Discussions By Condition: I cannot get a diagnosis.

Unexplained seizures and muscle spasms PLEASE HELP!

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: Anonymous
  • June 9, 2008
  • 11:19 PM

I am having unexplainable seizures and muscle spasms. It started about three week ago when i had what i thought was my first seizure. It started with not being able to control my left arm, and then stomping my feet and eventually my full body would spasm. I was fulling concious the whole time. This happened two more times, with the third time lasting on and off for about an hour and a half. I was dignosed with epilespy about 7 years ago, so i went to an epiletic center for tests. I had a few episodes in the hospital, but after three days the EEG came back normal. The doctors told me i was having non-epiletic seizures, but i am not a stressful person and honestly do not think this has anything to do with stress. A few days after i got back from the hospital i was home by myself and i started to feel my stomach and shoulders spasm. It lasted about a half hour and then i feel asleep. That happened again that night. The next day it started to happen again, starting in my stomach then moving to my arms and my legs stomping again. It got progressive worse for almost two hours and i was taken to the ER. They did blood work and a CAT scan, which both came back normal. Caffeine seems to make it worse. With the episodes after the hospital i felt nausea and like i was going to pass out for a few minutes before it happened. I feel confused sometimes and have to really concentrate on conversations and what I'm doing. I don't know if this has anything to do with it, but I'm always thirsty and have to drink a extreme amount of water everyday. I'm frustrated more than words. SOMEONE PLEASE HELP!

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3 Replies:

  • I am having unexplainable seizures and muscle spasms. It started about three week ago when i had what i thought was my first seizure. It started with not being able to control my left arm, and then stomping my feet and eventually my full body would spasm. I was fulling concious the whole time. This happened two more times, with the third time lasting on and off for about an hour and a half. I was dignosed with epilespy about 7 years ago, so i went to an epiletic center for tests. I had a few episodes in the hospital, but after three days the EEG came back normal. The doctors told me i was having non-epiletic seizures, but i am not a stressful person and honestly do not think this has anything to do with stress. A few days after i got back from the hospital i was home by myself and i started to feel my stomach and shoulders spasm. It lasted about a half hour and then i feel asleep. That happened again that night. The next day it started to happen again, starting in my stomach then moving to my arms and my legs stomping again. It got progressive worse for almost two hours and i was taken to the ER. They did blood work and a CAT scan, which both came back normal. Caffeine seems to make it worse. With the episodes after the hospital i felt nausea and like i was going to pass out for a few minutes before it happened. I feel confused sometimes and have to really concentrate on conversations and what I'm doing. I don't know if this has anything to do with it, but I'm always thirsty and have to drink a extreme amount of water everyday. I'm frustrated more than words. SOMEONE PLEASE HELP! What meds are you currently taking and were you taking antibiotics before your first episode? ARe you on birth control? DOM
    acuann 3080 Replies Flag this Response
  • Scary though here but blood clots can cause seizures can't they? I hope for your sake that isn't the answer.
    chromegirl666 101 Replies Flag this Response
  • Hi,I was wondering if you ever found an answer to why you were developing your seizures. My son has been having seizures and all of the exact symptoms you mentioned....He also has some history with a brain tumor removed on his pituitary and developed panhypopituitarism (despite being able to retain a normal healthy looking pituitary) which means his body was not able to hold urine in/unable to regulate his own sodium and thirsty all the time (called diabetes insipidus or water diabetes)put on a medication called desmopressin, he had to be put on oral steroids and thyroid meds. His neuro-oncologist said it is unclear why he developed symptoms of panhypopituitarism because his pituitary looks totally normal. About 2 months ago (year after his surgery, healthy before this point)I found him having a grand mal seizure...his sodium was low (Drs didn't think it was low enough to cause seizure) and his sugar was borderline low. The Drs weren't really sure why this happened but just guessed water intoxication and low sodium....His MRI of his brain looked good....They thought his body may have been producing vasopressin because now he was able to regulate his own sodium but he was still thirsty all the time (not typical of diabetes insipidus. His desmopressin dose was cut to 1/5 of what he was previously taking. His sodium still remains low or borderline low and so does his sugar...I have been seeing him with a lot of odd behaviors...the spasming I see quite often especially when he goes to sleep and confusion and he has had some small seizures...I question if he has something totally different then the panhypopituitarism beacuse he is able to regulate his own sodium....If I do not give him the desmopressin he drinks all day long very thirsty asyou said in your post...I question if the sugar is playing a role in this I saw something called Addisons disease that appeared similar to his and your symptoms....When I read your post I said to myself wow every single symptom written is just like my sons....Have you gotten any answers.....I hope you are feeling better and look forward to hearing back from you.
    Anonymous 42789 Replies
    • September 5, 2009
    • 00:44 AM
    • 0
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