Discussions By Condition: I cannot get a diagnosis.

Upon the Brink of Insanity: 6 Year Symptoms

Posted In: I cannot get a diagnosis. 15 Replies
  • Posted By: The Melody of Rain
  • August 3, 2007
  • 01:57 AM

Good evening and thank you for your interest.
I am a 20 year old male and weigh 168lbs.
I typically smoke 10 cigarettes a day and endeavour to ensure minimum alcohol consumption as the withdrawal heightens my already debilitating anxiety.
I’m sorry if this turns out to be rather lengthy even though I’m trying to focus on the most debilitating symptoms I possess.





I first recall the following symptoms occurring approximately six years ago. They came upon me instantly during a class I was attending at school. It began with cold flushes, tremors and a very pronounced chill along my spinal column, followed by extreme disorientation and physical weakness. Ever since this moment I have suffered with a perpetual sense of unease and physical weakness without yield. My most hindering symptoms are as follows:

Intense anxiety:
This is the most prevalent. This is what has spoilt my life for the past six years. Basically it is with me twenty four hours a day, each and every day. I have a severe weakening in cognitive functioning to the point where of my own accord I cannot recall what I’ve done yesterday (yet should someone remind me I’ll remember straight away), I’m devoid of all emotion, I cannot concentrate or socialize and I’ve gone beyond living in ***l. I have all the symptoms of a typical anxiety sufferer and more, to the point where I would be deeply sceptical as to whether this is actually psychological. There’s no reason for me to feel paranoid or self-conscious. I don’t harbour any delusions nor do I retain any recurrent illogical thoughts. I’ve endured CBT, countless psychiatric consultations and various medicines (that have done more harm than good) each to no avail. The most noticeable effects of this anxiety are:


*Eye lock: My eyes have become very sensitive to the light over the last number of years and when during those rare times when I venture out my eyes will literally lock and blur. I cannot move them and my perception of depth/distance is severely thwarted. Wearing sunglasses helps considerably, but I can’t wear them when they’re really needed such as in college. Also, it rains a ridiculous amount it Ireland.

*Twitching: Twitching of the muscles occurs everywhere, so I won’t list the locations but the most frustrating is in the muscles on the back of my neck (at least I think that’s where they’re originating from). These send my whole head into a three second ‘tremor’ of sorts which is immediately followed by an intense hot flush.

*Confusion and Apathy: …of epic proportions. I went into college this afternoon to hand in some assignments and after the staff member took them from me and put them away he asked me which classes they were for so he could record the details on the computer and I couldn’t remember. Nor could I write my signature, talk or properly balance myself. I’m quite confident that man now believes I am a drug addict.

*I also have a history of depression, which arose due to my ‘anxiety’ issues and having been met with the vexing prospect of never being cured of this affliction after trying a multitude of treatments. The result of having both depression and anxiety sent me into a 10 month bout of ruthless depersonalization which ended in December of last year. This however was a blessing in disguise because my depression left with it, yet I’m still ‘anxious’ and I fear the depression is creeping back. I cannot go through another bout of depersonalization once again. I simply cannot.


Stiff Joints: Self explanatory, but again this is also very intense. They cause me extreme difficulty in walking; as if I can’t lift my legs properly; as if there isn’t enough power being exerted to the muscles.

Abdominal Pulsation: This is highly disturbing and exceptionally evident. It’s constantly apparent, yet worsens during periods of heightened anxiety. Roughly eight years ago (before the anxiety, muscle and joint issues) I noticed that this pulsation actually runs throughout my whole body, but it seems to stem from the abdominal area where it is most notable. I came to this realisation when I was reading a book and I noticed my arms were moving back and forth as I was holding the book as if I was deliberately moving the book outwards from my chest and then back in. I then found that the same involuntary movement can be seen when I cross my legs and the leg that’s resting on the other can be seen to ‘bob’. My head also makes this same movement.


All of which ushers forth the question…what in the world could cause all this?
Its quite possible that I may have left out some important details here so if and when they do spring to mind I’ll edit the post at a later date.
My apologies if this was in any way incoherent; I feel remarkably stressed and frustrated at this particular time and my mind is slightly muddled.



Thanking you for your time and in advance, for your advice.

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15 Replies:

  • Also, I underwent a complete bio-chemical work up about 10 months ago and my GP explained that I was remarkably good health, yet I'm 99.9% debilitated.
    The Melody of Rain 7 Replies Flag this Response
  • I don't think this is just anxiety. Some of your symptoms aren't related to anxiety.Good evening and thank you for your interest. I am a 20 year old male and weigh 168lbs. I typically smoke 10 cigarettes a day and endeavour to ensure minimum alcohol consumption as the withdrawal heightens my already debilitating anxiety. I’m sorry if this turns out to be rather lengthy even though I’m trying to focus on the most debilitating symptoms I possess. I first recall the following symptoms occurring approximately six years ago. They came upon me instantly during a class I was attending at school. It began with cold flushes, tremors and a very pronounced chill along my spinal column, followed by extreme disorientation and physical weakness. Ever since this moment I have suffered with a perpetual sense of unease and physical weakness without yield. My most hindering symptoms are as follows: Intense anxiety: This is the most prevalent. This is what has spoilt my life for the past six years. Basically it is with me twenty four hours a day, each and every day. I have a severe weakening in cognitive functioning to the point where of my own accord I cannot recall what I’ve done yesterday (yet should someone remind me I’ll remember straight away), I’m devoid of all emotion, I cannot concentrate or socialize and I’ve gone beyond living in ***l. I have all the symptoms of a typical anxiety sufferer and more, to the point where I would be deeply sceptical as to whether this is actually psychological. There’s no reason for me to feel paranoid or self-conscious. I don’t harbour any delusions nor do I retain any recurrent illogical thoughts. I’ve endured CBT, countless psychiatric consultations and various medicines (that have done more harm than good) each to no avail. The most noticeable effects of this anxiety are: *Eye lock: My eyes have become very sensitive to the light over the last number of years and when during those rare times when I venture out my eyes will literally lock and blur. I cannot move them and my perception of depth/distance is severely thwarted. Wearing sunglasses helps considerably, but I can’t wear them when they’re really needed such as in college. Also, it rains a ridiculous amount it Ireland. *Twitching: Twitching of the muscles occurs everywhere, so I won’t list the locations but the most frustrating is in the muscles on the back of my neck (at least I think that’s where they’re originating from). These send my whole head into a three second ‘tremor’ of sorts which is immediately followed by an intense hot flush. *Confusion and Apathy: …of epic proportions. I went into college this afternoon to hand in some assignments and after the staff member took them from me and put them away he asked me which classes they were for so he could record the details on the computer and I couldn’t remember. Nor could I write my signature, talk or properly balance myself. I’m quite confident that man now believes I am a drug addict. *I also have a history of depression, which arose due to my ‘anxiety’ issues and having been met with the vexing prospect of never being cured of this affliction after trying a multitude of treatments. The result of having both depression and anxiety sent me into a 10 month bout of ruthless depersonalization which ended in December of last year. This however was a blessing in disguise because my depression left with it, yet I’m still ‘anxious’ and I fear the depression is creeping back. I cannot go through another bout of depersonalization once again. I simply cannot. Stiff Joints: Self explanatory, but again this is also very intense. They cause me extreme difficulty in walking; as if I can’t lift my legs properly; as if there isn’t enough power being exerted to the muscles. Abdominal Pulsation: This is highly disturbing and exceptionally evident. It’s constantly apparent, yet worsens during periods of heightened anxiety. Roughly eight years ago (before the anxiety, muscle and joint issues) I noticed that this pulsation actually runs throughout my whole body, but it seems to stem from the abdominal area where it is most notable. I came to this realisation when I was reading a book and I noticed my arms were moving back and forth as I was holding the book as if I was deliberately moving the book outwards from my chest and then back in. I then found that the same involuntary movement can be seen when I cross my legs and the leg that’s resting on the other can be seen to ‘bob’. My head also makes this same movement. All of which ushers forth the question…what in the world could cause all this? Its quite possible that I may have left out some important details here so if and when they do spring to mind I’ll edit the post at a later date. My apologies if this was in any way incoherent; I feel remarkably stressed and frustrated at this particular time and my mind is slightly muddled. Thanking you for your time and in advance, for your advice.
    Anonymous 42789 Replies Flag this Response
  • Abdominal Pulsationhttp://www.accesssurgery.com/images/spacer.gifMore CommonAbdominal aortic aneurysm Hepatic tumor, metastatic Iliac aneurysms Pancreatic adenocarcinoma Renal artery aneurysm Thoracic aortic aneurysms Visceral aneurysmsLess CommonAdrenocortical carcinoma Gastrointestinal stromal tumor, leiomyomas, & leiomyosarcoma Hepatic neoplasms, benign Islet cell tumors, nonfunctioning Retroperitoneal hemorrhage Retroperitoneal sarcomahave you had any xrays. MRAs, CTs etc.? Just lab work?
    rad-skw 1605 Replies Flag this Response
  • Go to a chiropractor... It's related to your whole nervous system - a course in chiropractic sessions can do wonders.Get regular massage from a therapist you feel comfortable with... especially an Indian Head Massage would be great.Go on a Vipassana Meditation Retreat or something similar. A meditation retreat of no religious beliefs can really help cleanse. It sounds like you are not grounded. Walking in barefeet, gardening, anything that calms your mind so you don't overload yourself.Write everything down on paper so you don't need to worry about remembering. You are not going insane.
    Anonymous 42789 Replies Flag this Response
  • Sore throat, chills, sweats, low body temperature, low grade fever, lymphadenopathy, muscle weakness (or paralysis), muscle pain, muscle twitches or spasms, gelling of the joints, hypoglycaemia, hair loss, nausea, vomiting, vertigo, chest pain, cardiac arrhythmia, resting tachycardia, orthostatic tachycardia, orthostatic fainting or faintness, circulatory problems, opthalmoplegia, eye pain, photophobia, blurred vision, wavy visual field, and other visual and neurological disturbances, hyperacuity, tinnitus, alcohol intolerance, gastrointestinal and digestive disturbances, allergies and sensitivities to many previously well-tolerated foods, drug sensitivities, stroke-like episodes, nystagmus, difficulty swallowing, weight changes, paresthesias, polyneuropathy, proprioception difficulties, myoclonus, temporal lobe and other types of seizures, an inability to maintain consciousness for more than short periods at a time, confusion, disorientation, spatial disorientation, disequilibrium, breathing difficulties, emotional lability, sleep disorders; sleep paralysis, fragmented sleep, difficulty initiating sleep, lack of deep-stage sleep and/or a disrupted circadian rhythm. Neurocognitive dysfunction may include cognitive, motor and perceptual disturbances. Cognitive dysfunction may be pronounced and may include; difficulty or an inability to speak (or understand speech), difficulty or an inability to read or write or to do basic mathematics, difficulty with simultaneous processing, poor concentration, difficulty with sequencing and problems with memory including; difficulty making new memories, difficulty recalling formed memories and difficulties with visual and verbal recall (eg. facial agnosia).flushing Hi. Above is a list of symptoms for CFS/ME. Yours are highlighted in red. I'm sure there are others you haven't mentioned. I have recently been diagnosed and found this site right before. There are alot of people here having same/similar symptoms. I hope you are well adn this info helps. Take Care...mc:)
    mommy cat 1654 Replies Flag this Response
  • I don't know what you have, but I can pretty much guarentee its not CFS/ME. If you look at all the symptoms, you will see that it pretty much covers every symptom that a person can have.I would rather agree that you need a break from school and the world. You need to either commune with nature, as someone mentioned above or meditate. I think that you need to go on vacation. You should join Habitat for Humanity and go to Indonesia and help build homes for the people who lost homes during the Tsunami of 2003/4.Thats just my advice. Get away from everyone and everything and help others. If your doctor says that you are medically fit. Take your sunglasses and head to Indonesia for 6 months.
    Anonymous 42789 Replies Flag this Response
  • How worrying. Is it curable?Thank you by the way.
    The Melody of Rain 7 Replies Flag this Response
  • There is a lot of information regarding this at www.ahummingbirdsguide.com The world calls it ME...The USA calls it chronic fatigue syndrome. It is also known as post viral fatigue syndrome and many others.I have done a lot of research. The best information and help I have found is NAET or Bioset therapy. A friend of mine I met in this forum recommended it. I went. It works. I have been a nurse for a long time and was very doubtful, as all I know is test...diagnosis...medicine.It is a non-invasive form of accupressure which has relieved 90% of my symptoms. I would have never believed it, if I hadn't experienced it for myself.I have written several threads in this forum. You can do a search for threads written by mommy cat. There is alot of helpful information in the posts and the links I have provided.I was initially very worried myself. After meeting others with this and researching info, I found that no, it is not curable...but with NAET or Bioset....it is treatable. I wish you the best of luck and be well.The best advice I've found so far is the therapies....drink plenty of water with fresh squeezed lemon for detoxuse sea salttake a daily multivitaminVitamin C and Zinc also helpeat organic/raw/macrobiotic as ableresearch CFS/ME....Bioset....NAETThere is alot of helpful info out there.God Bless......mommy cat:)
    mommy cat 1654 Replies Flag this Response
  • You are very welcome:D , by the way. mommy cat
    mommy cat 1654 Replies Flag this Response
  • Dear unregistered from above....WHY DIDN'T I THINK OF THAT?Yes, of course...grab your sunglasses and head to Indonesia to build some houses. That will cure you straight away!!!!!!!!!!!!!!All of this person's symptoms are definitely caused from needing a break from school. You are a genius!!!!!!!!!!Get a life and stop attemting to bash my information. You sound absurd.mc
    mommy cat 1654 Replies Flag this Response
  • I appreciate the input you both have given but I must insist on no arguments developing in this thread. This is a very serious issue for me as I'm sure you can imagine. It would be foolish to draw a conclusion without an appointment with my doctor, but I was in need of some suggestions as I'm unemployed and a full time college student so it may be a week or two until I gather the relevent funds to schedule a date. Indonisia is a definite impossibility on many levels and of which I am certain will be most counter productive. As for CFS/ME, its a possibility of course - but I'll let my doctor deciede. I dont feel particularily tired (and I know theres more to CFS than just fatigue).Can anyone suggest any tests I should consider? In response to rad-skw, no I have never had an MRI or a CT scan. Are they expensive? I suspect it may be something to do with my nervous system...
    The Melody of Rain 7 Replies Flag this Response
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  • I hope this information on "concluding" CFS/ME as a diagnosis is helpful to you. I really am trying to help you avoid what I went through trying to get my answers. Brain lesions...MS/ME/CFS no cause identified, however, researchers have done a study. Of all the MS patients tested, over 90% tested positive for a "Cryptovirus" in their cerebro-spinal fluid. Perhaps similar/same as your "stealth" virus information. Researchers are now beginning to believe that a virus may be to blame for several neurologial disorders worldwide.As far as the blood tests, much is done in way of immunology testing.First, a patient with ME/CFS may have increased number of cytotoxic t-cells.most patients have t-cell activationlow natural killer cell numbersmay be depleted of Stat-1, however, there is no commercial testing available for this.elevated immune complexesabnormal atypical lymphocyte countsignificantly reduced CD8 supressor cellsPopulation and increased activation marker (CD38, HLA-DR) on CD8 cellsAbnormal CD4/CD8 ratioelevations of circulating cytokinesImmunologic defeciencies(most often IgG1 and IgG3)Evidence of antilamin antibodies(antibodies against this protein are proof of autoimmunity and damage to brain cellsESR rate unusually low with a brief period of elevationInsulin levels and glucose tolerance test-glucose tolerance curves are abnormalchemical Stress test or exercising testing is also used.Patients may also haveShortness of breath upon exertionNodular Thyroidnasal passage obstruction and inflammed areas around tonsillar pillars and unusual sensitivity of cervical vertabrae area.I hope this clarifies some questions for you.mommy cat:)
    mommy cat 1654 Replies Flag this Response
  • Dear Original Poster:Anxiety is not a disease- it is a symptom of a larger scheme of problems.My friend MC likes to call it CFS, I like to call it Immune Dysfunction.I am like you am a full time college student and I don't have insurance. I manage to recover from anxiety and a long history of allergies, muscle pain, sugar and coffee addiction, etc by using NAET.NAET. comI can talk to you for 6 hours about how all my research matches all your problems and brings out new conclusions about what the problems are. I used my college library to research all of it before and during the time I started to take treatment with NAET.It costed me $1000 to fix myself- and about 15 NAET visits. After 10 years being sick- borrowing one grant was just what I needed. I did not pay it all at once. NAET visits costs between 50 and 70 bucks each. On the other hand I have bills for 5 different doctors and they triple the amount of money spent in NAET. I spent $600 in blood work that yielt nothing. In fact- I used to have insurance, and no doctor ever told me anything useful- just gave me pills to make the unexplainable symptoms go away, until I lost my insurance.Just a hint- smoking not just makes you sick- you smoke because you are sick! That jolt or relaxation that you need to get from cigarrettes is a sign that your nervous system is not giving you the natural jolts and relaxation that life demands.You see? You are trying to compensate for something that should be there in your natural state-- just like I used to eat tons of sugar and coffee because my body could no longer produce instant energy. I was always tired and wired. I needed to drink coffee to sleep.Take Care and good luck!Frui.
    Eatafruit78 960 Replies Flag this Response
  • Dear Original Poster...Eatafruit78 is the one person I "met" in the world who recommended NAET/Bioset therapy. I was desperate so I took her advice. I am so glad I did, for it truly helps.The only thing a "real" doctor will give you is a diagnosis of something and a prescription for a pill or ten to "mask" symptoms...pain meds, antidepressants, psychotropics and so on...we are a culture of pill popping zombies to put it bluntly. This therapy goes to the root of symptoms and fixes what's wrong....it doesn't just mask and pretend.The NAET/Bioset doctors will help you more than you will believe and it has nothing to do with taking medications. I used to take pain pills daily for severe joint and muscle pain and Xanax for anxiety issues I was having. Since Bioset therapy, I have not needed any of it. Unbelievable from my perspective....but true.We truly are trying to help others. I give the CFS/ME info and Eatafruit78 gives the NAET/Bioset info it seems. She told me about it, and for this, I am forever grateful to her.Wishing you well...mc
    mommy cat 1654 Replies Flag this Response
  • Sounds to me like you have classic symptoms of LYME disease and the co-infections this carries. Hopefully by now you have been diagnosed properly and treated. If not, go to a Lyme Literate doctor, find through internet search and make an appointment. Get your life back!!!Good evening and thank you for your interest. I am a 20 year old male and weigh 168lbs. I typically smoke 10 cigarettes a day and endeavour to ensure minimum alcohol consumption as the withdrawal heightens my already debilitating anxiety. I’m sorry if this turns out to be rather lengthy even though I’m trying to focus on the most debilitating symptoms I possess. I first recall the following symptoms occurring approximately six years ago. They came upon me instantly during a class I was attending at school. It began with cold flushes, tremors and a very pronounced chill along my spinal column, followed by extreme disorientation and physical weakness. Ever since this moment I have suffered with a perpetual sense of unease and physical weakness without yield. My most hindering symptoms are as follows: Intense anxiety: This is the most prevalent. This is what has spoilt my life for the past six years. Basically it is with me twenty four hours a day, each and every day. I have a severe weakening in cognitive functioning to the point where of my own accord I cannot recall what I’ve done yesterday (yet should someone remind me I’ll remember straight away), I’m devoid of all emotion, I cannot concentrate or socialize and I’ve gone beyond living in ***l. I have all the symptoms of a typical anxiety sufferer and more, to the point where I would be deeply sceptical as to whether this is actually psychological. There’s no reason for me to feel paranoid or self-conscious. I don’t harbour any delusions nor do I retain any recurrent illogical thoughts. I’ve endured CBT, countless psychiatric consultations and various medicines (that have done more harm than good) each to no avail. The most noticeable effects of this anxiety are: *Eye lock: My eyes have become very sensitive to the light over the last number of years and when during those rare times when I venture out my eyes will literally lock and blur. I cannot move them and my perception of depth/distance is severely thwarted. Wearing sunglasses helps considerably, but I can’t wear them when they’re really needed such as in college. Also, it rains a ridiculous amount it Ireland. *Twitching: Twitching of the muscles occurs everywhere, so I won’t list the locations but the most frustrating is in the muscles on the back of my neck (at least I think that’s where they’re originating from). These send my whole head into a three second ‘tremor’ of sorts which is immediately followed by an intense hot flush. *Confusion and Apathy: …of epic proportions. I went into college this afternoon to hand in some assignments and after the staff member took them from me and put them away he asked me which classes they were for so he could record the details on the computer and I couldn’t remember. Nor could I write my signature, talk or properly balance myself. I’m quite confident that man now believes I am a drug addict. *I also have a history of depression, which arose due to my ‘anxiety’ issues and having been met with the vexing prospect of never being cured of this affliction after trying a multitude of treatments. The result of having both depression and anxiety sent me into a 10 month bout of ruthless depersonalization which ended in December of last year. This however was a blessing in disguise because my depression left with it, yet I’m still ‘anxious’ and I fear the depression is creeping back. I cannot go through another bout of depersonalization once again. I simply cannot. Stiff Joints: Self explanatory, but again this is also very intense. They cause me extreme difficulty in walking; as if I can’t lift my legs properly; as if there isn’t enough power being exerted to the muscles. Abdominal Pulsation: This is highly disturbing and exceptionally evident. It’s constantly apparent, yet worsens during periods of heightened anxiety. Roughly eight years ago (before the anxiety, muscle and joint issues) I noticed that this pulsation actually runs throughout my whole body, but it seems to stem from the abdominal area where it is most notable. I came to this realisation when I was reading a book and I noticed my arms were moving back and forth as I was holding the book as if I was deliberately moving the book outwards from my chest and then back in. I then found that the same involuntary movement can be seen when I cross my legs and the leg that’s resting on the other can be seen to ‘bob’. My head also makes this same movement. All of which ushers forth the question…what in the world could cause all this? Its quite possible that I may have left out some important details here so if and when they do spring to mind I’ll edit the post at a later date. My apologies if this was in any way incoherent; I feel remarkably stressed and frustrated at this particular time and my mind is slightly muddled. Thanking you for your time and in advance, for your advice.
    Anonymous 42789 Replies
    • January 24, 2011
    • 10:22 PM
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