Discussions By Condition: I cannot get a diagnosis.

Vague chronic symptoms, terrible night sweats

Posted In: I cannot get a diagnosis. 14 Replies
  • Posted By: RachelBullets
  • March 20, 2009
  • 07:26 PM

I've been posting on here for some time, just to get some kind of responses. I'm getting a little scared now.

I've been sick with non-specific symptoms for a couple of years now...nausea, vomiting, on and off low-grade fevers, body aches, joint pain, fatigue, nosebleeds, heavy menstrual bleeding, GI bleeding, jaundice, anemia , and night sweats.

I've read that the night sweats may be the key symptom for figuring out what's wrong, since they shouldn't be happening so much...they're chronic, been going on for almost 6 months now, absolutely DRENCHING my clothes and sheets. I've had a negative TB skin test. I also have had a swollen gland in the right side of my neck that once swelled to over an inch and was very hard. Now, I notice, there is a lump, like a rock, behind my jaw, near my ear. I have to slightly adjust my head to feel it, but its definitely there, and hasn't always been. It also isn't there on the other side. It doesn't move. I have had negative GI tests for UC and ulcers, negative for pancreatitis, and everything else my doc has suspected. The night sweats are so bad that they are waking me up several times a night. Should I be worried? When I got tested for TB the other day, I asked the urgent care doc if she could reccomend anything to reduce the night sweats. She said we'd better figure out the cause, instead.

What could it be?

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14 Replies:

  • I've been posting on here for some time, just to get some kind of responses. I'm getting a little scared now. I've been sick with non-specific symptoms for a couple of years now...nausea, vomiting, on and off low-grade fevers, body aches, joint pain, fatigue, nosebleeds, heavy menstrual bleeding, GI bleeding, jaundice, anemia , and night sweats. I've read that the night sweats may be the key symptom for figuring out what's wrong, since they shouldn't be happening so much...they're chronic, been going on for almost 6 months now, absolutely DRENCHING my clothes and sheets. I've had a negative TB skin test. I also have had a swollen gland in the right side of my neck that once swelled to over an inch and was very hard. Now, I notice, there is a lump, like a rock, behind my jaw, near my ear. I have to slightly adjust my head to feel it, but its definitely there, and hasn't always been. It also isn't there on the other side. It doesn't move. I have had negative GI tests for UC and ulcers, negative for pancreatitis, and everything else my doc has suspected. The night sweats are so bad that they are waking me up several times a night. Should I be worried? When I got tested for TB the other day, I asked the urgent care doc if she could reccomend anything to reduce the night sweats. She said we'd better figure out the cause, instead. What could it be? What are your stools like? Have you seen an endocrinologist? Are you on any medications including birth control?DOM
    acuann 3080 Replies Flag this Response
  • I have frequent diarrhea, and I notice that when I eat nuts and several types of vegetables, including lettuce, they're still solid food when I pass it. The bloody diarrhe has stopped and I'm noticing constipation now. They're sometimes a little pale, but not usually. They sometimes leave an oily layer on the water, though. I'm on Celexa and Nortrel BCP. Its the only way I could control the menstrual bleeding. My primary care doctor recently quit right before I had an appointment with him for his suggestion of Hepatitis and a 4-day-long nosebleed I had with dizziness and a spike in my blood pressure. I see my new doctor on Wednesday for a follow-up from my TB test and night sweat/pharyngitis diagnosis Everything is so all over the place, an ER doctor that I visited for chest pain and coughing up blood, wanted my primary to refer my to a research clinic, Shands. He never did it before he quit, so now I'm stuck with Public primary health care providers that might not know how to help. I don't know what to do at all.
    RachelBullets 120 Replies Flag this Response
  • if your stools are pale white looking ,i would deff get looked at for hepatitis, the oil base in toilet maybe a bad diet thing.
    Anonymous 42789 Replies Flag this Response
  • I have frequent diarrhea, and I notice that when I eat nuts and several types of vegetables, including lettuce, they're still solid food when I pass it. The bloody diarrhe has stopped and I'm noticing constipation now. They're sometimes a little pale, but not usually. They sometimes leave an oily layer on the water, though. I'm on Celexa and Nortrel BCP. Its the only way I could control the menstrual bleeding. My primary care doctor recently quit right before I had an appointment with him for his suggestion of Hepatitis and a 4-day-long nosebleed I had with dizziness and a spike in my blood pressure. I see my new doctor on Wednesday for a follow-up from my TB test and night sweat/pharyngitis diagnosis Everything is so all over the place, an ER doctor that I visited for chest pain and coughing up blood, wanted my primary to refer my to a research clinic, Shands. He never did it before he quit, so now I'm stuck with Public primary health care providers that might not know how to help. I don't know what to do at all. How long have you been on bcp? How long have you been experiencing these symptoms? Please try to remember when your symptoms developed and what were these initial symptoms? Do you smoke or drink alcohol? DOM
    acuann 3080 Replies Flag this Response
  • I am doctor and while i was searching for a diagnosis i found your state .I don't know where you live but i think you r sick with brucellosis . Make sure you do the following tests :wright test and brucella IgM + IgG . ANYTHING YOU NEED ,E-mail: clinic_98@hotmail.com
    clinic 10 Replies Flag this Response
  • I live in FL.I have been on bcp for since last April or may to control the bleeding, but started Nortrel 7 months or so ago and haven't switched. I haven't noticed a particular pattern with symptoms and meds.My nausea comes and goes every few days or weeks, and my bowel movements are irregular now, I had diarrhea consistantly for almost 7 months. I am also now having shortness of breath and chest pain, especially when I exercise, and my doc put me on antibiotics for endocarditis, but he's not sure yet. I've never seen an endocrinologist and have to wait until June 10th to see my doctor again.I also still have easy bruising and a high RDW and bleeding tendency even though my anemia has vastly improved.
    RachelBullets 120 Replies Flag this Response
  • I live in FL.I have been on bcp for since last April or may to control the bleeding, but started Nortrel 7 months or so ago and haven't switched. I haven't noticed a particular pattern with symptoms and meds.My nausea comes and goes every few days or weeks, and my bowel movements are irregular now, I had diarrhea consistantly for almost 7 months. I am also now having shortness of breath and chest pain, especially when I exercise, and my doc put me on antibiotics for endocarditis, but he's not sure yet. I've never seen an endocrinologist and have to wait until June 10th to see my doctor again.I also still have easy bruising and a high RDW and bleeding tendency even though my anemia has vastly improved.Hi RachelBullets,Sounds like you've been going through the wringer! I empathize with you greatly. May I ask your age and whether you've ever had any children?I'm really glad that you had a negative TB skin test...I was concerned when you added "coughing up blood" to your other symptoms. Very often the "cardinal" (pardon the pun) sign of an active tD disease process. I would also be interested in you history of smoking and/or alcohol use, if either is applicable. Sorry for the blunt approach but consider this as a basic screening questionnaire: do you (or you significant other, if applicable) have any personal history of IV drug use or unprotected intercourse?It sounds as though you have had numerous labs done. Have those included Hepatitis B & C screening?If you'd prefer not to answer any of the above in a public forum you may certainly email me at: jonmac391v@comcast.netBest regards,John
    JonMac 165 Replies Flag this Response
  • I'm 21 with no kids. No IV drugs ever.My Hepatitis screening for A,B, and C were all negative. Liver and kidney fucntion tests have come back normal, despite there beeing white blood cells and blood in my urine. One of my biggest problems now is my foot...it breaks out in blisters over a few months, then gets better. This is the worst its ever been, it hurts to wear shoes. Its not fungud, and no one can tell me what it is. The chest pain I got while swimming yesterday made me fear I was going to drown because it was painful and tiring o keep myself afloat.I smoke, not much, I used to be a 2-pack-a-day smoker but am at less than half a pack a day now, maye not even a quarter-pack. I've had a couple of chest x-rays all were normal. I used to drink a lot when I was younger, not much anymore, though. If I drink I get violently ill, even if I've only had 1 or drinks.
    RachelBullets 120 Replies Flag this Response
  • For goodness sakes, are you aware that your bc can cause nonspecific gallbladder disease and jaundice? And are you also aware the smoking with bc increases dramatically your chance of stroke and/or DVT (deep vein thrombosis)? Here is the link on the side effects of nortrel. http://www.drugs.com/sfx/nortrel-side-effects.html I think it is causing a lot of your symptoms. BC pills can be very dangerous for some people and this should not be overlooked but unfortunately is often overlooked by doctors. Best wishesDOM
    acuann 3080 Replies Flag this Response
  • Nortrel causes high blood pressure and breakthrough bleeding as well as colitis and renal malfunction.... the side effects are long and varied. Please take a close look at this and talk to your doc or gyno about your nonhormonal choices for bc. Please also look into getting your menstrual periods back on track using acupuncture and chinese herbs...this form of medicine is very effective for hormonal disorders and is much less toxic than bc. Best wishesDOM
    acuann 3080 Replies Flag this Response
  • I know about smoking and bc...I'm trying to quit. My health problems started almost 2 years ago. Nortrel is the only bcp that will stop the bleeding, or it won't. My last period only stopped after 50 days when I started Nortrel. I would think my doc and gyno would have suspected bcp side-effects. I'm waiting on ANA results because my doc suspects I have lupus or RA, which my father has. I would think he would have suspected med side-effects before running those kinds of tests. Tied acupuncture, doesn't work.
    RachelBullets 120 Replies Flag this Response
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  • I know about smoking and bc...I'm trying to quit. My health problems started almost 2 years ago. Nortrel is the only bcp that will stop the bleeding, or it won't. My last period only stopped after 50 days when I started Nortrel. I would think my doc and gyno would have suspected bcp side-effects. I'm waiting on ANA results because my doc suspects I have lupus or RA, which my father has. I would think he would have suspected med side-effects before running those kinds of tests. Tied acupuncture, doesn't work. No, your doctors may not have suspected bcp side effects. It is often the LAST thing they look at...did you look at the site I posted? Please just print this out and take it to your docs. Well as for acupuncture, you need to find an experienced practitioner who will prescribe the correct herbal medicine for your condition. The herbs are actually more important than the acupuncture in your case. An MD practicing acupuncture would be ineffective. I am surprised and sorry you had no help with acupuncture - may I ask where do you live? There is a patent formula called Yunnan Paiyao that stops bleeding, both internally and topically. I have used this with great success on my patients with menorrhagia (prolonged and profuse menstrual bleeding). Herbs etc has a product called "Smoke Stop spray" or something like that, that can help with the withdrawal symptoms of stopping smoking. Also, I have had friends and patients report amazing success with quiting smoking by using hypnosis. Quitting smoking should make a huge difference in your quality of life. Best wishesDOM
    acuann 3080 Replies Flag this Response
  • I DID look at the site. I think it may be the reason for my liver and kidney malfunction, which is more recent. I was told my kidneys may have been failing one day when I had been violently ill, throwing up bile, and my legs filled with fluid around my knees and thighs, which made it too painful to walk in the hospital, and the next day my urine was dark brown.I've had arthritis since about 8th or 9th grade, and my knuckles are getting large and bulky, so I wouldn't be shocked to have RA. Another thing is, my aunt on my mother's side is experiencing very similar issues. Her docs suspected lyme for 5 years before they decided it isn't.I got very alarmed 2 days ago when my chest pain and difficulty breathing almost had me under the water when I was swimming at first...I have always been athletic and a particularly effecient swimmer and never had any problems before that. As I said, my doc thinks I may have endocarditis, but should that sudden pain and change in ability to even stay afloat worry me? I was forced to hold on to buoys for almost 10 minutes while I waited to breathe normally and painlessly again.Also, I live in central FL, near Ocala.
    RachelBullets 120 Replies Flag this Response
  • I'm 21 with no kids. No IV drugs ever.My Hepatitis screening for A,B, and C were all negative. Liver and kidney fucntion tests have come back normal, despite there beeing white blood cells and blood in my urine. One of my biggest problems now is my foot...it breaks out in blisters over a few months, then gets better. This is the worst its ever been, it hurts to wear shoes. Its not fungud, and no one can tell me what it is. The chest pain I got while swimming yesterday made me fear I was going to drown because it was painful and tiring o keep myself afloat.I smoke, not much, I used to be a 2-pack-a-day smoker but am at less than half a pack a day now, maye not even a quarter-pack. I've had a couple of chest x-rays all were normal. I used to drink a lot when I was younger, not much anymore, though. If I drink I get violently ill, even if I've only had 1 or drinks.Since beer and whiskey seem to upset you the most, and since some of the other symptoms can be explained by medication side effects, I would also have a look at Celiac Disease.
    Anonymous 42789 Replies
    • January 25, 2011
    • 05:50 PM
    • 0
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