Discussions By Condition: I cannot get a diagnosis.

Various symptoms keep on disappear and coming back

Posted In: I cannot get a diagnosis. 12 Replies
  • Posted By: Anonymous
  • March 10, 2008
  • 11:27 PM

I’m a 32 yrs old female. I’m having various health problems since 2003 (detailed history as in the second section) and the condition did change from time to time. I was having some medication for a few years but didn’t cure me. Then I stopped all the medications since April 2007 and begin to take some supplement tablet since July 2007. I thought I had some strange/serious illness initially, but I begin having some doubt that whether I’m just lack of some certain vitamins/minerals or nutrient imbalance.

(1) Health problems at present time

First half year of 2007, main problems are:
High stomach acid, stomach wind ( as describe in section 2b below )
Mouth ulcer
Menstrual problem
Body tolerance/flexibility ( as describe in section 2c below )
Emotional problem ( as describe in section 2e below )

Second half year of 2007:
July to Dec 2007- taking calcium tablet as supplement.
Later taking Vitamin B12 ( was hoping it will improve ulcer problem but it didn’t ) together. Forgot when I start taking it, may be Oct 2007 or before.
Summarize of problems:-
>>Stomach acid, stomach wind: became better slowly until totally no more stomach wind/bloated. Still having stomach acid problem but much better than before.
>>Mouth ulcer: became worse and worse until most of the time I had it.
>>Menstrual problem: became better
>>Body tolerance/flexibility: became worse
>>Headache: happen almost immediately after taking calcium ( but I didn’t aware of whether its related to calcium). The headache happen daily at July. Later it still happen frequently. After Oct or Nov (can’t recall when exactly) it happen less frequent and the degree of painfulness less too. Later it became very rare or none (as I couldn’t really recall).
>>Body ache: happen almost immediately after taking calcium ( and I’m not sure whether its related to calcium ingestion). Similar to headache, it happened daily at July, later became less and almost none, but can’t recall the exact time.
>>Coldness on hand and feet: became worse and worse since July.
>>emotional problem: the last 2 months of 2007 became better and more stable.

Jan to mid of Feb 2008:
Stopped taking calcium since beginning of Jan 2008.
Stopped taking Vitamin B12 since mid of Jan 2008.
Started taking magnesium since beginning of Jan 2008.
>>Stomach acid, stomach wind: became better and better until no more any symptom and totally healthy!
>>Mouth ulcer: became better and better until no more any symptom and totally healthy!
>>Menstrual problem: became worst
>>Body tolerance/flexibility: became better and better until no more any symptom and totally healthy!
>>Headache: none or almost none I guess.
>>Body ache: the problem came back slowly, from slightly pain till very pain and almost daily.
>>Coldness on hand and feet: a lot better.
>>emotional problem: got worse. became unstable since around or more than one month ago.

Mid of Feb, I couldn’t stand for the painfulness of the body ache anymore, tried stop taking any supplement. Only for 2 days it already showed some obvious changing: the body ache which happen since weeks before totally disappear while the stomach wind/bloat came back a bit on the first day and became totally terrible on the second day.

Then I bought a multivitamin from pharmacy, which every tablet contain 162mg of calcium, 100mg of magnesium and also some other mineral/vitamin.
Within 19th Feb to 5th March, I had tried a few different method of taking the supplement:
>>2 tablets of above mentioned multivitamin each day
>>one tablet of multivitamin per day
>>one tablet of multivitamin + 75mg magnesium ( the magnesium supplement which I took during Jan )
Observation as below:
>>Body ache: very bad.
>>Stomach acid, stomach wind: bad.
>>Mouth ulcer: got worse day by day.
>>Coldness on hand and feet: got worse day by day.
>>emotional problem: bad.
>>Body tolerance/flexibility: got worse day by day.
>>Headache: appear on 6th March. Terrible headache, the painfulness almost cause vomiting. It came together with body internal heat rise terribly. Went out for cold air and the headache reduced.
>>During this period, beside mouth ulcer, also having dry and rupture lips got worse day by day.

So I stop taking the multivitamin, because I guess my body can’t tolerant with calcium ingestion. I took only magnesium then.
6th & 7th March- 75mg magnesium 3 times per day. Still having headache and body heat.
8th march- 150mg magnesium 2 times per day. Still having headache and body heat. Headache became slightly better at night.
9th march- 150mg magnesium in the morning and 75mg magnesium in the evening.
Still having headache and body heat but became better.
10th march- 150mg magnesium in the morning.
Having headache and body heat became better.
Before 6th I was having body ache. From 6th to 9th march the body ache turn from less to none. But it appear again today, 10th march. It made me dare not take second dose of magnesium today. I’m not sure what exactly cause my body ache or how relevance are the magnesium and calcium to the body ache.

Another thing which I’m not sure whether its significant, I’ve read that some of the nutrition imbalance problems only attack one side of the body, either right or left side. My body ache problem mostly happens on the right side (right side of the neck, shoulder, back, hand), only once awhile it attack the left side.
While my headache and menstrual pain (waist pain) mostly are on the left side.


(2) Health history

(2a)
My health problem began with the neck and shoulder pain since 2003. later the pain spread to the whole back ache and hand (the whole hand till the fingers) and sometimes legs too. And the degree of the painfulness got worse and worse.
Shortly, the body ache got worse and worse.

(2b)
Later my stomach problem appeared. Had significantly high stomach acid which I need to take solid/heavy food every 2 or 3 hours. And I couldn’t take most of the fruits and vegetables or high fiber food, for taking these foods made my stomach bloated (stomach wind) and need to take another heavy meal in a short while later. I couldn’t just ignore the stomach acid and don’t take food so much because I’ll be having diarrhea and stomach pain then.

(2c)
Later my body lost tolerance/flexibility.
A little bit too warm weather could bring to headache. And I felt burning pain in the body when walking under the sun. Eating some heaty food (example fried or grill food, or beef, mutton, nuts, chocolate etc) could increase my body internal heat and mouth ulcer & other problems followed.
Even cold weather bring headache as well.
Even a slightly out of the position or accidentally minor adjustment of my spectacle would lead to headache when wearing the spectacle.

(2d)
Meanwhile my menstrual problem and mouth ulcer got worse and worse.
I didn’t have any menstrual pain/problems when I was young. Later menstrual problem appeared only when I not doing exercise/sport regularly. Later the menstrual problem didn’t go away even I do exercise regularly. Later the degree and the menstrual problems/pain got worse and worse.
For mouth ulcer, I had it once awhile and usually it could recover soon. Later the ulcer happens more frequently and also spends longer time to get recovered.

(2e)
Later unusual emotion problem appeared: Tend to get angry/sad/upset easily, having problem to control my emotion.


(3) Medication history

Stomach- stayed in hospital for 2 days 1 night. The specialist doctor did whatever necessary checkup and couldn’t find any problem with my stomach.

Eye- been told by eye specialist that my eyes having no problem at all.

Other overall problems- been tried a few medications: some Chinese doctors and some alternative medications mostly with medicine made of herbs.

Yearly blood & urine medical checkup- results showed everything normal except high cholesterol.


Conclusion and question:
Based on all the above observations, it seems to me like my body needs magnesium since it helps my stomach problems, ulcer, coldness on hand/feet and body tolerance/flexibility. Calcium seems to be helping my menstrual problems but it brings other problems. And I’m not sure what cause my emotional problem and body ache. What should I do or what other supplements should I take to overcome all these problems?

Thanks for whoever willing to read this long post and giving any opinion.

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12 Replies:

  • First, get some Nexium or Prilosec for the gastric reflux. Just by stopping the acid production, you will feel somewhat better. Read the label regarding vitamin usage when you take these drugs. What do you mean by "stomach wind", bloating and belching? Look up stomatitis for mouth ulcer and apthos. What exactly is your menstrual problem. Eat some bland food for a while. Stay away from caffeine (or wean yourself off of it slowly). (chocolate and colas included also). Could you have a pinched nerve in the back of your neck which causes the headaches and back pain. Try some gentle yoga for a while. Are you on any birth control pills?
    rad-skw 1605 Replies Flag this Response
  • Blaze,Thank you for your sharing. I'd just went through some info about both Electrical Hypersensitivity and Lyme. I have quite a numbers of the symptoms on both but not sure whether I'm really fall into both of these. You mentioned you have both of these, did you try any treatment or helpful solution?rad-skw,Thanks for your post. My stomach wind began with bloating and belching/***t few years back, at this early stage the illness feeling still not too bad because by having belch/***t it carried out the wind in the stomach. Later it turned into bloating without any belch/***t, big amount of wind kept in the stomach make illness feeling terrible. It also made me need to have different size of pants, when bloating serious I need to wear a pant with the waist size of 2 or 3 inches bigger than what I usually wear. The big amount of wind in the stomach also kind of like pressing my bladder till I need to visit toilet frequently though the volume of urine is little. When the stomach bloat really serious even the back of my waist feel pain.My menstrual problems are terribly waist pain, headache, stomach even more bloating than before the period, stomach pain (not that terrible), tire, not having good/stable mood.I'd been having very bland food for 2 to 3 years but didn't improve my health condition. My stomach totally couldn't tolerant with caffeine and tea. Also for 2 to 3 years almost totally not taking cold drink, cola, chocolate, nuts, spicy or sour food etc.I tried badminton, jogging, swimming, yoga, meditation, qi kong. They either totally not helping or help a little on relief my body pain at the beginning but not giving help later.I'm not having any birth control pill. I'm scare of any drugs.I used to have some pain killer for migraine in year 1999, frequent gastric medicine (some acid neutralize tablets) few years around 1999, asthma tablet from 1997-1999. Since year 2000 the migraine and asthma totally disappeared. After 2003 my body got more and more sensitive to drugs even some normal antibiotic would made me taking longer time in recovering my body strength. Since then I'd always resist any drugs, pain killer, antibiotic etc.
    Anonymous 42789 Replies Flag this Response
  • You have a lot going on! I wonder, have you had any blood work? What were the results? I too tried many supplements, and they either did nothing or sometimes made me feel worse! Personally I think you need to start at the beginning. (just my suggestion as your long post was had to figure...) 1. Make a simple list of the symtpoms that bother you the MOST....not ALL the symptoms just the major ones for now. For example: body aches, sleeplessness, morning headaches...and so forth. Don't go into lengthy explainations yet...this will help the doctor and help you as well. 2. Then list the blood work you have had done and what you have already checked for. Or gather all your lab reports together in a file. No point in repeating all the tests if they are fairly recent. 3. Now maybe you have something to work with! Personally I try to stay away from any "hit or miss" approach to "cure" something until you know what you are dealing with...it may skew lab results and make it harder to diagnose what is happening in the end. Just a thought: Some times many of these vague come-and-go-symtpoms can point to such things as thryoid problems or other autoammuine diseases. Vague symtpoms may also point to something like ovarian hormones problems, or other endocrine issues. It can also be stress related. I am just wild guessing here. My first advice is to organize a bit. If you post that back here, it may help others to help you as well. Joan
    Joan5555 316 Replies Flag this Response
  • Where exactly is your pain? Look at an anatomy chart to see where your stomach and uterus are positioned. Stomach above the waist and uterus below the waist. The small intestine is at waist level, Have you researched lactose intolerance, celiac, Crohn's, gastroparesis, pancreatitis and gallbladder problems etc. If your waist is swollen, I doubt it's your stomach (which is nowhere near your bladder either). There is a enzyme product is the US called "Beano" which might help with the gas. You take a couple drops with every meal. It is inexpensive and should be available where you live or you can buy it on the internet. Complex carbohydrates cause gas problems so maybe you could cut down on them. Maybe you are allergic to the dyes used to color the drugs. Regarding taking drugs. I believe that some Nexium/Prilosec can control your acid stomach. It actually shuts down the production of acid, while antacids just bring the pH back to normal. Constant irritation of the esophagus can lead to cell changes which could lead to pre-cancerous lesions. Stop the acid and give your body a chance to heal. Take some Midol for cramps. Midol has some caffeine so maybe just some Tylenol. Then you can make life-style changes and work on your digestive problems.
    rad-skw 1605 Replies Flag this Response
  • Joan5555, Thank you for your opinions! My last blood work in March 2007 included Haematology, screen of diabetes, kidney, lipid, liver, hepatitis, tumour markers, thyroid, serology and urine. The result showed everything normal except high cholesterol. rad-skw,the bloated is at small intestine till stomach level, which when its serious makes waist pain.stomach pain during period time is at the small intestine level i guess, i kind of like become can't differentiate exactly the various pain already after having so much pain for many years.
    Anonymous 42789 Replies Flag this Response
  • Ok....you did not mention your major physical symptoms but seems to be bloating? Again...what exactly are your thryid results? Can you post them here? Also I noticed that you did not have any ovarian hormones checked. Bloating can occur with ovarian hormonal problems. Bloating may also occur with thryoid problems. All these hormones are part of the complex endocrine system and one out of balance will effec the other. High cholesterol is not uncommon with thryoid problems. You may also want to check into other reason why your cholsterol is high....are both values high (good and bad cholesterol?). I had high cholsterol when I was on BCP. (hormonal imbalance)I had high cholesterol when I was having thryoid problems.I had bloating problems with thyroid problemsI had bloating and digestive problems with imbalance of ovarian hormones. Not saying these are the problems, but may be worth a closer check...do post the thryoid results and lab ranges of FT4, FT3, TSH. Joan
    Joan5555 316 Replies Flag this Response
  • just a tag: looking back at your history I am starting to get more and more suspicious of ovarian hormonal functions....possible ovarian cycts or other reasons why your hormones might be out of balance.......have you had a really, really good GYN doctor check you out? As you know, as women our hormons are constantly changing and for some reason your swings may be higher and lower than other women and causing more variety and severity of symptoms that the rest of us may not notice or can ignore........just a thought. Joan
    Joan5555 316 Replies Flag this Response
  • Joan, Thank you so much! but sorry I don understand what do you mean by your statement as quoted below??I'm catching time now and need to go, will reply others detail later.Ok....you did not mention your major physical symptoms but seems to be bloating?
    Anonymous 42789 Replies Flag this Response
  • Oh, sorry! I was just confused by your first post since it was very long and I was having a hard time figuring out what your main complaints were. I thought that might help to know what was the most troubling symptoms in order....I hope it might! Often a doctor will ask me what symptoms bothers me the most and then list after that... I realize that your symptoms seem to wax and wane...this is why I am suspicious of somthing cyclical like menstrual/hormonal trouble and you seem to mention menstrual problems quite a bit...seems to be a common thread...what do you think?. Menstrual problems /oravian hormonal problems, unfortunately can account for ALL THE OTHER symptoms you have going on in my opinion. So basically I think perhaps the underlying casue of all you other symptoms may be menstrual/ovarian problems. This is a place where I might start my investigation. I would recommend good GYN visit and blood work and since hormones change during the month you may want to do several blood tests at different times durning the month. You may also want to check you basal temps and see how and if ovulation is occuring and at what point. The reason I suspect ovarian is that women who go through perimenopause (starting late 30s sometimes) and through menopause will experience many, if not all, of the symptoms you listed and those symptms will wax and wane as hormones go all over the place durning this time in their lives. It can also happen to any women if the hormones get out of whack for whatever reason...and there are many! Of course I don't know if I am right here, but if it also seems to you that menstrual problems have pretty much been a constant problem to varying degrees throughout your troubled time and, you may want to check into it further. Now, that being said I would still LOVE to see your lab values for the thryoid hormones....that darned thyroid could be a cause as well...just an idea! Hope I helped a bit! Joan
    Joan5555 316 Replies Flag this Response
  • I get what you mean now. Below are my physical problems starting with the most bothersome first: 1) High stomach acid- need to have meal very frequently 2) bloating (stomach wind) 3) Body can’t tolerant with both warm and cold weather, and a lot of food 4) Mouth ulcer 5) Emotional problem 6) Menstrual problem (note: this sequence is base on my present condition and it is different with my condition at the beginning. I had body ache bother me the most few years back at the beginning) Blood result on March 2007: TSH- 1.16 with reference range 0.30-5.10 UIU/ML T4- 16.9 with reference range 11.5-22.7 PMOL/L Total cholesterol- 5.3 with reference range 1.04 MMOL/L LDL cholesterol- 3.6 with reference range Triglycerides- 0.8 with reference range Total/HDL ratio- 4.1 with reference range I had T4 result on Dec 2005 and March 2004 too, both of them are 131.3 and 116.7 with the reference range 64-167 NMOL/L. March 2004 blood result showed high cholesterol. Dec 2005 result showed the cholesterol reading even higher. So I took EPA & DHA as supplement hoped to improve the high cholesterol problem. March 2007 cholesterol result improved but still out of the reference range. I realize that your symptoms seem to wax and wane...this is why I am suspicious of somthing cyclical like menstrual/hormonal trouble and you seem to mention menstrual problems quite a bit...seems to be a common thread...what do you think?. if it also seems to you that menstrual problems have pretty much been a constant problem to varying degrees throughout your troubled time and, you may want to check into it further. Well I would say most of my symptoms/problems (including menstrual problem) seems to have getting worse and worse since 2003 instead of wax and wane (except the body pain did disappeared for sometimes). It was later my symptoms/problems got wax and wane when I started to take those supplement, calcium, magnesium, vitamin B12. What I’m trying to say is I guess those symptoms not really got wax and wane when I didn’t take the supplement tablets, but they got worse (at least some of them). I would recommend good GYN visit and blood work and since hormones change during the month you may want to do several blood tests at different times durning the month. how to do several blood tests at different times during the month? how frequent to do the blood test? example once every week within a month? what are the test items should include?You may also want to check you basal temps and see how and if ovulation is occuring and at what point.Sorry I don understand this. how to do it? Another thing is, I didn’t have any ovarian hormones checked. I always easily got infection at my private part since teenager age. Doctor usually gives me medicine when I have it. I had lump on my breast may be around 8 or 10 years ago (can’t recall exactly), I had checkup where they took some tissue from my breast to test it to see whether it’s dangerous type. The result was not a dangerous type. Then they monitored me for one to 2 years. and I have cyclical breast pain monthly. sometimes have discharge on nipple. I went to see a doctor recently and she was so surprise that I never been asked to do Gynecology test. She then requested me to do blood test which includes test items FT4, TSH, HDL cholesterol, Urea, anti TG, anti TPO, natrium, kalium, alkaline phosphatase and urine analysis. I’d done the test but haven’t got the result. She also asked me to do the Gynecology test and I have an appointment for this test. (I wanted to do some editing on my first post, thought to make a summarize there since I notice my long/detail post seems like not easy for others to read or a bit confusing. But I notice that I can only do editing within 15 minutes after I do a posting, after that the edit button disappear. So I have no idea how to do editing on the first post which I had post it a few days ago. I try to contact the administrator on this, when the administrator reply me and I tried to reply back, I’d always got delivery to recipient failed. So still working on it)
    Anonymous 42789 Replies Flag this Response
  • I would definitely see a GYN specialist....a GP may be ok, but GYN is probably best. well, I won't go into all the details of all the GYN blood tests and all, but I would say a good GYN blood tests, and exam would be advised. Sometimes they test you blood for progesterone and estrogen at different times of the month because a women cycle is such that the results will vary....if you your values are high at a time they should be low that will tell the doctor something. Discharge from the breast...definitely mention this to the doctor ...this is a certain sign of something going on with your hormones. You also may want to have an MRI to look at your pituitary gland. This is the master gland that tells your body how much hormones to make and when to produce them. A tumor on the pituitary (don't worry, from what I read it is not cancerous) can cause problems with balance of the hormones. I am not sure about all the digestive issues, except to say what I said before that the cause of almost ALL your symptoms may in fact have to do with hormonal imbalances....we women often have a hard time with this! If it were me, I would start with the GYN first and see where to go from there. Mouth ulcers....I had these a LOT when I was your age (I am 48 now) and it was almost always associated with my menstrual cycle. One doctor tried to help me by vitiamin Bs...and vitimin C, I have heard may help as well.....but the CAUSE may be the darned hormones. I am sorry to say the vitamins did not help the mouth ulcers....that was tough! Body aches...as a women in perimenopause (also experiencing hormal tryoble) I do get the body aches...if I stay in one position too long, or when I get up in the AM...stiff and achy.....it could be another things going on...I don't know but.... Keep a Food Diary: In the meantime, If I were you and y ou haven't done this yet, I would keep a diary of what I ate and how it made me feel. See if there is any connection with the food I am eating and the digestive issues. You may want to try a very bland diet for a while....eating only easily digested foods...hospital diet :p...and stay away from greasy foods and beans, raw vegetables and other foods that are know to give gas and be hard to digest.....eat things like plain rice, bananas, apple sauce, toast...keep away from dairy as well....no sodas and diet this or that and see if this helps...add in one new food at a time and keep out spices and stuff for a while....this is hard but may be well worth it...I KNOW as I did it! For me, I am not a person who can digest a lot of food at once. Sometimes It seems like it is so slow in going down and at other times I get strangly so hungry just before bed though i have eaten enough....this is new with my hormonal upsets of perimenopause....hormones can really casue all kinds of troubles! I sometimes suddenly get bloated...for no reason that I can tell! I have even gotten suddenly nausous and thrown up ....especially eggs.....but this happens rarely so I don't think it is a food allergy...so my bet is again on my crazy hormones....well hope this helps you a bit! Oh, your thryoid numbers look pretty good....I would say you do not hve a thryoid problem going on...I can't say for the others....high cholesterol can also be seen with ovarian hormone imbalances...so again my point for the GYN....Joan
    Joan5555 316 Replies Flag this Response
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  • Blaze,Thank you. I will read the article :)Joan,I don't know what to do now, may be I should wait for both blood test and gynecology test result and see what the GP said, then ask the GP to recommend a GYN specialist.Now that read what you said about pituitary gland, it made me relate to one thing. I had knocked my head years ago and the bump size got smaller then but never totally disappear. Now I have it pain on/around the bump once awhile. I'm not sure is this related to pituitary gland or all my health problems or my hormone imbalance. I didn't know this is important and forgot to mention it to GP that day though I did mention about the breast pain and discharge. And these few years it seems like whenever I hurt myself (during exercise etc, example hurt my ankle, toe), they couldn't get recovered, just like the bump, remain there still. My wrist even strange, I didn't get hurt but it just got pain when I press on a surface with my palm (example can not do palm exercise or some of the yoga exercise or any movement which need to press my palm on a surface) since few years ago. I doubt whether it's thyroid related or bone/joint or just some consequence of other major problem example pituitary gland? hormone? etc. I didn't really bother about these problems before because there are some other more bothersome symptoms/problems I keep dealing with, only keep dealing with those major/obvious symptoms/problems already made my usual life upside down :( So now keep dig it into detail it seems like I actually having more others weird symptoms.I'm having food diary. Had very bland diet 2 to 3 years, (you are right it's hard. and feeling life's so meaningless:p), so I know which are the foods would make my stomach more bloated or having worse mouth ulcer or make my body pain even worse or rise up stomach acid or bring headache etc. anyway the health problems still got worse and worse.Besides having food diary, how do you deal with the perimenopause? hope your condition quite ok. Isn't the darned hormone really a hateful fellow which bring a lot of setback and challenge through out a woman life?:rolleyes: If thyroid have no problem, is that mean that lymph node or lymphatic system having no problem as well?
    Anonymous 42789 Replies Flag this Response
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