Discussions By Condition: I cannot get a diagnosis.

Unsolved medical case PLEASE HELP

Posted In: I cannot get a diagnosis. 14 Replies
  • Posted By: GivenUp
  • March 9, 2008
  • 08:34 PM

So about two years ago my husband got the flu. He was sick in bed for TWO WEEKS i was very worried because all the flu's I have had went away in about a week.

So i took him to the hospital where he was given antibiotics. Then in about two days the flu went away and we were both happy. The next day he went to work and there was a terrible accident, he works as a construction worker and one of the people there had a 500 pound steel bar fall on his leg. So i got a call saying that my husband was laughing out of control at what had happened!

I couldn't believe it! so i picked him up and he was laughing like there was always something funny happening. I brought him to the hospital and they asked what happened, and they said he had something called euphoria? or something like that. They said its like a good mood or it can be caused by good events in the persons life (like that flu being cured because he was VERY sick) but i wondered why he would be in this "good mood" after seeing such a bad accident happen.

So i brought him home and this laughing thing went away within the day. I didn't think to much or it. now something els happened and i was really scared. His hand did this thing where his fingers got all distorted AGAIN i brought him to the hospital. MRI was done and nothing was wrong. They said it was most likely a muscle spasm. Again i brought him home.

It went away within the day and i found this odd because he was having all these weird things happening then POOF they are gone quicker than they started. Now a new serious symptom showed up

He went blind! and it switched off and on for a few hours, he would go blind then he could see but the colors weren't right. He saw blue as red white as black ect so again i brought him to the hospital and they did another MRI and eye test, they found NO REASON for the blindness. But they did something right for once, they kept him in the hospital over night. The next morning i came back and picked him up and he was moaning about pain in his head arms legs ect. he pretty much had pain everywhere. I brought him home and took his temp, it was 103.90 so i put cold wash cloths on his forehead but they didn't help.. and as the day went on the pain throughout his body got MUCH worse. Im pretty sure you could hear him screaming from down the road. So again... I brought him to the hospital they gave him morphine which helped but he was still in pain. I found that odd because morphine is one powerful pain killer.

They kept him there over night and when i got back the next day they were asking him how bad the pain is and he said 10/10, it was so bad that it looked like a continual seizure! he was screaming in pain and by now the doctors were doing tons of tests but could not find anything. The next day when i got back they gave me a consent form and i asked what it was about. They wanted to put him in a chemically induced coma or the pain would kill him. they said he had something called hyperalgesia and that whatever he had was in the pain center of his brain. Well I didn't have a choice so i let them do it.

And he never woke up from it. They did test after test autopsy you name it they did it. But no answers.

I am still looking for an answer, I need to know what happened. Thats the only way I will feel at ease.

I didn't give enough symptoms to go on so i have put a list of ALL his symptoms together. The symptoms in the paragraphs above were the most serious but he had others:

Vomitting
Dizziness
Extreme pain
Loss of sight
Euphoria
Hyperalgesia
High fever
Shortness of breath

and any other symptoms i missed will be found in the above paragraphs.

does anybody know what this is!?

also incase this is of value, all the things he did the days before the flu:

we took a vacation, we went swimming ate tacos, fish (cooked), we went fishing and then more swimming, bike riding then we checked into a motel for a few days.


thank you in advance for any help at all

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14 Replies:

  • Where in the world was the vacation???? How old was your hubby when he first got sick and when he died? So about two years ago my husband got the flu. He was sick in bed for TWO WEEKS i was very worried because all the flu's I have had went away in about a week. So i took him to the hospital where he was given antibiotics. Then in about two days the flu went away and we were both happy. The next day he went to work and there was a terrible accident, he works as a construction worker and one of the people there had a 500 pound steel bar fall on his leg. So i got a call saying that my husband was laughing out of control at what had happened! I couldn't believe it! so i picked him up and he was laughing like there was always something funny happening. I brought him to the hospital and they asked what happened, and they said he had something called euphoria? or something like that. They said its like a good mood or it can be caused by good events in the persons life (like that flu being cured because he was VERY sick) but i wondered why he would be in this "good mood" after seeing such a bad accident happen. So i brought him home and this laughing thing went away within the day. I didn't think to much or it. now something els happened and i was really scared. His hand did this thing where his fingers got all distorted AGAIN i brought him to the hospital. MRI was done and nothing was wrong. They said it was most likely a muscle spasm. Again i brought him home. It went away within the day and i found this odd because he was having all these weird things happening then POOF they are gone quicker than they started. Now a new serious symptom showed up He went blind! and it switched off and on for a few hours, he would go blind then he could see but the colors weren't right. He saw blue as red white as black ect so again i brought him to the hospital and they did another MRI and eye test, they found NO REASON for the blindness. But they did something right for once, they kept him in the hospital over night. The next morning i came back and picked him up and he was moaning about pain in his head arms legs ect. he pretty much had pain everywhere. I brought him home and took his temp, it was 103.90 so i put cold wash cloths on his forehead but they didn't help.. and as the day went on the pain throughout his body got MUCH worse. Im pretty sure you could hear him screaming from down the road. So again... I brought him to the hospital they gave him morphine which helped but he was still in pain. I found that odd because morphine is one powerful pain killer. They kept him there over night and when i got back the next day they were asking him how bad the pain is and he said 10/10, it was so bad that it looked like a continual seizure! he was screaming in pain and by now the doctors were doing tons of tests but could not find anything. The next day when i got back they gave me a consent form and i asked what it was about. They wanted to put him in a chemically induced coma or the pain would kill him. they said he had something called hyperalgesia and that whatever he had was in the pain center of his brain. Well I didn't have a choice so i let them do it. And he never woke up from it. They did test after test autopsy you name it they did it. But no answers. I am still looking for an answer, I need to know what happened. Thats the only way I will feel at ease. I didn't give enough symptoms to go on so i have put a list of ALL his symptoms together. The symptoms in the paragraphs above were the most serious but he had others: VomittingDizzinessExtreme painLoss of sightEuphoriaHyperalgesiaHigh feverShortness of breath and any other symptoms i missed will be found in the above paragraphs. does anybody know what this is!? also incase this is of value, all the things he did the days before the flu: we took a vacation, we went swimming ate tacos, fish (cooked), we went fishing and then more swimming, bike riding then we checked into a motel for a few days. thank you in advance for any help at all
    TaylorDeelwithit 382 Replies Flag this Response
  • GivenUp ... I just read your story ... I am so sorry for your loss ... I will do some research ... see what we can come up with ... If you would rather, we can communicate via: dixied01@yahoo.com Hang in there ...
    dixied01 13 Replies Flag this Response
  • Hi, did your husband have a brain MRI, if so was anything found?
    Anonymous 42789 Replies Flag this Response
  • Wow, you are strong for having dealt with such an experience! You may want to read up on acute porphyria. It is not the type that causes changes to the color of the skin, but instead causes acute bouts of illness. A person can go thru life asymptomatic and then one day an episode is triggered. Some of the symptoms that might be present include: cortical blindnessfever in some patientspain in back, arms and legssevere abdominal painvomitingcan be fatal Good luck in your search!
    lsoroosh 51 Replies Flag this Response
  • thank you for the support everybody, but this was actually a double post of the first one i made (http://forums.wrongdiagnosis.com/showthread.php?t=26658) and all was resolved there. again thank you very much for the care and support :)
    GivenUp 135 Replies Flag this Response
  • So about two years ago my husband got the flu. He was sick in bed for TWO WEEKS i was very worried because all the flu's I have had went away in about a week. So i took him to the hospital where he was given antibiotics. Then in about two days the flu went away and we were both happy. The next day he went to work and there was a terrible accident, he works as a construction worker and one of the people there had a 500 pound steel bar fall on his leg. So i got a call saying that my husband was laughing out of control at what had happened! I couldn't believe it! so i picked him up and he was laughing like there was always something funny happening. I brought him to the hospital and they asked what happened, and they said he had something called euphoria? or something like that. They said its like a good mood or it can be caused by good events in the persons life (like that flu being cured because he was VERY sick) but i wondered why he would be in this "good mood" after seeing such a bad accident happen. So i brought him home and this laughing thing went away within the day. I didn't think to much or it. now something els happened and i was really scared. His hand did this thing where his fingers got all distorted AGAIN i brought him to the hospital. MRI was done and nothing was wrong. They said it was most likely a muscle spasm. Again i brought him home. It went away within the day and i found this odd because he was having all these weird things happening then POOF they are gone quicker than they started. Now a new serious symptom showed up He went blind! and it switched off and on for a few hours, he would go blind then he could see but the colors weren't right. He saw blue as red white as black ect so again i brought him to the hospital and they did another MRI and eye test, they found NO REASON for the blindness. But they did something right for once, they kept him in the hospital over night. The next morning i came back and picked him up and he was moaning about pain in his head arms legs ect. he pretty much had pain everywhere. I brought him home and took his temp, it was 103.90 so i put cold wash cloths on his forehead but they didn't help.. and as the day went on the pain throughout his body got MUCH worse. Im pretty sure you could hear him screaming from down the road. So again... I brought him to the hospital they gave him morphine which helped but he was still in pain. I found that odd because morphine is one powerful pain killer. They kept him there over night and when i got back the next day they were asking him how bad the pain is and he said 10/10, it was so bad that it looked like a continual seizure! he was screaming in pain and by now the doctors were doing tons of tests but could not find anything. The next day when i got back they gave me a consent form and i asked what it was about. They wanted to put him in a chemically induced coma or the pain would kill him. they said he had something called hyperalgesia and that whatever he had was in the pain center of his brain. Well I didn't have a choice so i let them do it. And he never woke up from it. They did test after test autopsy you name it they did it. But no answers. I am still looking for an answer, I need to know what happened. Thats the only way I will feel at ease. I didn't give enough symptoms to go on so i have put a list of ALL his symptoms together. The symptoms in the paragraphs above were the most serious but he had others: VomittingDizzinessExtreme painLoss of sightEuphoriaHyperalgesiaHigh feverShortness of breath and any other symptoms i missed will be found in the above paragraphs. does anybody know what this is!? also incase this is of value, all the things he did the days before the flu: we took a vacation, we went swimming ate tacos, fish (cooked), we went fishing and then more swimming, bike riding then we checked into a motel for a few days. thank you in advance for any help at allCould be NAEGLERIA MENINGITIS!!!!!!!
    Anonymous 42789 Replies
    • December 29, 2009
    • 10:44 AM
    • 0
    Flag this Response
  • Could be NAEGLERIA MENINGITIS!!!!!!!On reading the last paragraph from the original poster about swimming, I also tend towrds the possibility of Naegleria fowleri infectionThis amoeba lives in warm fresh water in the mud at the bottom. Swimming swirls up the mud and the amoeba enters the body through the nose.Did your husband report unusual smells during his illness.?I am very sorry for your loss.
    chrismia 159 Replies
    • December 30, 2009
    • 01:34 PM
    • 0
    Flag this Response
  • He most likely got a parasite while swimming. It may have gone to his brain.So about two years ago my husband got the flu. He was sick in bed for TWO WEEKS i was very worried because all the flu's I have had went away in about a week. So i took him to the hospital where he was given antibiotics. Then in about two days the flu went away and we were both happy. The next day he went to work and there was a terrible accident, he works as a construction worker and one of the people there had a 500 pound steel bar fall on his leg. So i got a call saying that my husband was laughing out of control at what had happened! I couldn't believe it! so i picked him up and he was laughing like there was always something funny happening. I brought him to the hospital and they asked what happened, and they said he had something called euphoria? or something like that. They said its like a good mood or it can be caused by good events in the persons life (like that flu being cured because he was VERY sick) but i wondered why he would be in this "good mood" after seeing such a bad accident happen. So i brought him home and this laughing thing went away within the day. I didn't think to much or it. now something els happened and i was really scared. His hand did this thing where his fingers got all distorted AGAIN i brought him to the hospital. MRI was done and nothing was wrong. They said it was most likely a muscle spasm. Again i brought him home. It went away within the day and i found this odd because he was having all these weird things happening then POOF they are gone quicker than they started. Now a new serious symptom showed up He went blind! and it switched off and on for a few hours, he would go blind then he could see but the colors weren't right. He saw blue as red white as black ect so again i brought him to the hospital and they did another MRI and eye test, they found NO REASON for the blindness. But they did something right for once, they kept him in the hospital over night. The next morning i came back and picked him up and he was moaning about pain in his head arms legs ect. he pretty much had pain everywhere. I brought him home and took his temp, it was 103.90 so i put cold wash cloths on his forehead but they didn't help.. and as the day went on the pain throughout his body got MUCH worse. Im pretty sure you could hear him screaming from down the road. So again... I brought him to the hospital they gave him morphine which helped but he was still in pain. I found that odd because morphine is one powerful pain killer. They kept him there over night and when i got back the next day they were asking him how bad the pain is and he said 10/10, it was so bad that it looked like a continual seizure! he was screaming in pain and by now the doctors were doing tons of tests but could not find anything. The next day when i got back they gave me a consent form and i asked what it was about. They wanted to put him in a chemically induced coma or the pain would kill him. they said he had something called hyperalgesia and that whatever he had was in the pain center of his brain. Well I didn't have a choice so i let them do it. And he never woke up from it. They did test after test autopsy you name it they did it. But no answers. I am still looking for an answer, I need to know what happened. Thats the only way I will feel at ease. I didn't give enough symptoms to go on so i have put a list of ALL his symptoms together. The symptoms in the paragraphs above were the most serious but he had others: VomittingDizzinessExtreme painLoss of sightEuphoriaHyperalgesiaHigh feverShortness of breath and any other symptoms i missed will be found in the above paragraphs. does anybody know what this is!? also incase this is of value, all the things he did the days before the flu: we took a vacation, we went swimming ate tacos, fish (cooked), we went fishing and then more swimming, bike riding then we checked into a motel for a few days. thank you in advance for any help at all
    Anonymous 42789 Replies
    • December 30, 2009
    • 04:13 PM
    • 0
    Flag this Response
  • hello Givenup :/ I am sorry not only for your loss but also for my obsession that will be reminding you of that terrible time :( but I think I may have figured it out for ya I think when you and your late-husband went swimming on your vacation he was infected with a microbe called "Nygleria" , which is uncommon parasite that lives in stagnant water mainly (but can certainly survive in fresh water) . All of your late-husbands symptoms could be explained by this microbial infection, including the Euphoria and the Hyperalgesia because this particular parasite feasts on brain cells in the pain center of the brain, so even drugs like morphine would not help the pain he was in. Because of the recent flu infection i'm thinking it could have possible weakened his immune system which allowed the parasite to run absolutely rampant in such a short amount of time, but Nygleria could also have cause all of those symptoms even if he was 100% healthy :/ I know this post of yours is far over 2 years old but i'm not sure if you were ever able to get full closure without getting a diagnosis that actually made sense, and I am personally disgusted that this type of diagnosis was seemingly not even considered by these physicians/practicioners that looked at your husband. My name is Michael (or Mike) and you can email me at aristopac@msn.com ANYTIME if you have ANY questions/concerns about what i've just said. If this diagnosis was already considered and thrown out (which I honestly believe would be impossible because these symptoms are the DEFINITION of a Nygleria infection :/ . Just so you aren't mislead, I am a 20 year old medical student studying Diagnostic Medicine, so I didn't just google up those symptoms and throw the first disease I saw at you =) Like I said I would be more than happppyyyyy too talk to you further about this if you would like, or you could research Nygleria yourself if you would like and you can compare what you read to the symptoms you saw your late-husband exhibit. Again I am so sorry for your loss and for the incompetence of the medical staff that was caring for your husband :[ but I hope that i've somehow helped you reach full closure (if you hadn't already) Thank you :), Michael MerlinoDiagnostician In-Training
    youngdiagnostician 1 Replies Flag this Response
  • All of your late-husbands symptoms could be explained by this microbial infection, including the Euphoria and the Hyperalgesia because this particular parasite feasts on brain cells in the pain center of the brain, so even drugs like morphine would not help the pain he was in.What?? Euphoria and Hyperalgesia have NOTHING to do with naegleria fowleri symptoms!Michael MerlinoDiagnostician In-Training"Diagnostician In-Training" You mean in actual Med School? I find that hard to believe. Do research your before making false claims. (You might find that helpful in diagnosis.)
    Anonymous 42789 Replies
    • January 5, 2011
    • 05:03 PM
    • 0
    Flag this Response
  • I agree w/ the juniors theory. Parasite spreads to the brain causing euphoria and pain that couldn't be helped by morphine because the brain was telling his whole body that it was in pain.
    Anonymous 42789 Replies
    • February 9, 2011
    • 04:31 PM
    • 0
    Flag this Response
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  • Sorry about your husband. I believe he died of primary amebic meningoencephelatis. The only way to test for that is doing a white matter brain biopsy.So about two years ago my husband got the flu. He was sick in bed for TWO WEEKS i was very worried because all the flu's I have had went away in about a week. So i took him to the hospital where he was given antibiotics. Then in about two days the flu went away and we were both happy. The next day he went to work and there was a terrible accident, he works as a construction worker and one of the people there had a 500 pound steel bar fall on his leg. So i got a call saying that my husband was laughing out of control at what had happened! I couldn't believe it! so i picked him up and he was laughing like there was always something funny happening. I brought him to the hospital and they asked what happened, and they said he had something called euphoria? or something like that. They said its like a good mood or it can be caused by good events in the persons life (like that flu being cured because he was VERY sick) but i wondered why he would be in this "good mood" after seeing such a bad accident happen. So i brought him home and this laughing thing went away within the day. I didn't think to much or it. now something els happened and i was really scared. His hand did this thing where his fingers got all distorted AGAIN i brought him to the hospital. MRI was done and nothing was wrong. They said it was most likely a muscle spasm. Again i brought him home. It went away within the day and i found this odd because he was having all these weird things happening then POOF they are gone quicker than they started. Now a new serious symptom showed up He went blind! and it switched off and on for a few hours, he would go blind then he could see but the colors weren't right. He saw blue as red white as black ect so again i brought him to the hospital and they did another MRI and eye test, they found NO REASON for the blindness. But they did something right for once, they kept him in the hospital over night. The next morning i came back and picked him up and he was moaning about pain in his head arms legs ect. he pretty much had pain everywhere. I brought him home and took his temp, it was 103.90 so i put cold wash cloths on his forehead but they didn't help.. and as the day went on the pain throughout his body got MUCH worse. Im pretty sure you could hear him screaming from down the road. So again... I brought him to the hospital they gave him morphine which helped but he was still in pain. I found that odd because morphine is one powerful pain killer. They kept him there over night and when i got back the next day they were asking him how bad the pain is and he said 10/10, it was so bad that it looked like a continual seizure! he was screaming in pain and by now the doctors were doing tons of tests but could not find anything. The next day when i got back they gave me a consent form and i asked what it was about. They wanted to put him in a chemically induced coma or the pain would kill him. they said he had something called hyperalgesia and that whatever he had was in the pain center of his brain. Well I didn't have a choice so i let them do it. And he never woke up from it. They did test after test autopsy you name it they did it. But no answers. I am still looking for an answer, I need to know what happened. Thats the only way I will feel at ease. I didn't give enough symptoms to go on so i have put a list of ALL his symptoms together. The symptoms in the paragraphs above were the most serious but he had others: VomittingDizzinessExtreme painLoss of sightEuphoriaHyperalgesiaHigh feverShortness of breath and any other symptoms i missed will be found in the above paragraphs. does anybody know what this is!? also incase this is of value, all the things he did the days before the flu: we took a vacation, we went swimming ate tacos, fish (cooked), we went fishing and then more swimming, bike riding then we checked into a motel for a few days. thank you in advance for any help at all
    Dr_Cluggy
    • December 29, 2013
    • 09:38 AM
    • 0
    Flag this Response
  • Sorry about your husband. I believe he died of primary amebic meningoencephelatis. The only way to test for that is doing a white matter brain biopsy.So about two years ago my husband got the flu. He was sick in bed for TWO WEEKS i was very worried because all the flu's I have had went away in about a week. So i took him to the hospital where he was given antibiotics. Then in about two days the flu went away and we were both happy. The next day he went to work and there was a terrible accident, he works as a construction worker and one of the people there had a 500 pound steel bar fall on his leg. So i got a call saying that my husband was laughing out of control at what had happened! I couldn't believe it! so i picked him up and he was laughing like there was always something funny happening. I brought him to the hospital and they asked what happened, and they said he had something called euphoria? or something like that. They said its like a good mood or it can be caused by good events in the persons life (like that flu being cured because he was VERY sick) but i wondered why he would be in this "good mood" after seeing such a bad accident happen. So i brought him home and this laughing thing went away within the day. I didn't think to much or it. now something els happened and i was really scared. His hand did this thing where his fingers got all distorted AGAIN i brought him to the hospital. MRI was done and nothing was wrong. They said it was most likely a muscle spasm. Again i brought him home. It went away within the day and i found this odd because he was having all these weird things happening then POOF they are gone quicker than they started. Now a new serious symptom showed up He went blind! and it switched off and on for a few hours, he would go blind then he could see but the colors weren't right. He saw blue as red white as black ect so again i brought him to the hospital and they did another MRI and eye test, they found NO REASON for the blindness. But they did something right for once, they kept him in the hospital over night. The next morning i came back and picked him up and he was moaning about pain in his head arms legs ect. he pretty much had pain everywhere. I brought him home and took his temp, it was 103.90 so i put cold wash cloths on his forehead but they didn't help.. and as the day went on the pain throughout his body got MUCH worse. Im pretty sure you could hear him screaming from down the road. So again... I brought him to the hospital they gave him morphine which helped but he was still in pain. I found that odd because morphine is one powerful pain killer. They kept him there over night and when i got back the next day they were asking him how bad the pain is and he said 10/10, it was so bad that it looked like a continual seizure! he was screaming in pain and by now the doctors were doing tons of tests but could not find anything. The next day when i got back they gave me a consent form and i asked what it was about. They wanted to put him in a chemically induced coma or the pain would kill him. they said he had something called hyperalgesia and that whatever he had was in the pain center of his brain. Well I didn't have a choice so i let them do it. And he never woke up from it. They did test after test autopsy you name it they did it. But no answers. I am still looking for an answer, I need to know what happened. Thats the only way I will feel at ease. I didn't give enough symptoms to go on so i have put a list of ALL his symptoms together. The symptoms in the paragraphs above were the most serious but he had others: VomittingDizzinessExtreme painLoss of sightEuphoriaHyperalgesiaHigh feverShortness of breath and any other symptoms i missed will be found in the above paragraphs. does anybody know what this is!? also incase this is of value, all the things he did the days before the flu: we took a vacation, we went swimming ate tacos, fish (cooked), we went fishing and then more swimming, bike riding then we checked into a motel for a few days. thank you in advance for any help at all
    Dr_Cluggy
    • December 29, 2013
    • 09:49 AM
    • 0
    Flag this Response
  • Parasitic ameba naelgeria. Parasite that can come from bird feces and could be picked up in a pool or if your vacation was to somewhere with unclean water it could have been picked up there. The parasite would have attacked the pain center of the brain so no painkillers would have helped. Sorry for your loss.
    Anonymous 1 Replies Flag this Response
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