Im a 26 year old female. I've had problems with my tummy for about 13 years. I was diagnosed with endometriosis when I was 18, but even after having the endometriosis surgically removed, I've still had bowel problems. No doctor has ever taken me seriously......I've been fobbed off with all kinds of random crap...the most common being IBS.
I was admitted to hospital about 6 weeks ago (through a&e) after being in a huge amount of pain and losing quite a lot of blood when i was going to the loo. I had a sigmoidoscopy and was told that I have ulcerative colitis. I've now been told that the biopies and blod tests show that it isn't ulcerative colitis, even though my colon was covered in ulcers (I saw the gross pictures). The specialist has admitted that he doesnt know what it is, and he's referred me to a gynaecologist to rule out endo and a gastroenterologist.
Does anyone know what this could be??? I'm at my wits end. The pain is sometimes unbearable, although I can go for a couple of weeks at a time without a flair up. The pain is usually accompanied by an upset tummy, although not every single time. It flairs up when i'm on my period, although sometimes its the middle of my cycle and sometimes it doesn't happen on my period. I cant attribute it to any particular food or type of food, as it can happen when I haven't eaten much at all or if I have eaten a big meal.
The pain starts low down but quickly spreads all over and it comes in waves with no pain in between. It usually lessons once I have been to the loo, but not every time. Sometimes it builds back up again.
Please let me know if anyone has experienced anything similar.