Discussions By Condition: I cannot get a diagnosis.

Unrelenting bursa pain at many sites

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Coventry
  • October 6, 2011
  • 04:58 PM

It has been discouraging to see posts like the one that follows which are basically medical failures. I have suffered with tendon attachment-point pain for 25 years. The worst of the pain has been in the DIP joints of my fingers of both hands, but it's also flared in my elbows, wrists, shoulders, neck, and knees. It all started when I was 28 after a severe respiratory infection. Since the initial onset, I've seen rheumatologists, neurologists, and orthopedists. I've had surgery on both shoulders for acute debilitating pain and each surgeon had to "clean out" badly inflamed bursa tissue. The good news is that these procedures were very successful. The bad news is that I have at least 15 other areas with moderate to severe pain. The pain is worst in the mornings or evenings and is burning or stinging in character. The heat of a shower helps, but only for a short time. All of the tests I've had for arthritis or any other rheumatologic, auto-immune, or neurological disease came back negative save for a positive HLA-B27 antigen test. However x-rays and studies for any of the related inflammatory diseases associated with positive HLA-B27 came back negative. I have been on every NSAID there is, and none of them made more than a 10%-20% improvement. I have also tried steroids (oral cortisone and prednisone) to no effect. I even tried methotrexate with absolutely zero effect. Only opioid pain killers blunt the pain somewhat, and only for an hour or two. I use them only occasionally, so as to maintain their effectiveness.The most infuriating aspect of this condition was a virtually overnight TOTAL and complete remission two years ago, that occurred shortly after being treated for a severe upper respiratory infection. My Dr. prescribed an injection of antibiotics and Kenalog, a long acting steroid. After two nights of severe night-sweats, I awoke totally pain and symptom-free for the first time in two decades. The tissue of my hands, which had always felt kind of puffy and swollen felt "normal." my whole body felt like a long simmering fire had been put out. Sadly, this remission lasted only about four weeks, and the pain was back in full force two months later. Even though I've had a repeat of those exact same injections, I've never experienced that remission since. That remission has become both a source of hope, and depression. It tells me that there IS a solution, maybe even a cure or treatment for this unrelenting pain, but current medical science seems unable to piece it together. Any ideas? Fellow sufferers?Is there anyone out there with this strange affliction? Better still, any doctors think you know what this is?

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