Discussions By Condition: I cannot get a diagnosis.

Unexplaned tremors any help would be wonderful

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: jackrorabbit
  • January 29, 2007
  • 05:48 PM

I have been to UVA to John's Hopkins to NIH(who dismissed the tremors as anxiety after less than 2 hours). No one has any clue as to what is causing it or why. I have multiple doctors including ER doctors who have seen the tremors and say there is no way it is anxiety because I lack the panic and worry that goes with anxiety. I have tremor attacks 2+ times a day lasting from a couple of minutes to over an hour in length; they almost always begin in the right shoulder and then move to the right leg and sometimes both legs depending on the severity of the attack. My wife has seen me looking grey at times during attacks. I have had nausea, hot/cold spells, cold with sweating, speech troubles during a tremor attack, a 2 year long headache(which has been attributed to the fibro), during an attack I have difficulty keeping balance or walking. I have a chronic recurrent sinus infections(even after 4 surgeries in one year), an appendectomy during the surgeries. I have been tested for just about everything that is normal to look at including Huntington's disease without any answers. My B-12 and vitamin D levels are very low and I am on suppliments for both. My wife and I are truly befuddled and frustrated with the whole situation. Any help would be nice.
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8 Replies:

  • Lyme disease and its co infections, affects everything. Its dx is also cliniacal, bood tests give lots of false negs. It can be dormant for yrs, not everyone knows they have been bitten or exposed. Hope you feel better soon.~~ Jersey Girl
    Anonymous 42789 Replies
    • February 3, 2007
    • 01:41 AM
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  • Thanks, I have had the full work up for lyme's and I am rarely outdoors. Not a hiker ect. But Ill ask when Im at UVA again.
    jackrorabbit 113 Replies
    • February 5, 2007
    • 05:56 PM
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  • Hmmm Let me ask:*Taking any antidepressants or antihistamines?Research on the drug interactions of your current prescription.* Drinking enough water ( 8+ glasses durign the day)?* How much sugar do you eat everyday? Count juice, salad dressing, ketchup, sauces, honey, processed food, etc.* How good is your intestinal traffic? Endotoxemia can play a role on those tremors, specially if toxins in your colon get reabsorbed into the blood stream.*How much processed food do you eat? Food additive are excitotoxins like MSG.*Are you aware of any food allergy, or chemical sensitivity? Those run silently and debilitate the organism.*Are you currently taking a high quality nutritional supplement. Specially after surgery, the body is depleted from nutrients- those can easily be deficiencies. You can't relay on foods to nourish you as the food supply is compromised.*How much of the food you eat is raw?--------Think about this- I have been doing some pretty good research and reading.I learned that NIH is nothing but a business. Sorry- they ignore good treatments if they don't involve drugs that have a patent and = $$$$$$.Stick around.Best/Eatafruit78
    Anonymous 42789 Replies
    • February 5, 2007
    • 06:21 PM
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  • One more thing:Problems of B12 deficiency are a sign of absorption problems. You probably have some yeast in your digestive track or H. Pylori in your tummy.B12 deficiency is a vicious cycle that won't let you produce food enzymes so you won't be able to absorb it anyhow. You need to drink water and take a food enzyme and probiotic with your vitamin, or it is not going to absorb.Take grapefruit seed extract to kill your Candida or whatever is populating your GI track.http://www.mdheal.org/leakygut.htmRead the treatment on this link- the listed supplements can help you a lot.*Take flaxseed oil everyday.
    Anonymous 42789 Replies
    • February 5, 2007
    • 06:28 PM
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  • I have tremors too. I had three sinus surgerys also. Did you take steriods? Maybe there is a connection. I am having alot of unexsplained things going wrong with me ,but it started with tremors. I had alot of test done . no anwser was found. Its been a year and a half. Tomorrow i am going to have a cat scan again. let you know what happens. Do you have anything else going wrong, like weakness , numbing anywhere, how is your eye sight. I hope you find a anwser soon. " angel "
    Anonymous 42789 Replies
    • February 7, 2007
    • 11:47 PM
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  • Its me Angel, I have fibro also. Maybe there is a connection. Just felt I needed to add that.
    Anonymous 42789 Replies
    • February 7, 2007
    • 11:58 PM
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  • Thanks Angel. Tremors started long after the headaches did and after the surgeries. Fibro pain started about a week later. My chiropractor and I are chasing down the theroy that it might be connected. I am back to two neurologists next month to start down the path again.Eatafruit I have been chasing down the absorbsion problem as well, just had a test for celiac's and it was negative. I will ask my doc about a bonding agent since he does both drugs and holistic stuff. Thanks for the response.
    jackrorabbit 113 Replies
    • February 8, 2007
    • 02:48 PM
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  • I recommend anyone with tremors to look at the drugs they are or have been taking. It is a side effect of certain meds, as well as a discontinuation symptom of certain meds, which can sometimes last a month or so after discontinuing a drug. Please do this to rule this out: go to www.drugs.com and type in all the meds you were taking during /after your surgery. Doctors usually overlook this. Ruling that out, I suggest you ask your doc for a stool test for candida - it will tell you if your candida is within a "normal" range. I personally don't think there is a definitive test for it, as everyone has different ranges of "normal". Please go to www.wholeapproach.com and print out their questionnaire, which is very helpful in determining if you have candida overload - I suspect you do. One of the best treatments is called Threelac. Also, to help with your B12 and D levels, the very best super supplement I have found (and I've been searching for years) is called INTRAMAX and is only sold to healthcare practitioners. Since you have a holistic doc, he may have heard of it. If not, please let him know about this amazing supplement. Go to www.druckerlabs.com for info. This supplement takes the place of ALL other supplements you may be taking - it just is fantastic! One last note on the chronic sinus infections. If you have nasal congestion or drainage, I recommend getting a neti pot and learn how to use it every day, like brushing your teeth. This is one of the best treatments for keeping your nasal passages clean and prevent infection and build up. Hope this helps.DOM
    acuann 3080 Replies
    • February 8, 2007
    • 03:20 PM
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