Discussions By Condition: I cannot get a diagnosis.

unknown neuromuscular disorder

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Anonymous
  • April 20, 2007
  • 09:35 AM

I am 39 and had lived a healthy normal life prior to this progressive disorder of unknown origin. Since 2002 I have been struggling off and on with some type of disease that has progressed to this stage. I have severe muscle weakness in all extremities, especially hands (weak grip) and ankles. Everyday I experience waves of nausea, disequilibrium, shortness of breath and brain fog with any form of quick-paced physical activities. Then too, with any attempt to walk a distance of 20ft or more (sometimes less), I feel pain and weakness in both legs and muscle stiffness as if joints are locking up. Leg strength and arm strength will shake, become limp and give out when overexerted. I lean on walls, furniture and whatever is closest to me to help me support my weight when I walk. I never had an uneven gait, now I walk with a limp, waddling from side to side, throwing my weight to compensate for the inability to lift my legs normally to walk. With strenuous physical activity I experience same symptoms listed above along with severe muscle tremors (jerking body movements), affecting lung muscles and all muscles throughout the body. During the episode, it looks like I am having a seizure and the uncontrollable jerking can really hurt after a while. When spasms subside, my body is totally drained, and my speech is usually slurred, plus weak eye muscles( difficult to hold eyelids open) I tested negative for lupus, MS, Myathenis Gravis and rheumatoid arthritis. Can someone provide me with their opinion of what they think I may have?

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2 Replies:

  • go to www.ahummingbirdsguide.com every sx you listed is there and then some. I experience diarrhea, flushing, stroke-like episodes muscle and joint pain and weakness ect...print the page and take it to your dr...good luck...mommy cat
    mommy cat 1,654 Replies Flag this Response
  • ALS/Lou-Gherig's disease? I'm not sure how it produces itself in the beginning stages...I know it's degenerative, but I don't know how fast it progresses.
    deadlysauce 67 Replies Flag this Response
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