Discussions By Condition: I cannot get a diagnosis.

Unknown Anemia

Posted In: I cannot get a diagnosis. 13 Replies
  • Posted By: Dark0Malkavian
  • February 2, 2010
  • 00:53 AM

I've been medically discharged with anemia from the military late last year after I basically stopped breathing twice during training. I've been put on iron supplements first one a day for 3 days, then 2 a day for about a week, then eventually 3 and currently I'm at 8 pills a day, not including my multi-vitamins, calcium supplements, birth control and nasal steroids (Flonance).

Anyways, for the most part, when I was diagnosed with anemia, my HG levels were around 7-8, back in late September. By late November my HG levels have gotten to 11.0 but since then, my levels have literally just stopped. Refusing to go up but threatening to go down. I've been basically put on bedrest since early January and I've been arranged an appointment with a blood specialist outside of the state for next week but I've been getting extremely desperate for answers.

All my symptoms have been getting worse and I've been even getting more to add onto the list. I have severe chest pains, headaches, calf cramps, stomach aches, loss of appetite, extreme thirst, bitter nails, poor sense of focus/concentration, difficulty breathing, weird appetite when I am hungry, abnormal weight gain and loss (5-10lbs/week) I've been getting lightheaded more easily, I cant stand for more than 15 minutes at a time before I start to feel a sense of panic and my heart beats erratically, I've had low blood pressure, restless leg syndrome, my fingers begin to twitch on their own, Im always either abnormally hot or cold, I've experienced double vision once and I continuously keep falling asleep throughout the day.

In the past, I've had 43% lead poisoning when I was younger. It wasn't due to eating paint chips or anything but it was because of a contaminated batch of bottled water back in the 90's, I believe many people would have recalled this if you lived in the New Jersey, New York and Pennsylvania area, where multiple brands of water were called back for shipment.

Anyways, I don't really have a family history of anemia. Only like a few people in my family have had it and all of them were minor cases of anemia, which was easily cured with iron supplements over the course of a few months. Other than that, the only other diseases that run in my family are Type 2 Diabetes and Breast Cancer. So, Im at a lost as to what is going on with me at the moment but Im highly concerned at the moment because I'm at a high risk of having a heart attack or my heart just failing before I reach the age of 30. I already stopped breathing twice and with my symptoms, I'm gradually getting to that point again where I have a really hard time breathing and I start to panic and either begin vomiting or choking severely.

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  • I've been medically discharged with anemia from the military late last year after I basically stopped breathing twice during training. I've been put on iron supplements first one a day for 3 days, then 2 a day for about a week, then eventually 3 and currently I'm at 8 pills a day, not including my multi-vitamins, calcium supplements, birth control and nasal steroids (Flonance).Anyways, for the most part, when I was diagnosed with anemia, my HG levels were around 7-8, back in late September. By late November my HG levels have gotten to 11.0 but since then, my levels have literally just stopped. Refusing to go up but threatening to go down. I've been basically put on bedrest since early January and I've been arranged an appointment with a blood specialist outside of the state for next week but I've been getting extremely desperate for answers.All my symptoms have been getting worse and I've been even getting more to add onto the list. I have severe chest pains, headaches, calf cramps, stomach aches, loss of appetite, extreme thirst, bitter nails, poor sense of focus/concentration, difficulty breathing, weird appetite when I am hungry, abnormal weight gain and loss (5-10lbs/week) I've been getting lightheaded more easily, I cant stand for more than 15 minutes at a time before I start to feel a sense of panic and my heart beats erratically, I've had low blood pressure, restless leg syndrome, my fingers begin to twitch on their own, Im always either abnormally hot or cold, I've experienced double vision once and I continuously keep falling asleep throughout the day. In the past, I've had 43% lead poisoning when I was younger. It wasn't due to eating paint chips or anything but it was because of a contaminated batch of bottled water back in the 90's, I believe many people would have recalled this if you lived in the New Jersey, New York and Pennsylvania area, where multiple brands of water were called back for shipment. Anyways, I don't really have a family history of anemia. Only like a few people in my family have had it and all of them were minor cases of anemia, which was easily cured with iron supplements over the course of a few months. Other than that, the only other diseases that run in my family are Type 2 Diabetes and Breast Cancer. So, Im at a lost as to what is going on with me at the moment but Im highly concerned at the moment because I'm at a high risk of having a heart attack or my heart just failing before I reach the age of 30. I already stopped breathing twice and with my symptoms, I'm gradually getting to that point again where I have a really hard time breathing and I start to panic and either begin vomiting or choking severely. please let me know the reason for anemia and its treatment//
    Anonymous 42789 Replies Flag this Response
  • TSH,Antinuclear Antibodies,Anti-transglutaminase Antibodies,Bone Marrow Biopsy might help finding the diagnosis
    Anonymous 42789 Replies Flag this Response
  • please let me know the reason for anemia and its treatment//My doctor says that it's just an iron deficiency but it's not explaining a lot of my physical illnesses. So, he started asking me abound my history and now he suggests that I go see a therapist because he believes that I'm suffering from either a Panic Disorder or Generalized Anxiety Disorder with a mild form of depression. But that's not explaining why I'm taking a total of 1,480 mg of iron a day, along with a series of multi-vitamins and a heavy diet of fruit juices and red meats but yet still my iron levels continue to go up and down. The most my HB levels have gone up is 11.3 at the max and the lowest it's ever gotten (Back in Mid-Feb.) was 7.1. So, I don't know but I'm going to see the therapist and after wards, once that's out of the way, I'm going to go to Virginia for another opinion about what's going on.
    Dark0Malkavian 5 Replies Flag this Response
  • did you test for ACTH or cortisol levels? ... may be Addison's disease ....
    PavelCZ 5 Replies Flag this Response
  • Do you have any pigmentation in the body?
    PavelCZ 5 Replies Flag this Response
  • did you test for ACTH or cortisol levels? ... may be Addison's disease ....I was tested for that back in December and everything came back negative.
    Dark0Malkavian 5 Replies Flag this Response
  • Do you have any pigmentation in the body?I don't have any pigmentation but lately, I'm not sure if it's just stress but i haven't been healing normally. Like with all my needle marks, none of them have yet to clear up and I'm left with a series of dark spots running from my hands going up my arms. Plus, I tend to bleed a little bit longer than normal. Like every time I go in to get my blood drawn, I'll be given a bandage but when I go to remove it HOURS later, I'll still continue to bleed. Not like a still ****k of blood but enough for it to leave a trail of blood running down my arm.
    Dark0Malkavian 5 Replies Flag this Response
  • maybe chlorine poisoning? I will be thinking...
    Anonymous 42789 Replies Flag this Response
  • Do you cough?May be chronic chlorine poisoning ?.....
    Mikefm 1 Replies Flag this Response
  • Do you cough?May be chronic chlorine poisoning ?.....I cough when I get that choking feeling but it's nothing serious.
    Dark0Malkavian 5 Replies Flag this Response
  • I think you have chronic lead poisoning ... Lead settles in the bones and kidneys ... Or is it Porphyria caused by lead poisoning ...
    Anonymous 42789 Replies Flag this Response
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  • I've been medically discharged with anemia from the military late last year after I basically stopped breathing twice during training. I've been put on iron supplements first one a day for 3 days, then 2 a day for about a week, then eventually 3 and currently I'm at 8 pills a day, not including my multi-vitamins, calcium supplements, birth control and nasal steroids (Flonance).Anyways, for the most part, when I was diagnosed with anemia, my HG levels were around 7-8, back in late September. By late November my HG levels have gotten to 11.0 but since then, my levels have literally just stopped. Refusing to go up but threatening to go down. I've been basically put on bedrest since early January and I've been arranged an appointment with a blood specialist outside of the state for next week but I've been getting extremely desperate for answers.All my symptoms have been getting worse and I've been even getting more to add onto the list. I have severe chest pains, headaches, calf cramps, stomach aches, loss of appetite, extreme thirst, bitter nails, poor sense of focus/concentration, difficulty breathing, weird appetite when I am hungry, abnormal weight gain and loss (5-10lbs/week) I've been getting lightheaded more easily, I cant stand for more than 15 minutes at a time before I start to feel a sense of panic and my heart beats erratically, I've had low blood pressure, restless leg syndrome, my fingers begin to twitch on their own, Im always either abnormally hot or cold, I've experienced double vision once and I continuously keep falling asleep throughout the day. In the past, I've had 43% lead poisoning when I was younger. It wasn't due to eating paint chips or anything but it was because of a contaminated batch of bottled water back in the 90's, I believe many people would have recalled this if you lived in the New Jersey, New York and Pennsylvania area, where multiple brands of water were called back for shipment. Anyways, I don't really have a family history of anemia. Only like a few people in my family have had it and all of them were minor cases of anemia, which was easily cured with iron supplements over the course of a few months. Other than that, the only other diseases that run in my family are Type 2 Diabetes and Breast Cancer. So, Im at a lost as to what is going on with me at the moment but Im highly concerned at the moment because I'm at a high risk of having a heart attack or my heart just failing before I reach the age of 30. I already stopped breathing twice and with my symptoms, I'm gradually getting to that point again where I have a really hard time breathing and I start to panic and either begin vomiting or choking severely. Were you sent outside the country recently? You may have picked up some parasite or infection. A parasite would explain weight loss and not absorbing nutrients. Did you have B12 checked?
    Med Student 64 Replies Flag this Response
  • Were you sent outside the country recently? You may have picked up some parasite or infection. A parasite would explain weight loss and not absorbing nutrients. Did you have B12 checked?I havent been outside of the country or anything but I did find out some news just recently.My problems weren't just from anemia. I do have Toxin Induced Anemia but it would also seem that I possibly have Multiple Sclerosis. Many of my problems were too much for just anemia alone and recently I was having difficulty moving and I got a constant burning sensation on my skin in various spots. So, my doctor recommended me to see a Neurologist and sure enough I'm having nerve problems and its effecting a lot of my bodily functions. Plus, it's starting to have a relapse effect, so I'm just waiting to hear the final verdict of Multiple Sclerosis or some other type of nerve damage.So far I've done a few EKGs (many came back abnormal), 4 MRIs (its been a normal and abnormal variation, so no 100% MS ruling), Ive done a few reflex tests and that's about it. So, the only things my doctors have to work on are my complaints, the nerve damage and some of my poor reflexes. At the moment, it would seem that I have MS (60/40 ruling) but my doctors just want to have 1-2 more appointments before the final diagnosis and some sort of treatment begins.Note: For anyone who's having the same issues, please make sure that your financial status is good and that you have some source of income coming in because you never know if you'll be diagnosed with MS and most likely you will not be able to work for long. Plus, the actual testing and treatment is extremely expensive!With me, I've filed for a medical/personal grant of $10,000 (I only managed to get $7,500 but I've awaiting my VA Office response for monthly compensation) ahead of time, just in case and so far I'm glad I did it because it looks like I'm going to need it. Since, if I get diagnosed with MS, I'm filing for Social Security Income and that can easily take from 12-14 months to go through.Also, plan on living with someone reliable!! If your case is as severe as mine, you're going to need help from time to time, so work on a reliable and backup battle buddy!Oh! Biggest advance!! If you feel STRANGE at any point of time, get to an ER immediately before the feeling subsides!! I screwed up the first time and didn't come until 12 hours later and by the time I got seen, the feeling was gone and only the after effects remained. So, overall it delayed my neurology recommendation and a positive reading for anything that could have been wrong.
    Dark0Malkavian 5 Replies Flag this Response
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