Discussions By Condition: I cannot get a diagnosis.

Vertigo & Dizziness Please Help

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Anonymous
  • January 20, 2012
  • 06:51 PM

I am hoping somebody, ANYBODY can help. About 5 months ago I started feeling slightly dizzy and didn't think much about it and it really didn't bother my everyday activities.  About 4 weeks ago my wife wound up in the hospital and was in ICU for a week (this may be relative which is why I bring it up) and wound up with a pace maker so it was very stressful for a week.  I stayed by her side 18 hours a day.  Being strong for she and my sons was dragging me down but I held it together until 2 days after she got home then I fell apart.  About 24 hours later my left ear sounded like a bee hive was in it and it lasted 5-6 hours.  It has since diminsihed to an annoyance but has never fully gone away (again, I mention this as it may be relative).  I wound up at the ENT the next day as I was concerned that the noise was there and was told after a hearing test and his looking in my ears, that he couldn't see anything wrong and it may be an inner ear infection but I was diagnosed with Tinnitus.  Over the past 2 months I have become more and more dizzy. This has gotten progressively worse and each time I have been put on different medications.  I went from an Anti-Vert medication, to dramamine, then the patch that goes behind your ear.  We have tried an Anti-Viral medication and even tried Beta Serc (Benahistine) in case it was Minier's disease.  Again nothing worked.  I was only dizzy up until this point but no veritgo.  Then they did an ENG to rule out another issue (which came back as normal) and since then I went from not only dizzy but to full blown Vertigo.  I have had a brain MRI (normal) Blood work (again normal) EKG Sugar testing etc.. Everything has come back normal.  I have now been put on Klonopin in case it was stress related but again I am seeing no change while being on it as well.  At this point I have been told that everything medically that he could do has been done and it was suggested I see a Neurologist and start Physical Therapy.  I have even tried natural herbs and vitamins and no change

If anybody has had anything like this or can possibly give me any guidance I would be in your debt as my quality of life has been greatly diminished because of this.  I can not even get in my car and drive to a store and trying to walk around and do grocery shopping or any household chores either worsens my vertigo or makes me so nausiated that I can not function

Thank you,

Troy

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  • I feel your pain with the vertigo... I've had it for about 3 years and it comes out of no where. When I had the ENT test done, they found that it was because my nerve had died in my right ear, probably due to an infection that I didn't realize I had. For starters, if you didn't have the ENT test done with water, then I would make sure you have it redone with the Water. It is proven that it has better results and that the ENT test done with the goggles isn't as accurate. I say this because I had it done with the goggles twice and three times with water and the water always showed that the nerve was dead. I recommend that you do PT for as long as you possibly can. It took a year of me doing PT to start to feel normal again and get my balance back to the way it is. Now it's easier for me to calm down and know what to do when I have vertigo set in. DO NOT take any medication for dizziness, as this has been proven it generally will only make symptoms worse usually, because it makes you tired and when your tired the vertigo usually sets in. This was told to me by two well known doctors in NYC who spealize in vertigo. Lastly, if you haven't already I would go see a doctor that specializes in otolaryngology. A small dose of anxiety meds can sometimes help and also acupuncture. Though from my expiereince the acupuncture made me feel worse, others swear by it. I hope this helps and feel better!!! I am hoping somebody, ANYBODY can help. About 5 months ago I started feeling slightly dizzy and didn't think much about it and it really didn't bother my everyday activities.  About 4 weeks ago my wife wound up in the hospital and was in ICU for a week (this may be relative which is why I bring it up) and wound up with a pace maker so it was very stressful for a week.  I stayed by her side 18 hours a day.  Being strong for she and my sons was dragging me down but I held it together until 2 days after she got home then I fell apart.  About 24 hours later my left ear sounded like a bee hive was in it and it lasted 5-6 hours.  It has since diminsihed to an annoyance but has never fully gone away (again, I mention this as it may be relative).  I wound up at the ENT the next day as I was concerned that the noise was there and was told after a hearing test and his looking in my ears, that he couldn't see anything wrong and it may be an inner ear infection but I was diagnosed with Tinnitus.  Over the past 2 months I have become more and more dizzy. This has gotten progressively worse and each time I have been put on different medications.  I went from an Anti-Vert medication, to dramamine, then the patch that goes behind your ear.  We have tried an Anti-Viral medication and even tried Beta Serc (Benahistine) in case it was Minier's disease.  Again nothing worked.  I was only dizzy up until this point but no veritgo.  Then they did an ENG to rule out another issue (which came back as normal) and since then I went from not only dizzy but to full blown Vertigo.  I have had a brain MRI (normal) Blood work (again normal) EKG Sugar testing etc.. Everything has come back normal.  I have now been put on Klonopin in case it was stress related but again I am seeing no change while being on it as well.  At this point I have been told that everything medically that he could do has been done and it was suggested I see a Neurologist and start Physical Therapy.  I have even tried natural herbs and vitamins and no changeIf anybody has had anything like this or can possibly give me any guidance I would be in your debt as my quality of life has been greatly diminished because of this.  I can not even get in my car and drive to a store and trying to walk around and do grocery shopping or any household chores either worsens my vertigo or makes me so nausiated that I can not functionThank you,Troy
    ireland85 1 Replies
    • January 24, 2012
    • 03:34 PM
    • 0
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  • TroyI hate to hear that you have these symptoms. I am in the same place as you are right now. First of all, do you know if anyone else in your family has similar symptoms? I was first diagnosed with Meniere's Disease but when my ENT died I had to find another DR. Meniere's disease is not Hereditary. I have about 6 people that I know of in my family with the same symptoms but none as bad as me except for my father, he had to finally use a wheel chair but did live til he was 80 yrs. old. When I finally found another Dr. it was a Neurologist. Your best route is to see a Neurologist and get the following tests done, ANS (Autonomic Nervous System Health Assessment), VNG (Videonystagmography),and an EEG (Electroencephalogram/Brain wave test). I have been diagnosed with Cerrebellar Attaxia. There is no cure and unfortunatly no meds for this disease.If you are not into a real strong spell and not throwing up Meclizine (generic for Antivert) works to some extent for me. My Neurologist also ordered Acetizolomide for me. That helps with the rubber leg feeling and some of my coordination problems. You can get Meclizine OTC at any Drug store but you need a Prescription for Acetizolomide.I hope this helps you to some extent.Get better soonLetecia
    magicalcpl 1 Replies
    • February 1, 2012
    • 03:42 PM
    • 0
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