I have had foot and hand pain for 2+ years. I cannot do any activity involving my hands or feet for a long periods of time. With increased use comes increased pain and "weakness". The weakness could not be called profound but I get very clumsy and my grip is weakened. On a "good" day I start with little pain and can get through the day running whatever errands I need to get done with only a little pain at the end of the day. On a good day I could probably spend 3 hours walking slowly at the zoo and the pain at the end of the day would be tolerable, I could not do a trip to the zoo in the morning and then run errands in the afternoon. On a "bad" day I start out in pain (hands and feet) and cannot do much during the day, the pain at night interferes with my falling asleep.
The pain cycles in a very consistent episodic way (not tied to menstrual cycle) with the beginning of the cycle being lower pain levels, more stamina. Over 2-3 months the pain gradually increases and peaks with 2-3 weeks of pain that interferes with my daily activties. The pain drops dramatically and fairly suddenly when "good phase" begins again.
I cannot wear any shoes other than hard soled very supportive shoes. I have found Birkenstocks work best for me. If I wear tennis shoes, even with high arch insoles, the pain increases.
I have had sinus issues also since my daughter was born, for which I started taking claritin, not sure if sinus stuff is related.
I have seen an endocrinologist, rheumatologist, podiatrist and neurologist, in addition to my primary care physician.
I am currently taking a low dose of synthroid (tried higher and it didn't help), and Cymbalta (helped with generalized fatigue and mood issues caused by the chronic pain). I was taking birth control but had my tubes tied, I have seen no change in symptoms since I stopped taking birth control. I have found the advil nighttime helps me get to sleep. ibuprofin in my drug of choice to help with the pain. I take GNC multivitamins, calcium, omega complex, aciphillodosis(sp?).
Sleep study revealed PLMD but I think that is more of symptom of what is going on than a cause. I haven't tried drugs for that yet. Nerve conduction study showed no current nerve deterioration. MRI showed small pituitary tumor but all hormone levels are within normal range. I had very slightly elevated ana and cpk but nothing of diagnostic value.
I felt physically miserable during my pregnancies and had major problems with my hips. During my second pregnancy I wore a belt the entire pregnancy to hold my hips together because otherwise they would spread apart making it difficult to walk. I even had to wear it to sleep at night. Not sure if that is related.
Due to the lack of diagnosis my rheumatologist feels that this could be a transient condition that will resolve on its own. Other options: I am showing "non-standard" symptoms for a known condition, or suffering from a more rare condition that I haven't been tested for.
I do feel that my doctors have been thorough. The only area not specifically explored is muscular dystrophy, due to the lack of profound weakness and the cyclical nature of the pain.
Any ideas? I would be happy to provide more information if needed.
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