Discussions By Condition: I cannot get a diagnosis.

Undiagnosed GI & neurological symptoms... hoping someome can help.

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: kyoneko
  • October 5, 2013
  • 03:43 AM

Hello - I have had symptoms of IBS for five years now that come and go, varying in their severity and complexity. Most common symptoms have been diarrhea, nausea, spasms in the colon and pain. I often get sharp pains, generally located above my navel and to the left side. Sometimes this pain is so severe it is almost debilitating. Recently (last 6 months), I will get pain radiating to my back as well, between my shoulders and just below my shoulder blades. I have had an upper endoscopy, colonoscopy, CT scans with and without barium and ultrasounds of my gallbladder. All have shown nothing aside from a minor ulcer in my stomach and some 'folds'. I have been tested and come back negative for Crohns, Celiac, Lupus, Gallbladder dysfunction and abnormal function of my liver, thyroid and blood. I have altered my diet and found that while changing what I eat can make my symptoms less frequent, it does not prevent them and has almost no bearing on pain levels. I am on amitryptiline for chronic migraine, dicyclomine for spastic colon, citalopram for 'IBS' and ranitidine for acid reduction. Most troubling is that recently (within last 3 months) I have also been 'diagnosed' with Restless Leg Syndrome and have started to experience neurological symptoms I have never had before as well as a strong fatigue. My chin went numb for a day or two, I feel nerve 'spasms' in the middle of my back that cause uncomfortable twitching and I get phantom sensations in my legs and arms such as a feeling of wetness or tingling in small areas. Within the last couple weeks I have also experienced severe bloating in my abdomen, stronger fatigue and it seems as though I cannot sleep anymore... I get an average of 4-5 hours per night and I cannot force myself to sleep even if I am desperately tired about 60% of the time. I am getting anxious with these new symptoms... And I'm hoping someone here might have suggestions. With as little as testing has done for me, I am willing to entertain any possible potential diagnoses. Thank you.

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