My husband is 44 year old white male.
August 25 2005 he was sent to hospital by ambulance from his work. He was experiencing tinnitius and vertigo and nausea which incapacitated him and was collapsing. At the hospital he was told it was Meinere's diesease.
So we went to ENT and he felt that it was as well and set us up with Specialist at University Hospital to be testing for inner ear disturbance, dizziness and vertigo.
While waiting to be seen, his systoms continued to persist and become more frequent to the point were he could not continue to work as attacks became unpredictable and severe.
He has since been off work August 2006 to present.
Oct. 6 2006, he had four grand mal seizures and was taken by ambulance to emergency. The day before he had had a CT scan, so attending physicians requested results. It came back normal. He was sent home with Dilantin and a referral to a neurologist.
He continued to experience seizures unprecidably, sometimes three times a month or two. They always ended where he was on the ground upon waking and incontinence of bowel and bladder.
While trying to get the seizures under control we had finally went for appointment with Specialist for dizziness etc. He was tested for hour or so and the doctor said that he did not have Meinere's and that it had nothing to do with his inner ear. He thought it might have something to do with the cerebellum.
Neurologist set up MRI scan at another hospital. We called back immediately and another was performed with contrast. Radiologist report a small lesion located in the medial temporal lobe.
He was then admitted to Epilepsy unit for ten days to be monitored. He was released and neurologists could only say that he did not have epilepsy and took him off his medication.
Since his return home in February 2007 we do not think that he has had a seizure, although on a few occasions he has woken up with food or something in his mouth with no recollection.
His systoms have progressed daily, he began to experience small bald patches on his head and once all of his pubic hair fell out. His joints are sore upon waking and takes half the day to loosen. His tinnitius and veritgo worsen daily and sometimes he has acute attacks of vertigo where his lips turn blue and he begins to become cold and shortness of breath.
He cannot walk or stand upright and the spinning has become so bad that he was taken to hospital and they gave him IV of saline and some valium and dopemine based gravol. It did lessen the attack but did not take dizziness away completly.
He has great fatigue and tries after 15 minutes of activity (minor) and is short of breath after walking for that period. He remains in bed most of the day, about 85% if not more. He developed swollen glands in March of this year that have not gone away. They remain hard and swollen and cause him difficulty in swallowing. ENT had no advice on this issue. He also has headache that wanes and worsens daily. Sometimes, I see his eyes jitter back and forth, but no doctor has seen this. He has episodes of unsteadiness where he has to stablize himself with his arms against a wall so that he doesnot fall.
He is sufferring and we cannot get a diagnosis. Please help
cindy and mike