Discussions By Condition: I cannot get a diagnosis.

Unexplained weight loss - toddler

Posted In: I cannot get a diagnosis. 15 Replies
  • Posted By: Gill62
  • February 1, 2007
  • 00:36 AM

My son is 22 months old. Over the last 9 months he has lost weight and is now the weight and height he was at 11 months of age. He eats very very well and drinks alot but still does not grow. He has a large frame so looks emaciated in his body. He has been tested for cystic fibrosis and blood tested for celiac - both negative. With his large apetite he should be on a diet as opposed to the extreme he is, that he just doesn't seem to be growing. Developmentally he is brilliant. Someone mentioned a condition I may have had in pregnancy that could cause this? Has this happened to anyone else?

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15 Replies:

  • There is an explanation. There has to be. Some considerations: What are his stools like ?How often does he go ?Candida and parasites should be considered, along with very improperdigestion. And good Naturopathic docs, Doctors of Oriental Medicine or WholisticChiropractors in your area. Looking at the problem in a different way mayhelp find the cause. Ask around among friends, relatives and coworkers to see if they useanyone like I listed above, and if yes, see which one is recommended the most.
    Anonymous 42789 Replies
    • February 1, 2007
    • 01:12 AM
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  • I agree with the candida and parasite possibility. Have his stools tested with a complete workup for candida, e coli, c. diff., and parasites. What foods is he eating? Is he eating lots of vegies and fruits and such? Any refined carbs or sugars? Does he eat dairy? Does he get frequent colds? I would recommend he take a children's chewable acidopholus supplement. He may still have a food intolerance and not have celiac. This could also explain the failure to thrive. Corn, soy, dairy, eggs can all be culprits. I also agree with Ralph that an alternative approach may be your best bet. Find a kinesiologist who can test him for allergies and parasites. Best of luck.DOM
    acuann 3080 Replies
    • February 1, 2007
    • 03:39 AM
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  • Has he been tested for diabetes. A friend's toddler had this symptom and it was finally diagnosed.
    Anonymous 42789 Replies
    • February 1, 2007
    • 04:51 PM
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  • Bood tests for celiac are not a good indicator for this diesease.....more tests are needed. the us has to come up to where the europeans are with this reguard......
    Anonymous 42789 Replies
    • February 12, 2007
    • 10:20 PM
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  • I am in the same boat my 16 mo old is the same wt and ht as when she was 8 mo old. Eats great negative for celiac also. Have you had any success yet?
    Anonymous 42789 Replies
    • February 28, 2007
    • 09:54 PM
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  • I assume you have checked for milk allergy. But have you checked for soy allergy? We had this problem with my older son, and I had taken away all milk products for a week, and then put all milk products back, and nothing changed either way. (He was having loose stools.)But after too many doctors, we went to UCLA, pediatric gastrointerology, and they looked inside his colon, and found that it was all bumpy: a sign of allergy. They suggested a soy allergy.We got off all soy (we, he was nursing, so I had to do these things as well) and ta da! he got much better. There are so many allergies around, and any of them can cause a person to not be able to use the food they eat. So, maybe an allergist might be able to help. And if not going to an allergist, try an elimination diet (easy to find instructions online) and see if anything helps.I do realize this is a random idea. Wish I had a better one. Good luck. Having a child getting thinner is so scary, especially when all the doctors aren't being able to give you any definitive answers.Shula
    Anonymous 42789 Replies Flag this Response
  • One of the leading causes of failier to thrive in toddlers is Giardia lamblia.Others on this forum have suggested parasites and Giardia is a parasite.It might be a good idea top get his stools tested and for Giardia they need to take at least three specimens on three consecutive days as this organism does not shed its cysts everyday.
    chrismia 159 Replies Flag this Response
  • Giardia is often passed when kids are at day care, through diaper changes. And though most people who have giardia have diarrhea, not all do (about 5% don't) so it is worth checking.The cure for giardia is easy and hard. About 10 days on Flagyl (antibiotic) will most often do it. But Flagyl is a NASTY drug, and definitely NOT something you want to give anybody, especially a small child, without having proof that it is needed. Just adding in my 2c.Shula
    Anonymous 42789 Replies Flag this Response
  • Please do not listen to anything Shula or Acuann tell you. My sister just passed away because Shula and Acuann told her that her doctor was wrong and she did not have a serious condition. Acuann even told her to get acupuncture to get healed. These people are going to be investigated for practicing medicine without a license. Shula and Acuann are specifically wanted in connection with my sisters homocide. Thats right homocide. If she would have listened to her doctor instead of these internet quacks she would still be here today. Rest assured I will do everything in my power to put these two behind bars and shut this website down for good.
    Anonymous 42789 Replies Flag this Response
  • I also have a 18 month old son who was hospitalised as he was growing well on the 50th centile then suddenly dropped to below the 9th around 10 months ago and has cont to lose weight, he now weighs only 21lb!he has had all the tests which are negative and noone seems to know what is wrong with him.has anyone had any luck with a diagnosis?
    Anonymous 42789 Replies Flag this Response
  • My 18 month old just recently fell off the growth chart at 20 lbs 32 inches. Loooking for answers that might help. He has been riding the 5th to 10th percentile since he was about 6 months old.
    Anonymous 42789 Replies
    • November 12, 2009
    • 05:30 PM
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  • This can be associated to something called FAILURE TO THRIVE and is defined as weight that falls or remains under the 3rd percentile that decreases crossing two percentiles over time or that is less than 80 percent of the median height for the weight of the child. To get this definition the patient should be charted by the pediatrician and compared with the normal development for children of the same age. There are many causes for weight loss/ no weight gain in children. But most important is to be sure the weight is really under the normal weight for his height and age. Some causes can be: environmental, gastrointestinal, congenital, infections, metabolic, neurologic, renal, hematologic (blood problems). Its very important first TO BE SURE the patient is not gaining weight/growing as supposed to and if this is true by definition find a cause. To find a cause a complete history and physical examination should be performed by a pediatrician.Maybe by finding the causes of failure to thrive you can get closer to what is happening to your child.Hope this helps!
    Anonymous 42789 Replies
    • November 14, 2009
    • 07:46 PM
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  • For celiac disease u need to have a colonoscopy, flexible sigmoidoscopy and upper gI scope to get a proper diagnosis. We learned this the hard way with my 5 year old.Bood tests for celiac are not a good indicator for this diesease.....more tests are needed. the us has to come up to where the europeans are with this reguard......
    Anonymous 42789 Replies Flag this Response
  • Hi, my boy is having the same problem he is 22months and losing weight at a rapid pace, he has also been tested for coeliac by the doctors after a naturapath diagnosed it when he was 10 months but the blood tests come back negitive. they told me it could possibly be an intolerance to caecan (? spelling) which is a protein in milk and recommendend i use goat milk which still contains traces of it. But in doing this has not helped he has to be very light and is now losing even more wight. I am worried it is now at the point that you can see his ribs but yet the doctors still wont do anything!!!!!
    Anonymous 42789 Replies Flag this Response
  • It's not enough to just want to start eating healthier, you need to know what to eat as well! That is why we have compiled an in-depth list of the healthy foods that will keep you from hunger and help you lose fat as well. So take some time and learn about what Fat Burning Foods you should be eating.
    Anonymous 42789 Replies Flag this Response
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