Discussions By Condition: I cannot get a diagnosis.

Vertigo for over 2 years, no diagnosis

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Anonymous
  • May 21, 2008
  • 03:54 PM

I woke up one day with a very stiff neck in Dec. 05, it lasted 10 days, my PCP did some bloodwork to rule out Meningitis, and Lyme disease, both were negative. They did a neck x-ray and said I had some minor arthritis. I still get the sore, stiff neck from time to time. The first MRI I had in Oct. 06, showed a protruding disc at c5-c6, but the radiologist did not think it was causing any symptoms. The dizziness came on gradually for months then finally became ever minute of every day. I have been through many tests..VNG, 2 MRIs (including 10/06), Rotary chair, Blood work etc. What we found: High ANA, caloric deficiency in left ear, first MRI found some lesions on my brain, second one did not, second one found some fibrous bone in my clivus and left jaw bones. They say my dizziness is caused by nystagmus, although I do not have an official diagnosis. My otoneurologist tried me on Neuronitin(gabapentin) which had no positive effect and made me a little nutty(per my husband). I called my doctor back and he then said ok, that isn't working, stop the Neurontin and we will try you on Klonopin. So far the Klonopin does help with the dizziness, but I am groggy in the daytime. I'll take the grogginess over the dizziness, but still I am without any kind of diagnosis after more than 2 years. That is a bit scary. If anyone has any idea I can throw to my doctor to get some sort of diagnosis or ask for an additional test to get one, I'd greatly appreciate it.

Thank you in advance.

Some additional maybe non-related details, I do suffer from joint pain, but RA and Lupus has been ruled out.

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2 Replies:

  • I'm so sorry to hear what you are going through. :( Have they ruled out:1. Meniere's (this can cause joint pain in some individuals)2. Infections (such as arbovirosis); a chronic infection seems like a likely culprit since your symptoms came on quickly, and infections can cause high ANA, vertigo, and pain3. Other autoimmune conditions (such as Sjogrens)4. Bartshi-Rochaix Syndrome5. Cancer Best of luck!
    GD2005 61 Replies Flag this Response
  • They did rule out Meneire's, the vertigo was a gradual onset, and no mention of viral causes from the docs. The only other auto-immune disease mentioned was scleroderma, but nothing after the mention of it, I was then sent to a Rheumatologist who did rule out the RA and the SLE. My eye doctor last year did say I had a dry left eye and suggested eye drops, I am going back to see him tomorrow actually since my left eye is bothering me (astigmatism with contacts so maybe just a new contact) but I plan on asking him his advice now that I can ask him about the causes of nystagmus. No one has mentioned cancer or the other syndrome so maybe my next appt I will ask. We shall see what my opthalmalogist says tomorrow. I will keep you posted. Thanks for your reply ;)
    Anonymous 42789 Replies Flag this Response
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