Discussions By Condition: I cannot get a diagnosis.

Unexplained head & facial numbness, confusion

Posted In: I cannot get a diagnosis. 14 Replies
  • Posted By: Anonymous
  • March 8, 2007
  • 00:24 PM

Had a virus in December. Never fully recovered in my book.
At onset I had Hip & lower back pain on my right side that got better after the 2nd antibiotic. During this time I battled, a massive resporatory & sinus infection. On and off stomac pain and loose bowels are still a problem. Changes in the tissue of my right cheek showed up 2 mtns ago. Working on biopsy, but consult thinks it could be infection rather than cancerous. After getting over the resporatory infection I noticed dissyness that never left and continued to get worse over time now include numbness of my scalp and face. Severe sensitivy to touch. presure feeling behind eyes, periodic swallowing irritibility as well as periods of weakness if I rub my neck or back of my head. Sometimes, the weakness just comes.. lasts a few minutes and is over. Most recently, the numbness is moving towards pain.
I noticed a sensitive tooth and a dentist thought I need a root canal.
I experienced some relief of symptoms with an antibiotic for the tooth, but afterwards the symptoms are soon increasing again. Going on 4th month. Very weak, increasing confusion and disorientation. I think it is an infection, Dr's think I'm nuts. Infection of what? could my hip and head/neck issues be related? help. starting to notice breathin problems again.

Reply Flag this Discussion

14 Replies:

  • I hate to say this, but it sounds like lyme disease. Please google the symptoms of lyme, it is a CNS infection. Have you been bitten by a tick that you know of? Most with lyme dont remember a tick. A great resource for help in figuring out if it could be lyme is www.lymenet.orgMy son has lyme, it took us months of running from doc to doc, his symptoms were much like yours, he also has vision problems, sensitivity to light, along with the numbness and confusion. Please check it out, the sooner the better.
    Anonymous 42,789 Replies Flag this Response
  • You mention that you feel worse if you touch the back of your head or your neck. A friend of mine was recently exposed to carbon monoxide, and afterward, she had the same trouble. When she saw a naturopath, she was told that it wasn't the carbon monoxide poisoning that was causing it, it was her body's reaction to it - her lymphatic system was working overtime because her liver had been damaged. When she touched her neck and especially the back of her head, it "drained" the tissue, and released toxins back into her bloodstream. After a few weeks on a dandelion tea (and then a milkthistle supplement, when she felt a bit better), she was back on form. Taking antibiotics is important when you have a bacterial infection, but taking a lot in rapid succession can negatively affect systems in your body. Sinus infection antibiotic treatments are especially bad, since they tend to involve harsher drugs for longer times. I've had more than my fair share too, and I know that I always take a few weeks to recover from the antibiotic after the infection has gone. You might try taking a good detoxing supplement, like dandelion, as well as a good multivitamin. You'd be surprised at what can make you feel like crap without showing up on blood tests. Sometime natural remedies are the best answer.
    Anonymous 42,789 Replies Flag this Response
  • Hi,My husband had a virus in December and then had some symptoms sounding like yours and was eventually diagnosed with something rare called Horners Syndrome. He has pain in the back of head, back of neck, behind eye and the eye. This is all on one side of head/face though. At times it makes his mind feel fuzzy & dizzy, his vision will change. shortness of breath feeling, his face is numb and tender on the one side. He has some weird things going on in his body but being diagnosed with Horners syndrom still doesn't tell us what is causing it. Many things can cause Horners syndrome and he's had CT & MRI scans and lab work and we still don't have a solution. Horners is so rare but still thought it worth mentioning it to you. Hope you can find an answer for your problem soon.
    Wife of Pete 3 Replies Flag this Response
  • i have suffered similar symptoms before. one time it actually turned out to be two molars severely in need of root canal. the second time was extenuating symptoms from TOS (thoracic outlet syndrome) and for this I needed to visit a neurologist. hopefully the simple solution will be your fix.
    Anonymous 42,789 Replies Flag this Response
  • You need to stop seeing those western doctors and see an acupuncturist. Acupuncture is the only cure for this problem.AcuannDOM
    Anonymous 42,789 Replies Flag this Response
  • Please do not listen to anything Shula or Acuann tell you. My sister just passed away because Shula and Acuann told her that her doctor was wrong and she did not have a serious condition. Acuann even told her to get acupuncture to get healed. These people are going to be investigated for practicing medicine without a license. Shula and Acuann are specifically wanted in connection with my sisters homocide. Thats right homocide. If she would have listened to her doctor instead of these internet quacks she would still be here today. Rest assured I will do everything in my power to put these two behind bars and shut this website down for good.
    Anonymous 42,789 Replies Flag this Response
  • Hi, I strongly agree with the poster abt Lyme & TB Infections. Check out the website for lymenet and see a doc for a western blot test.
    Anonymous 42,789 Replies Flag this Response
  • You need to stop seeing those western doctors and see an acupuncturist. Acupuncture is the only cure for this problem.AcuannDOM Please stop posting as me and saying this - GROW UP.DOM
    acuann 3,080 Replies Flag this Response
  • Doctors have ruled out lyme. Eyes are OK, all blood and MRI's are fine.on neorotin and finding some relief. Worsens when eating salty foods.. so I am not doing that anymore. Notice I swell very quickly. Drinking OJ to balance w/ potassium works to correct this. Clueless & getting worse.
    Anonymous 42,789 Replies Flag this Response
  • ok hello.....you sound like my mum...she had alot of what you are going through...turns out she has polymyalgia rhuematica and giant cell artiritisplease pleae go see your gp and ask for tests sorry but the giant cell can make you go blind,please go asap.
    rebeccamc 40 Replies Flag this Response
  • jus cos i forgot polymyalgia is muscle and joint inflammationit makes it difficult to move,my mums hips and thighs feel like someone gave her a dead leg,her upper arms shoulders and neck also as well as pain to the touch,she gets dizzy,confused,loose bowel movements,feels sick,face pain,chronic headaches...and she got all this following a bout of stomach flu.it usually affects women and men(more women)over 50 but its getting more prominent in women under 50,and can be genetic.pleeeeeeeeeeeeeeeease get it checked out.my mum now suffers from severe depression as a result of this illness and its so hard to sit and watch it being helpless.please go see your doctor.it almost always follows a virus or infection.in my thoughts,rebecca xxx
    rebeccamc 40 Replies Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • Are you taking any antiboitics to eliminate sinus pressure being the cause?
    Anonymous 42,789 Replies
    • September 9, 2007
    • 02:32 PM
    • 0
    Flag this Response
  • I am feeling the same way- Throbing pain the the back of my neck, that sometimes spreads to my whole head. Numbness on my left side of my face, slight blurry vision, numbness on my left arm. I have no medical insurance, and I went to a doctor, for him to just check my blood pressue, ears, mouth, and heart beat , for him to refer me to get a Catscan. Catscan was $399 dollars. I went to the doctor to pick up my catscan, and they couldn't find anything wrong with me. So my doctor gave me a slip to go get a MRI done, which would be another 400 dollars. I am only ninteen years old, my mother is a single parent, and I am not under her medical insurance cause I currently do not go to school. Right now as I type this I have a trobbing pain on my left side of my face, i feel very spacey/weird vision, hav trouble sometimes moving. Yesterday I actually had a panic attack, and my mother was out of state for business. I felt like going to the hospital cause i felt myself getting worse. It took laying in bed with my sister to calm me down, cause I honestly felt that I was going to die.Don't know what to do.Don't know where to go.I haven't been going out with friends, just been laying in my bed rotting.I am not scared of dying, i'm just scared of suffering. I feel myself slowly slipping into a depression, and all I have is a clueless doctor and an empty pocket.
    Anonymous 42,789 Replies
    • February 15, 2008
    • 10:25 PM
    • 0
    Flag this Response
  • This is directed to Alfred. You may want to consider (Google) basilar migraine or familial hemiplegic migraine. These are considered atypical migraines. I suffer from them and they are a confusion to the medical community, the individual, as well as friends and family. Facial numbness, confusion, speech problems, visual distortions, lack of co-ordination, are common. Numbness or temporary paralysis (complete or localized) on one side of the body are more uncommon but can occur with this type of migraine. The link between the body reactions and the migraine itself can be vague because the other symptoms may appear hours or even days (rare) before the migraine itself. It can appear that the headache is the result rather than the cause.Anxiety (and panic attacks) can come about as a direct result of what is going on in the brain (for me I can get the anxiety or a kind of mild euphoria) or it can be the fear of what is happening to you, particularly if you have no diagnosis to settle your mind. Stress is a common trigger, so the anxiety can actually prolong or precipitate an attack. Also, because the brain is not functioning well, the early warning signs may not be apparent to the sufferer, but may be seen by those around him.In my case I had EEGs, MRIs and CATs. All negative. I have been assessed for TIAs, Multiple Sclerosis, Lupus (medical insurance and a thorough doctor) - all negative. The reason for the confusion is that the symptoms are temporary, do not follow classic patterns, and leave no trace of themselves after they pass. For me the best solution is to "hide in a dark room and play Dracula" until the worst passes. Don't assume the worst, but neurological symptoms do need to be investigated. It might be worth calling a "teaching hospital" or "outreach clinic" for more information if you can't afford a doctor. Good luck.
    Anonymous 42,789 Replies
    • February 24, 2008
    • 03:27 AM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.

Signs of a Psoriasis Flare

Know the five types of psoriasis and how to spot flares.

How Diabetes Medications Affect Your Appetite

Newer diabetes treatments can suppress appetite and aid weight loss.

What to Do For Dry Mouth

Try these tips to get your salivary glands back into action.

The Painkiller – Constipation Connection

Constipation is a common side effect of opioid and narcotic pain medicines.

9 Signs of Sensitive Skin

Is it sensitive skin or something else?