Discussions By Condition: I cannot get a diagnosis.

Undiagnosed - has anyone else had these symptoms?

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: PuzzledWife
  • March 7, 2007
  • 02:31 PM

My husband got sick on Dec 11, 2006 with chills, fever and cold sweats. We thought it was the flu. When he got worse (even though he was taking antibiotics) he went to the doctor. On Dec 15, 2006 she put him in the hospital. His liver and spleen were enlarged and he was severely dehydrated. They ran blood tests, ct scans, ultrasounds, did a colonoscopy and an endoscopy. The preliminary diagnosis was cirrhosis. There is no drug to take. He was advised not to drink any alcohol. He was released on Dec 19, 2006. He did okay for a couple days but on Dec 24, 2006 he had a major relapse. He went back to the doctor on Dec 27, 2006 and was told that he was going through alcohol detoxification and that everything was normal. He was very fatigued and slept 20 hours a day. He continued to get worse and was put back in the hospital on January 2, 2007 with abdominal pain and severe dehydration. More tests were done. More blood tests, CT scans, ultrasounds, mri and a liver biopsy. The liver specialist said that he would not still be going through detox if he had not drank since Dec 11th and that there was something else going on. He was released on January 9, 2007. He went to an infectious disease doctor in late January. More blood tests and xrays. This doctor prescribed a steroid pack. That gave my husband energy and an appetite. All tests came back negative. The liver biopsy came back with a diagnosis of congenital hepititis. (My husband is 56.) I looked up his symptoms on this site and he had 99% of those for brucellosis. However when tested for brucellosis in mid February, the test results came back negative.
Symptoms: enlarged liver, enlarged spleen, spiking fever with copious sweating, fatigue, loss of appetite, weight loss, mental confusion, dehydration, dizziness, abdominal pain.
He is doing better now but is being weaned off the prednazone. As he loses the effects of the medicine, he is starting to have symptoms again. (Loss of appetite, abdominal pain, fatigue, night sweats.) The night sweats have never stopped.
The infectious disease doctor has determined that it is not an infectious disease. He has referred us to a rheumatology doctor because indications are that it is an autoimmune disorder. The rheumatology doctor seems to be focused on rheumatoid arthritis but the symptoms don't seem to match.
Do we just give up and hope that he is healed and doesn't have a relapse?

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