Discussions By Condition: I cannot get a diagnosis.

Unusual Symptoms

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: mysterious
  • December 6, 2006
  • 02:49 AM

In the beginning of June I started having pain in my left ear followed by ringing. By the end of the week the same thing happened to my other ear. The ringing wouldn't go away so I went to my doctor and he thought it might be swimmers ear, but it wasn't. I went back and he thought I might have a sinus infection and gave me medicine but that didn't help either. I then went to an ears, nose and throat doctor. I had some hearing tests done which showed I was on the lower side of average which is way below average for my age though, I'm only 19. He gave me prednisone thinking that my inner ear might be swollen causing the ringing. By this point I was also experiencing headaches and dizziness. The prednisone didn't help so I had a CTscan done which showed nothing. I also had a bunch of other dizziness tests (not sure what the real name is) done. One test showed that I might have miniere's disease in my left ear but not my right. Another test for miniere's disease was completely normal though. My doctor put me on maxzide, but that only made my symptoms worse so he told me to stop taking it. At this point I went off to college so I put the ear issue on hold. Then in the beginning of October my neck glands got really swollen. I went to a doctor at school and he said I had mono and it should go away on its own. Two months later my neck is still just as swollen as it was before. My tonsils have just started to swell too. Right now I am back on prednisone to make sure my airway doesn't swell up. The ringing in my ears are getting a lot worse and the headaches and dizziness are also getting worse. I don't know if this has anything to do with my other symptoms but I have brown spots on my stomach which are apparently tinea versicolor. Also, recently the back of my left leg has been burning. It's hard to explain, it feels like it's on fire. Even when the rest of my body is cold, that one part of my leg burns. My ears, nose and throat doctor has now given up on me and is referring me to someone new. My doctor here has basically given up too. He said the mono should've definately been gone by now so he doesn't know what could be causing my swollen glands. It's been six months since I've heard what complete silence is. I am sick of being constantly sick and not knowing what's wrong with me. Can someone please help me!!

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  • I had almost identical symptoms when I was 10 years old. It was almost a year before we found out the cause of them and like you, the doctors had all but given up. My pediatrician even suggested to my mother that I was a hypochondriac. As it turned out I had a severe bacterial infection making its way around my body. It was resistant to the normal antibiotics and was only discovered when my mother took me to an E.N.T. specialist and he decided to remove my tonsils. By that point it had spread to several areas on my body and needed to be treated intravenously, and orally for several weeks after. After that I was fine. If your doctors won't listen, then perhaps it is time to see someone new. Never be afraid to ask for a second opinion, or even a third or a fourth. Only you know what you are feeling and what your body normally feels like. If you know somethings wrong, make noise until you are heard. My mother didn't give up on me and in the end it saved my life. My E.N.T. told my mother after the lab work came back on the infection and blood samles they took during surgery, another few weeks and it would have been too late. I would have died of sepsis. Perhaps it's an infection. Try seeing an immunologist. Another possiblity is something neurological, so try a neurologist too. Again, don't give up! Good luck.
    Anonymous 42789 Replies
    • December 6, 2006
    • 05:10 AM
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  • You might see a doctor who gives vitamin C injections for mono. If you have mono you can rid your body of it more quickly with the C injections. My niece was cured of mono in several days. The C would help fight any kind of viral and bacterial infection. But it sounds like you would need injections. The thing is you couldn't take enough vitamin C in tablet form to wipe this out as you would probably reach bowel tolerance before you got to that level. But if the C is given to you so that it bypasses the bowels you can take in the amounts needed to fight the infection. I'd definitely look around for a naturopath or a doctor who is aware of the potential of vitamin C as a healing agent for infection.
    Anonymous 42789 Replies
    • December 6, 2006
    • 09:10 AM
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  • I forgot to mention that you might want to research the side effects of prednisone. It might be that some of the later symptoms are due to that drug.
    Anonymous 42789 Replies
    • December 6, 2006
    • 09:13 AM
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