Discussions By Condition: I cannot get a diagnosis.

Undiagnosed pain in the back of both thighs

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: dleh1921
  • October 31, 2008
  • 04:54 PM

A year ago, my son started to suffer from pain behind and lower than his kidneys/testicles. He was first seen by an urologist who did a procedure to confirm that in fact nothing was wrong with his kidneys, bladder, stones, etc. He was referred to another doctor who proceded to remove the left epididymis of his testicle - because it was inflammed and needed to be removed! He continued in pain, left his job in Phila. Pa. and returned home to live with us. He has been seen by a long list of doctors/tests and specialists and no one has reached any conclusion. He continues daily to have profound pain in the back of both legs, and on his worse days, extends down into his calves. He no longer works or drives but spends his days in bed. He has been prescribed a litany of narcotics, anti-depressants and muscle relaxants to no avail. He has been to pain management and physical therapy. He has lost a year of his life! We are desperate. If any one has any suggestions or specialists to direct him to, we would be forever grateful. By the way, he is a young, 23 yr. old male who has been extremely active all of his life (played b-ball in college)non-smoker, non-drinker, non-drug user (other than the prescribed medications.

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9 Replies:

  • The pain down his legs is called referred pain-- the pain shows up in places that are away from the actual problem. Has anyone mentioned Autoimmune orchitis? Try here:http://www.wrongdiagnosis.com/a/autoimmune_orchitis/intro.htm
    aquila 1263 Replies
    • November 4, 2008
    • 08:05 PM
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  • Are both legs equally bad? Does the pain ever move around? Any swelling around the ankles? Is it better if he rests with his legs elevated?
    Felsen 510 Replies
    • November 4, 2008
    • 10:15 PM
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  • i have posted a message but no1 replied to my threadhow would you son describe the pain in his thighslike someone has put a belt around the thigh on the very last holeor like his legs are dead
    mjrichards21 56 Replies
    • November 4, 2008
    • 11:16 PM
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  • Are both legs equally bad? Does the pain ever move around? Any swelling around the ankles? Is it better if he rests with his legs elevated? Pain is equal in both legs (back of both thighs - at its worst, extends down into both calves) No swelling, discoloration anywhere. The best relief is when he is standing
    dleh1921 3 Replies
    • November 5, 2008
    • 01:09 PM
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  • i have posted a message but no1 replied to my threadhow would you son describe the pain in his thighslike someone has put a belt around the thigh on the very last holeor like his legs are dead Heavy, dull throbbing ache, continuous. Never any relief. IF any relief, it is when he is standing. No swelling or discoloration noted anywhere. I suppose it would be more like the belt around both thighs.
    dleh1921 3 Replies
    • November 5, 2008
    • 01:11 PM
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  • The pain down his legs is called referred pain-- the pain shows up in places that are away from the actual problem. Has anyone mentioned Autoimmune orchitis? Try here:http://www.wrongdiagnosis.com/a/autoimmune_orchitis/intro.htm was surgically treated for inflammed epididymitis (removal) last Feb. followed up by extensive antibiotics
    dleh1921 3 Replies
    • November 5, 2008
    • 01:16 PM
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  • Have the doctors checked the lumbar and sacral nerves(M.R.I.).Until a diagnose will be reached i think he should start some acupuncture sesions and phisioterapy (Make sure the acupuncture practitionist is a good one)
    Anonymous 42789 Replies
    • November 5, 2008
    • 02:31 PM
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  • I was thinking of a vascular cause, but since standing relieves the pain, it rules out the vascular cause. Sorry for not being able to help more.
    Felsen 510 Replies
    • November 5, 2008
    • 07:09 PM
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  • i asked how it felt as i have suffered with bad legs for the past 5 weeks i had not long had a child and im the same pain never subsides some days i can cope (have no choice really) and other days am in constant agony and no painkillers work, but now i have brusing i cant account for
    mjrichards21 56 Replies
    • November 5, 2008
    • 11:51 PM
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