Need Help - I am 27 years old. Startinga at 12, the left side of my tongue starting having sparadic palpitate, twitch, abnormal muscle movement around 20 times a day. Not realize it is a neurological problem we went to ENT, allergists, generalist etc. finally at 15 when someone actual saw it happen we went to a neurologist. MRI and blood tests led to no conlcusion and was told to watch it. At 21 it moved from sparadic to constant and has started to atrophy on that side and deviate to the left when stuck out. Went to another neurologist with the new symptom. MRI, EEG, and blood test show no root cause. At 25 the problem starting happen in my cheek, nose, lips , chin - facial area. Few months later legs, arms, stomach, feet. Was MRI'd again, spinal tap and various test show abnormal electrical firings in the nerves but no cause.
conclusion - idiopathic cranial nerve palsy
Last doctor said to try and find someone outside of our area who might be able to help diagnose.
Any ideas and or suggestions on finding a specialist?