Discussions By Condition: I cannot get a diagnosis.

URQ Abdom pain, all tests negative SOLVED

Posted In: I cannot get a diagnosis. 11 Replies
  • Posted By: inchhighpe
  • January 29, 2007
  • 00:22 AM

I've read several threads on abdominal pain, but not found anything that quite fits me. Please please help, if you can. Symptoms are as follows:

* S/P Cholecystectomy (gall bladder removed) January 2005
* Severe pain Upper Right Quadrant abdomen, front, back and side begining August 2005, feeling like gall bladder attacks.
* Pain would come on at night in prone position, last for several minutes to several hours, no relief from medications, change in position, heat, cold, etc.
* Pain was intermittent for 1 year, would come several times a week, then go away completely for a few months.
* Beginning November 2006, had another attack, and it hasn't gone away since. The nature of the pain has changed to constant nagging at the same area (4-6 on the pain scale), spiking to periods of 8-10 scale pain. Seems to originate at scar site.
* Feels like someone is stabbing my ribs with a steak knife, it's horrific. Oral medications do not help, nor do topical Lidocaine patches. Heating pad provides minimal relief, movement and activity makes it much worse.

Tests, treatments and other stuff:
* Not affected by food or drink, pain seems random.
* CBC normal, Liver enzymes elevated, all other bloodwork normal.
* Diabetes negative, shingles negative.
* Pancreatic function normal.
* Bowel and urinary functions normal.
* Negative Ultrasounds
* Negative CT scans
* Negative ERCP
* Two weeks of antibiotics
* Two weeks of antivirals
* Nerve block and corticosteroid injections to dissolve scar tissue one week ago, no change. Feels worse now at the injection sites.

Please, if anyone has ANYTHING to contribute, I'd be so grateful. So would my family. My thoughts are with all the others who are unable to find a diagnosis for their chronic pain. I was on DepoProvera for a year, coming off just as the pain became continuous. Could this possibly be related, or is it just coincidental timing?

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11 Replies:

  • what medications are you taking?
    Anonymous 42789 Replies
    • January 29, 2007
    • 01:02 AM
    • 0
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  • Nothing at the moment. Finished antibiotics and antiviral about two weeks ago. I have a script for Vicodin, which I'm not taking because I'm leery of the Tylenol. Started out with Vicoprofen, but it didn't do much for me.
    inchhighpe 5 Replies
    • January 29, 2007
    • 01:20 AM
    • 0
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  • wow! Umm I dont know what to say. Is the pain on the left side? This feels very simular to one of my issues, but It took a internal synagram, and 4 mo. to find a spot and a pap to find an issue. Good luck honey.
    lizzi9983 35 Replies
    • January 29, 2007
    • 05:04 AM
    • 0
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  • I know this will sound strange, but take a look into myofacial and fibromyalgic pain. A major side point in fibro is in the upper right quadrant. (I know cause I have it). Good luck
    jackrorabbit 113 Replies
    • January 29, 2007
    • 05:45 PM
    • 0
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  • Jackorabbit, thank you. What is the treatment for these conditions? I will go look up some information right away. Good luck to you too, by the way.
    inchhighpe 5 Replies
    • January 29, 2007
    • 08:20 PM
    • 0
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  • Have you looked into the possibility of it being a Kidney Stone?? I had one stuck for approx 10 years in the ureter that goes from the Kindney to the bladder. I had many IVP's to check for kidney stones, but because the stone can be like a snowflake it went undetected for that long. It was when the urine finally stopped flowing completely that they could see it on xrays. The pain started off comming and going and then later was pretty constant but the pain that occurred when the flow stopped what right up there with the pain of labor, pain of galbladder, acute pancriatics. Galbladder pain was more dead center the kidney stone was less centered but hurt just as bad. Yes, I have had them all. One thing that does help for kidney stones is drinking alot of water. I know you said that food did not change your pain, but I thought I was drinking alot, but you need to drink more than you think. Good Luck. Bev
    Anonymous 42789 Replies
    • January 29, 2007
    • 08:22 PM
    • 0
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  • Yup a half gallon of water or gatorade a day or better. Only fix for fibro is muscle work, limited PT, accupuncture(not proven, but works very well for some people), and Biofeedback(in other words knowing your limits and staying under them). Hope it helps, there are some very good websites for it and two excellent books, although I cant recall the names at the moment. Ask your local pharmisist they should have or know of them.
    jackrorabbit 113 Replies
    • January 30, 2007
    • 08:33 PM
    • 0
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  • Hey, I hear you. I am in the EXACT same place as you. I had my GB removed in November 2006. It was inflammed and I had a couple large nasty gallstones so I do feel better. But I am STILL having similar symptoms as pre-surgery. Did yours seem to come up all at once like mine did?My GI is going to do an endoscope to see what is down my system. I am just now taking Nexium and while the heartburn is gone, I am still having issues with pain. My GI is going to check me for celiac disease (allergic to wheat/gluten) but I am not sure what role that plays. I feel BETTER after eating wheat like pasta or bread.Stay in touch...Doug
    Anonymous 42789 Replies
    • January 31, 2007
    • 04:55 AM
    • 0
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  • FINALLY got a diagnosis and treatment! Turns out scar tissue from surgery has grown around the nerves at my ribs (intercostal nerve entrapment). Cortisone injections have begun to dissolve the tissue at injection sites and I'm feeling SO MUCH BETTER! May do one more round due to the long-term nature of condition, but all things being relative, I'm very optimistic. I sincerely hope this helps someone else, as abdominal wall pain is so very difficult to diagnose. The injections are no picnic, but if the end result is relief, it's completely worth it. God bless doctors who listen and who know their specialty! Thanks to everyone who gave advice.
    inchhighpe 5 Replies
    • February 3, 2007
    • 11:00 PM
    • 0
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  • WOW! I am SO GLAD I found this! I just recently started having RUQ pain and it has gotten a lot worse in the last few days. I had bloodwork (full panel: chemistry, including liver, pancreas; and CBC) and an ultrasound yesterday and a CT today. All the tests have come up normal. My doctor wants me to see a GI specialist. I also had my gall bladder removed about 6 years ago, and my pain also seems to be originating under my scar tissue. It feels like I am being stabbed in the region just below my last rib on the right side and is aggravated by movement. It's really intense pain and very scary. I will bring this info with me to my appointment and just throw it out there. It seems like there are many people with unexplained RUQ pain who have also undergone gall bladder surgery.Thank you!
    Anonymous 42789 Replies
    • January 20, 2011
    • 03:09 AM
    • 0
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  • Are you taking any acid reducers? The other possibility is an ulcer of some kind. My aunt suffered with those for a long time, and do you still have your appendix? It is a long shot, but sometimes that pain can refer a distance away and get worse as the appendix gets more inflamed. The last option, could be, and this is my case, fibromyalgia. Usually that pain is closer to the belly button, but myofacial(usually comes with the fibro) pain can center around old scars.
    jackrorabbit 113 Replies Flag this Response
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