Discussions By Condition: I cannot get a diagnosis.

unresponsive attack, cti, eeg, extended eeg, blood test, sleep study done

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: crackerJac
  • December 31, 2007
  • 09:20 PM

My wife has been experiencing a tinging sensation in her face. Then she had an unresponsive incident that caused me to tke her to the emergency room. :( She had been having the tingling in her face and a twiching eye lid that was bothering her for about three weeks. Then one night I took her out to eat on the way home she stopped moving as if she were asleep. I asked her if she was ok but no response. I then asked her if she could smile but no response. Then I asked her to squeeze my fingers as we were holding hands. However there was no response except for a very low uhg. So I figured I would give her a little time and continued to drive home. When I arrived at the house I said her name and, "we're home do you want to go in side?" Finally she said in an extremly low voice, "I can try". However she made no attempt to even try to get out of the pickup. So then I made the decision to take her to emergency. While we were at the hospital the ran a battery of tests including, a ct scan, chest x-ray, blood test, and urine test. The only thing that they found was a mild UTI and said that this was the problem. :mad: They put her on an antibiotic and sent her on her way telling her to make sure to do a follow uo with her neurologist which she had already made an appointment because of the tingleing and eye twiching. After seeing the neurologist he odered up tests that included, a ultrasound of the carorid artere, sleep study, eeg and an extended eeg which lasted for a day and a half. So far the only thing that has been found was a mild form of hypopnia. However the doctor said the oxigen deficiet is not severe enough to warrant having a c-pac machine.:confused: She is continuing to have probalems. However she is not going unresponsive just really dissy and weak at random times during the day. It may be because she has been put on topamax 100mg twice daily, provigil 200mg, clonazepam .5 mg (when the tingleing starts) which is about twice daily, relpax 40mg only when having a migrane (her migranes have almost gone away since being bumped up to 100mg twice daily on the topamax), and a dietary supplement called migravent. However the eeg tests have came back normal. All this and the doctors are still befuddled and so are we. She had an mri of the brain 6 months ago but is having a problem getting the insurance company to authorize another one so soon. Back when the mri was done the doctor was testing for mutiple serosis. However that test came back normal at that time also. Has anyone else experienced the same issues with beating up against a wall tring to get a diagnosis and the same symtoms? If so have you gotten a diagnosis... help...!!!:eek:

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9 Replies:

  • As it been very long that she has had theses symptoms ? This may not help much but I had similiar symptoms, Not the part of behing irresponbive but the twitching and tingling in the face, I awoke with the left side of my face paralised. Which is Bell Spalsie, Which is caused by a virus that attacks the shielding around the nerves. Perhaps if the symptoms have only started recently she may have a similar Virus attacking the nerves in other places ? That is all I can think of for now :( Keep posted !Good luck
    Locke_gb7 22 Replies
    • January 1, 2008
    • 00:52 PM
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  • This may sound crazy, but try tums with calcium when the tingling starts...Also make sure that she monitors her electrolytes with blood tests. Make sure she gets to a good internist that can rule out diabetes, kidney failure, vascular disease, and multiple system atrophy (MSA). Sounds to me like she had silent seizures which my mother had from damages caused by chemo (Carbo-Gemzar) which caused ratical Mag delpletion. Could also be symptoms from West Nile, Tic or spider bites, or food allergy The meds are strong and can be causing problems if they aren't needed. Find out why she is taking each one and educate yourself. Mag/Potassium/Calcium Supps and stay on the Docs because if you don't.
    Anonymous 42789 Replies
    • January 1, 2008
    • 05:30 PM
    • 0
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  • Sorry about her troubles. Since they couldn't find anything, have you checked your furnace and other appliances for carbon monoxide or gas leaks? Including you car exhaust...perhaps it was a virus..what about dental work??? Mercury or an infected tooth? Did she see an opthalmologist?
    Monsterlove 2921 Replies
    • January 1, 2008
    • 08:26 PM
    • 0
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  • I don't know if this applies to you, but I suffered from an undiganosed neurological disease for 8 years before finally being diagnosed with hashimoto's Encephalopathy. The symptoms can vary from person to person, but your wife's symptoms may be consistent with this little known, rare complication of Hashimoto's Autoimmune Thyroiditis. It took me 8 neurologists to get my answer- my thyroid hormones had always been okay, so I had no dea that my gland was under autoimmune attack until my 8th neurologist checked my thyroid antibodies, which were sky high. It's treated with steroids, after which my MS-like symptoms and fatigue went away.
    Anonymous 42789 Replies
    • January 2, 2008
    • 08:16 AM
    • 0
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  • Thankyou for your responce. I'm sorry that it took me so long to respond as I drive a tractor trailer and am not able to get onto the net except when I get home and that is around every two weeks. My wife has just started having these symtoms within the past two to three months. Can you teel me if there is a test that you had done to diagnose you with the bells palsey virys? Thanks As it been very long that she has had theses symptoms ? This may not help much but I had similiar symptoms, Not the part of behing irresponbive but the twitching and tingling in the face, I awoke with the left side of my face paralised. Which is Bell Spalsie, Which is caused by a virus that attacks the shielding around the nerves. Perhaps if the symptoms have only started recently she may have a similar Virus attacking the nerves in other places ? That is all I can think of for now :( Keep posted ! Good luck
    crackerJac 5 Replies
    • January 13, 2008
    • 02:30 PM
    • 0
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  • the tests I have had then were The followingCAT scanMRI brain scanBlood workThat is all it took for them to determin it was a virus. In your case it may be a tad more compliated since it is not as obvious. And of course there was one last test and well this one is rather unpleasant which is a spinal tap. Since it seems to affect the nervous system, a spinal tap may help determin is it it caused by a virus or bacteria as well.That is all the testing I had done.Hope it gets better keep us posted.
    Locke_gb7 22 Replies
    • January 13, 2008
    • 02:48 PM
    • 0
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  • Thankyou for your response As it been very long that she has had theses symptoms ? This may not help much but I had similiar symptoms, Not the part of behing irresponbive but the twitching and tingling in the face, I awoke with the left side of my face paralised. Which is Bell Spalsie, Which is caused by a virus that attacks the shielding around the nerves. Perhaps if the symptoms have only started recently she may have a similar Virus attacking the nerves in other places ? That is all I can think of for now :( Keep posted ! Good luck I don't know if this applies to you, but I suffered from an undiganosed neurological disease for 8 years before finally being diagnosed with hashimoto's Encephalopathy. The symptoms can vary from person to person, but your wife's symptoms may be consistent with this little known, rare complication of Hashimoto's Autoimmune Thyroiditis. It took me 8 neurologists to get my answer- my thyroid hormones had always been okay, so I had no dea that my gland was under autoimmune attack until my 8th neurologist checked my thyroid antibodies, which were sky high. It's treated with steroids, after which my MS-like symptoms and fatigue went away.
    crackerJac 5 Replies
    • January 13, 2008
    • 02:54 PM
    • 0
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  • Thankyou for your interest Sorry about her troubles. Since they couldn't find anything, have you checked your furnace and other appliances for carbon monoxide or gas leaks? Including you car exhaust...perhaps it was a virus..what about dental work??? Mercury or an infected tooth? Did she see an opthalmologist?
    crackerJac 5 Replies
    • January 13, 2008
    • 02:55 PM
    • 0
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  • Is your wife still having these symptoms now?
    Anonymous 42789 Replies
    • January 13, 2008
    • 05:41 PM
    • 0
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