Discussions By Condition: I cannot get a diagnosis.

Unknown cause cranial nerve palsy

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Anonymous
  • June 14, 2009
  • 00:39 AM

Need Help - I am 27 years old. Startinga at 12, the left side of my tongue starting having sparadic palpitate, twitch, abnormal muscle movement around 20 times a day. Not realize it is a neurological problem we went to ENT, allergists, generalist etc. finally at 15 when someone actual saw it happen we went to a neurologist. MRI and blood tests led to no conlcusion and was told to watch it. At 21 it moved from sparadic to constant and has started to atrophy on that side and deviate to the left when stuck out. Went to another neurologist with the new symptom. MRI, EEG, and blood test show no root cause. At 25 the problem starting happen in my cheek, nose, lips , chin - facial area. Few months later legs, arms, stomach, feet. Was MRI'd again, spinal tap and various test show abnormal electrical firings in the nerves but no cause.

conclusion - idiopathic cranial nerve palsy

Last doctor said to try and find someone outside of our area who might be able to help diagnose.

Any ideas and or suggestions on finding a specialist?

Reply Flag this Discussion

1 Replies:

  • This may be piere rhomberg syndrome or also called hemifacial atrophy. See a plastic surgeon.
    Anonymous 42789 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.