41 year old female. 130 pounds 5'4. Generally healthy EXCEPT:
After normal vaginal delivery of healthy son 14 years ago became very ill. I have outbreaks that do not seem to occur on a regular basis but about every 3-5 months. Symptoms: Feels like a have a raging fever but do not, elevated SED rate of at the worst of 165, negative ANA, mild anemia, low white cell count but not severe, SEVERE joint pain in extremities (pain can be a knee one day then a toe or elbow the next) no swelling or redness with joint pain, Can not seem to get warm. Many nights I have to take 3-4 scalding hot showers just to get warm. Erathema nodosum present on legs when in a bad outbreak, ONLY medications that help are mass amounts of Ibuprophen and Prednisone ( have tried a variety of other meds but none helped). When in bad outbreak seriously have considered suicide just to stop the pain and the intense feeling of being cold. Have seen Rhumatoid specialists (5 of these), Internal medicine (4 of these), Gyn, OBGYN (3), Infectious disease specialists (1), Been to Loma Linda for massive testing and can only find the elevated SED rate. HELP PLEASE! ANY ideas would be helpful! I have suffered on and off for 14 years now. If I only knew what I had I would do everything to help myself! No one seems to know anything. I have spent the last few years staying up late researching diseases ont he internet in hopes of finding SOMETHING. Thanks to anyone and everyone that has any suggestions.