Discussions By Condition: I cannot get a diagnosis.

Unrelenting symptoms without a definitive diagnosis x 2 years...any ideas?

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: mommyof4plus1
  • May 16, 2012
  • 00:11 PM

I have had the most bizarre symptoms for 2 years in July. I am a mom and now the custodian of my newborn grand daughter. I do not
have the time to be sick. In May 2009, I had a very horrid delivery with a primary post partum hemorrhage which required a second surgery to stop the bleeding ( the first was an emergent C section). At that time I was give 4 units of RBC's along with too much fluid which caused Transfusion Associated Circulatory Overload. I was placed on a lot of Lasix which took a good few months to eliminate the excess fluid. At the time of delivery, I was over 300 pounds although my pregnancy started at 197.

In 2010, I decided that the excess weight was becoming an issue. I started speed walking with my baby every evening and I took a 7 day
colon cleanse but had forgotten to take the follow up probiotics. In July, my nightmare began...

It started with a vague nausea, loss of appetite, numbness in fingers and toes, horrible fatigue, change in bowel pattern, hair loss, loss of
concentration/memory and a pain which was tolerable but annoying, under my right rib cage which radiated to my flank area. I went to the doctor and in a nutshell they ruled out gallbladder issues, my GI doctor referred me to a surgeon who thought Fitz-Hugh Curtis Syndrome.
After laparoscopic surgery and a colonoscopy, I was informed that it must be abdominal wall pain and referred to pelvic/abdominal rehab.
By this point my weight is down to 155. During physical therapy, I begin having urinary symptoms which mimic a bladder infection yet there
is no infection. I see a urologist who decides that I have a urethral stricture. He widens that opening. None of the initial symptoms had
abated so I return to my primary care who sends me for a thyroid ultrasound. Nodules were found on my thyroid. So I am off to the
Endocrinologist who tells me that all my labs are normal and so we will wait and see. At this point all the symptoms have become severe.
I seek a second opinion from another Endocrinologist who finds that my Vitamin D and testosterone levels are low. I am placed on 6 weeks
of a high dose of Vitamin D, told testosterone in women is not significant, my thyroid nodules are stable and advised to see Rheumatology, Neurology, Cardiology, Rheumatology and my OB/GYN. With those visits, I am diagnosed with low Vitamin B, vasculitis, ventricular tachycardia, Raynauds Syndrome and constipation. I am on B12 injections, blood pressure medicine, miralax, ADHD medicine, anxiety medicine and now an
antidepressant. To date, I still have all the initial symptoms which are severe, constant bruising, unrelenting headaches, frequent
sores in my right nasal opening, decreased visual acuity with eye pain, weird eczema spots on my right hand but no diagnosis and no relief. I don't have time to feel like this. I can't take pain medicine since I have to be as alert as possible with 2 babies to care for. Why do all my
tests come back normal when I clearly feel anything but! Any ideas??

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