Discussions By Condition: I cannot get a diagnosis.

Unexplained hunger and faitgue

Posted In: I cannot get a diagnosis. 24 Replies
  • Posted By: cyang408
  • June 23, 2007
  • 02:50 AM

For the last 2 years, every day, I feel like I haven’t eaten for days and is trying to complete a marathon. I eat full meals about 10 times a day and if I don't I start to have hypoglycemia symptoms. About 2 years ago, it all began with an episode of extreme hunger. That same day I checked into the ER and was told I had a heart attack. At the time I was 29 and fairly healthy- did mile runs etc. A full workup was done, including an angiogram with no indication of heart blockage. Heart disease was dismissed. Since then, the extreme hunger continued and extreme fatigue kicked in about 3 months afterwards- Fatigue to the point where I can’t walk more than 300 steps. I’ll walk and after 300 steps, I’ll get a out of energy sensation (dehydration feeling) and if I keep walking the extreme fatigue kicks in., making the fatigue worst. I just had some kidney function test done, and my U MicroALB is elevated to 569 (normal is under 30), with traces of blood and protein. Kidney function is still good. Medically, other than the initial elevated heart enzymes, and elevated U MicroALB, everything else is normal- I’ve had just about every test under the sun done, from thyroid, diabetes, hormones, to every test for heart functions….I’ve been to about a dozen doctors and specialist, all just shaking their heads… I’m at a lost. Please help.

Reply Flag this Discussion

24 Replies:

  • Have you been checked for diabetes? Hunger like you describe is often casued by it. It can also cause kidney disease and alot of other stuff as well.Anyway.. here are the most common symptoms...Frequent urination Excessive thirst Extreme hunger Unusual weight loss Excessive fatigue Irritability Blurry vision Good luck
    Anonymous 42789 Replies Flag this Response
  • cyang408, Obviously you have been tested for diabetes, as you said. But have you been tested for Huntingdon's disease? Have your docs ruled this out? DOM
    acuann 3080 Replies Flag this Response
  • Check out Chronic Fatigue Syndrome as all of your symptoms fit. Look into NAET or Bioset therapy as you will find help there. Also, vitamins, minerals and herbal supplements are far better at relieving symptoms than traditional medicines. Of course, only under the care of a physician. do not take herbs and supplements without docs care for there can be harsh interactions MC
    Anonymous 42789 Replies Flag this Response
  • You mean Huntington's disease Accuan? That makes no sense, she has almost NO symptoms of this!
    Anonymous 42789 Replies Flag this Response
  • Thanks for all those that responded. I'm actually a 32 year old male. I'd like to add that I had a significant weight gain after this 1st extreme hunger incident. I gained almost 25lbs in a little over 1 month- Keep in mind I'm eating 10 full meals a day. I was a healthy 150 lbs, and went up to 175 lbs. After that 25 lbs, I've somewhat leveled off- I'm about 170 right now. However, I'm constantly hungry. BTW - Eating has never been an issue for me. I've always been fairly healthy, fairly active, tennis, lunch walks, mile runs etc...up until this point. I'm just baffled. For a while my doctors even had me on Prozac, thinking I was depressed, but after a few months, they gave up on that idea. I'm always searching, hoping someone can make some sense out of the symptoms - a documented heart attack, kidney damage, hypoglycemia, extreme fatigue (unable to walk 300 steps).The docs also scratched the Chronic fatigue syndrone, since I actually am showing signs of organ damage - They just can't figure out what the underlying problem is.Anyone with even the slightest idea, please let me know and I'll research.Thanks
    cyang408 6 Replies Flag this Response
  • I have had some similar hunger issues. Could gain 8 lbs in one week. Did not eat 10 full meals, however.I am searching, too. I wonder, hunger is trying to tell us our bodies need something, right? Cravings SHOULD tell us what exactly we need.So, I think this is a deficiency or damange to the hypothalmus, or epithalamus.Are you deficient in something? B12? Do you have some weird deficiency disease?Just a GUT feeling......seriously.
    Anonymous 42789 Replies Flag this Response
  • Chronic Fatigue Syndrome is exploding in this country and worldwide. I have recently been diagnosed myself after years of being sick. Research info on it. There is a lot of information in this forum regarding CFS and it's link with vaccines, like Autism is.Many people with CFS either have constant hunger and gain weight or just the opposite. Read around this forum, you will find many cases of both.Find a local doc who does NAET or Bioset therapy as this is the treatment that works. I was a skeptic myself but I went. I am off to third treatment this am and I can't wait. It works. My symptoms are much less severe since my first treatment. Most people only require 3 if you do the Bioset. It is not what we are accustom to as a country but it is the way people will be treated in the future because it works. The world of modern medicine is changing/evolving right before our eyes. How encouraging!Good Luck, I wish you well....mommy cat
    mommy cat 1654 Replies Flag this Response
  • First of all, I am sorry about my post on Huntington's - I first did a search and found this as a possible cause of extreme hunger, but then could not get back to the original site, and after looking this up you are right - it doesn't make sense - sorry:( ! MommyCat, Great to hear you are doing so well with the BIOSET, have heard great things about this, as it is an offshoot of NAET (Nambudripad Allergy Elimination Technique). Good for you! Cyang,Here is another suggestion for you that I think may make more sense: have they tested you for ulcers and H. Pylori? H. Pylori can cause a variety of symptoms, including extreme hunger, and ulcers can cause this as well. There is clearly something causing you to have malabsorption issues which is making you so hungry, in my opinion. A NAET or BioSet practitioner may be able to pinpoint what is causing your hunger - it is a different approach but very helpful for many people. Are you currently taking any medications? Do you have reflux symptoms? How are your stools? Any diarrhea or constipation? Best wishesDOM
    acuann 3080 Replies Flag this Response
  • Thanks DOM,Early on, I was tested for H. Pylori and found to have a higher than average level- was on antibiotics for many months until the numbers came down, but that made no difference. No ulcers.the endo touched on malabsorbtion, but what killed that idea is that I'm putting on weight and lots of it...25 lbs in a month...no meds. my stool frequency has about tripled...it seems things just go in and then go out and I'm hungry again. If I do no physical activity (couch potato), the stool frequency slows a bit and I don't have to eat as much. As soon as I do anything, (like 300 steps), the hunger kicks in and the stool frequency goes up and the fatigue hits.Stools are always normal except if I stop eating the 10 meals...say 3 meals a day- after about 3 days it seems everything gets flushed from my system (my stomach is empty), I'll go and the stool will be oily and almost diarrhea like. Every hour without food for me is like 3 hour without food when I was healthy.Thanks,
    cyang408 6 Replies Flag this Response
  • I do not have any medical knowledge whatsoever, but after reading your symptoms the one thing that came to mind was the possibility of a parasite....I know that they are really hard to diagnose.... Here's some information I came across, let me know the outcome.Said a prayer for you!AmyHere is an exerpt from the following website:http://www.kitchendoctor.com/healthconditions/parasites/parasites.html"Once a condition has moved from acute to chronic, there may be alternating periods of constipation and diarrhea, abdominal distention and bloating, intestinal cramping followed by burning sensations and the sudden urge to eliminate. Generally, there is malabsorption of nutrients, especially fatty foods. Irritable bowel syndrome, blood sugar fluctuations, sudden food cravings, and extreme emaciation or overweight are all possible symptoms—but, as stated, not necessarily proof of parasitic infection.""Many parasites affect the nervous system and give rise to sleep disorders, such as insomnia. In children, hyperactivity is common, but adults may have symptoms ranging from depression to anxiety. Some parasites affect the brain and memory. In short, the part of the body affected depends on where the parasites have invaded: blood, intestines, liver, pancreas, kidneys, brain, etc. To make infection even more difficult to determine, add to this scenario the fact that many, if not most, parasites migrate so the symptoms could change depending on where the parasites are at any given time."Info from another site:http://www.appliedozone.com/parasites.html"They (parasites) can make Swiss cheese out of your organs. Worm infections can cause physical trauma by perforating (burrowing) the intestines, the circulatory system, the lungs, the liver or the whole bodies.They can erode, damage or block certain organs by lumping together in balls or tumors. They can be mistaken for cancer tumors, and travel into the brain, heart and lungs.They rob us of our vital vitamin and mineral nutrients, and amino acids needed for digestion. Some become anemic (anemia) and are drowsy after meals.They give off certain metabolic waste products (toxic waste) that poison our bodies. This particular condition is called verminous intoxification. Most have trouble disposing of the toxins that are re-absorbed through the intestines. Your bodies have to work twice as hard to remove these toxic waste products.Depresses the immune system, which leads to further degeneration, fatigue and illness.They can destroy cells faster than cells can be regenerated.""Humans with worm infections may feel bloated, tired or hungry, allergies, asthma, gas, digestive disorders, unclear thinking or feel toxic. Damage and symptoms will vary on the type of parasite infection.Some people may not have any symptoms from infection. About 25 percent may only have some aches and pains that they can ignore. The quality of life and health may be compromised in another 55 percent. Those who are disabled from parasites are about 5 percent. In the USA, about 85 percent is infected with parasites."
    Anonymous 42789 Replies Flag this Response
  • I have suffered from always being hungry since my teens, one thing I can recommend, eat frequent, small meals, not fullmeals. You will get hungry anyways, why stuff yourself? Eat high fiber and high protein to make you feel full longer. Also, Prilosec sometimes help, I loved this stuff when it first came out. Also avoid caffeine and greasy foods, same as you would for an ulcer. Allergies sound like a possible cause of your sympgtoms. Check out Crohns disease? Can't remember exactly, but it is a wheat allergy. It is simple to diagnose and treat. It too can cause sores on you intestines.
    Cheletwin2 3 Replies
    • August 23, 2007
    • 02:18 PM
    • 0
    Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • Celiac Disease? http://circ.ahajournals.org/cgi/content/full/105/22/2611
    aquila 1263 Replies
    • August 24, 2007
    • 04:28 PM
    • 0
    Flag this Response
  • Have you been tested for Lupus? My mom had your symptoms and she was diagnosised last year.
    Anonymous 42789 Replies
    • August 25, 2007
    • 00:17 AM
    • 0
    Flag this Response
  • For the last 2 years, every day, I feel like I haven’t eaten for days and is trying to complete a marathon. I eat full meals about 10 times a day and if I don't I start to have hypoglycemia symptoms. About 2 years ago, it all began with an episode of extreme hunger. That same day I checked into the ER and was told I had a heart attack. At the time I was 29 and fairly healthy- did mile runs etc. A full workup was done, including an angiogram with no indication of heart blockage. Heart disease was dismissed. Since then, the extreme hunger continued and extreme fatigue kicked in about 3 months afterwards- Fatigue to the point where I can’t walk more than 300 steps. I’ll walk and after 300 steps, I’ll get a out of energy sensation (dehydration feeling) and if I keep walking the extreme fatigue kicks in., making the fatigue worst. I just had some kidney function test done, and my U MicroALB is elevated to 569 (normal is under 30), with traces of blood and protein. Kidney function is still good. Medically, other than the initial elevated heart enzymes, and elevated U MicroALB, everything else is normal- I’ve had just about every test under the sun done, from thyroid, diabetes, hormones, to every test for heart functions….I’ve been to about a dozen doctors and specialist, all just shaking their heads… I’m at a lost. Please help.This may sem a little wierd.. but have you considered a tapeworm? Especially if you eat anything raw/rare.. or eat sushi.... "Human infection occurs when a person consumes raw fish contaminated with the tapeworm larvae. Adult tapeworms then develop in the human intestinal tract...Infected individuals may report diarrhea, fatigue, weakness, or sensations of hunger..." http://www.healthatoz.com/healthatoz/Atoz/common/standard/transform.jsp?requestURI=/healthatoz/Atoz/ency/tapeworm_diseases.jspJust a thought.... good luck.
    Macophile 127 Replies
    • August 27, 2007
    • 02:43 PM
    • 0
    Flag this Response
  • Thanks for all the replies. I have been tested for Lupus early on with a ANA test and it was negetive. Macophile, tapeworm was something we considered, but I've put on so much weight, the doctors didn't think that was it. What I missed to mention was that my kidneys are spilling protein and also trace microsopic blood is also present in urine. To me, this overwhelming fatigue, hunger, portein and urine in the blood seems to be all from a single underlying cause, but what.I'm about out of ideas, seen most of every specialist out there. I was planning on going to see a Naturopathic (alternative docs)- anyone have any comments on that. The cost is quite a bit, although not any more than all the other specialist I've seen out of my own network.
    cyang408 6 Replies
    • August 27, 2007
    • 04:36 PM
    • 0
    Flag this Response
  • Follow-up to my mysterious illness:it's been almost a year and I've developed some very disturbing symptoms.3 months ago, out of the blue, I start urinating clear and drinking gallons of water- diagnosis with Central Diabetes insipidus. MRI of head shows no damage or lesions to hypothalamus or pituitary gland. No further explanation.I usually have to eat every 2 hours and a whole lot. 1 month ago, I ate just a few bites and became extremely full. Since then I haven't been able to eat more than the size of a cheeseburger at every sitting and the fullness lasts for 4-6 hrs. I've since lost more than 15 lbs and losing more every day. I'm about skin and bones now. This all resulted in a diagnosis of gastroparesis. No explanation why...GastroparesisFatigue has progressed to the point where I'm bed bound and on a wheelchair just to get around the house and getting worse daily... I'm pushed around by my 7 year old.Anyone with any ideas...please feel free to post. I'm just out of ideas. I don't even know where or who to go see next. I'm afraid if I don't find the cause, I won't be around too much longer.
    cyang408 6 Replies Flag this Response
  • Thanks DOM,Early on, I was tested for H. Pylori and found to have a higher than average level- was on antibiotics for many months until the numbers came down, but that made no difference. No ulcers.the endo touched on malabsorbtion, but what killed that idea is that I'm putting on weight and lots of it...25 lbs in a month...no meds. my stool frequency has about tripled...it seems things just go in and then go out and I'm hungry again. If I do no physical activity (couch potato), the stool frequency slows a bit and I don't have to eat as much. As soon as I do anything, (like 300 steps), the hunger kicks in and the stool frequency goes up and the fatigue hits.Stools are always normal except if I stop eating the 10 meals...say 3 meals a day- after about 3 days it seems everything gets flushed from my system (my stomach is empty), I'll go and the stool will be oily and almost diarrhea like. Every hour without food for me is like 3 hour without food when I was healthy.Thanks,I am the same I have been experiencing constant appetite (even when my stomach feels full) I feel like I have cravings for certain foods but can't pin point what I am craving. I have abdominal epilepsy so I wondered if that was causing it. I also have fibromylgia so thought maybe that was causing it. I haven't a clue what is causing it. I too have exhaustion all the time. Maybe the vitamin dificiency suggestion makes sense, like you I am at a loss for why this is happening. I have no idea, I am just as frustrated as you. I have not gained weight because of it. If I overeat it triggers my IBS, but I, like you have to eat when hunger strikes or the end result is very unpleasant also it sometimes causes me to be sick to my stomach. I eat more than the average bear because of my IBS (irritable bowel) prevents me from absorbing nutrients properly. This leaves me underweight. I could be force fed for a month and would probably loose weight due to the overburden to my digestive. I find my cravings change throughout the day, from proteins in the morning, to sweets mid day to wheat at night. Just snacked on half a box of cereal right after supper today. Even though I ate a whole steak, two salads and a chicken stir fry. My suggestion. Keep a journal, see if there is a pattern to your hunger, certain foods you crave or seem to be drawn too, certain times you eat and what you eat. Maybe, that is the information the doctors need to figure out what is causing this. I would suggest you ask to see a specialist. Hypoglycemia can cause odd symptoms. My blood sugar fluctates on occasion and my blood pressure is low more often then not but they have chalked it up to my FMS.
    Anonymous 42789 Replies
    • October 14, 2010
    • 04:38 AM
    • 0
    Flag this Response
  • Hello,I don`t know, if you are still here ... but anyway - I suffer from the same symptoms. Extreme hunger and fatigue.My hunger is a result of permanent to low blood glucose.My doctors especially searched for:- Insulinoma (maligne and benigne)- Nesidioblastosis- other neuroendocrine Tumors. (NET)They are often to small to see on Pet / CT - but specific blood tests can give an information, they are there.Special Knowledge is to find on Charité / Berlin.Katra
    Anonymous 42789 Replies Flag this Response
  • Hello I am a 37 year old male that has has been SO unbelievably hungry for over two years now! No matter how many times a day I eat healthy it seems like my brain is not getting anything. But that is just the tip of the ice berg of the symptoms, I have an extremely diminished 'feeling' from the neck up mainly my face, also a very stiff neck, stiff face, feeling completely "out of it" 24 hours a day, no concentration , loss of short term memory, disorientation, problems with my speech, It is very slurred and "broken" sounding. ANd ANY type of physical activity makes these symptoms a lot worse! The only thing that I have been diagnosed with is hypertension, and have had tests done for thyroid, hormones, testosterone, cbc, and a CT scan. All of those have come back "normal" A little about my history....I did abuse Xanax, extacy, cocaine, pain killers for about 14 years. But I have been over 2 years clean from those, now when I did withdraw from the Xanax I was in complete **** for almost 4 months, I was taking over 20mg a day for years near the end and pretty much stopped "cold turkey" Now I am only a social drinker. I am so depressed over this I have no idea what to do. I do have an appointment with a cardiologist coming up in a week, They are thinking some kind of heart damage along with diminished blood/oxygen to the brain....Or maybe I had a stroke when I was going though the withdrawels two years ago??? Any ideas would be greatly appreciated.....Just want my life back...That's all i ask for to be "normal" again....Thank you in advance....Greg
    SrqGuy37 1 Replies
    • October 29, 2013
    • 09:01 PM
    • 0
    Flag this Response
  • This is the OP.

    I've had to deal with this hunger and fatigue for almost 10 years, and not a day goes by that I don't dream about just walking the isles of walmart, or doing a late night shopping trip with the wife and kids.

    Anyways, 5 months ago, after waiting 3 1/2 years to get into Standford's chronic fatigue syndrome clinic, I finally get a call from them for an appt.

    Make a long story short, I see them once, explained all the issues, and they then ordered a bunch of blood test.

    I was put on Valcyte.

    For the first 2 months I didn't notice anything; but after the 3rd month, my sleep became really good; and by that I mean good refreshing straight 6-8hrs of sleep. By the end of the 3rd month I started feeling good, and my hunger subsided a bit.

    By the 5th month, I'm now able to do my walking up and down the Walmart isles, and late night shopping.

    Out of characters...Continued in next post:
    cyang408 6 Replies
    • January 1, 2015
    • 03:32 AM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.