vital organs. All the while big pharma is getting rich at our expense. This form of accupressure is non-invasive and gets to the "root" of the problem. It is very "natural"...and it works. I will become a BioSET practicioner in 08. best wishes, momy cat:)
    mommy cat 1654 Replies
    • November 20, 2007
    • 05:01 AM
    • 0
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