Discussions By Condition: I cannot get a diagnosis.

Undiagnosed - Misdiagnosed with CFS

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: l33tgirl
  • October 1, 2009
  • 09:42 AM

Hi there,

Well my story starts in March 2008 when I was struck down with mono/glandular fever.

After that I wasn't the same. Extreme fatigue, muscle pain, dizziness and nausea were my main symptoms. My doctors referred my to the infectious diseases department at the hospital who diagnosed me with Post Viral Fatigue saying it would pass in six months time.

When it didn't pass in six months I was diagnosed with Chronic Fatigue Syndrome. To refer to me the CFS specialist we have here they needed to do a full set of bloods.

In the blood tests they discovered I have inflammation - where they don't know. They said it could be something like a kidney infection or viral. Also my cortisol levels are low.

My lupus tests came back abnormal and I was asked to do a repeat- the second set of tests also came back abnormal (I'm sorry I can't specify that's all the doctors told me). They said they cannot tell what it is yet it could be some sort of autoimmune disease or something viral.

Other things that have come up is I'm more sensitive to light - when I go out in the daytime my energy is zapped as opposed to nighttime and also I have discovered about a dozen lighter patches of skin on my arms. I have olive skin and they are a few shades lighter.

Any ideas would be appreciated.


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