Discussions By Condition: I cannot get a diagnosis.

undiagnosed eating disorder...PLEASE HELP!!

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: kehrig
  • January 14, 2008
  • 02:28 AM

My 9 year old daughter has what med. professionals are telling me is an unspecific eating disorder. Ever since she was 6 months old she has been obsessed with food. She sneaks it, steals it, anything she can to get it. If unmonitored she will eat until she vomits everyday. When she was 4, a psychiatrist she was seeing for her symptoms mentioned a disorder called Prader-Willi Syndrome. It is very rare and most people and health care professionals have never heard of it. After doing some research on the disorder (and determining that she displayed a majority of the characteristics of the disease) my husband and I decided to do the genetic testing necessary to diagnose it. We were shocked when she tested negative b/c we were sure that we had finally gotten to the bottom of her condition. Ever since than (5 long years ago) we have been just trying to control it as best we can. All portions have to be controlled or she will gain wait and vomit. But it has gotten so bad recently that her school suspected abuse and reported us to Child Protective Services b/c she was stealing milk and eating out of the garbage at school, which she will also do at home if not supervised. We are at a complete loss as to what to do anymore. We are back at square one now w/ a new pediatrician who is again calling it a general eating disorder of some sort and referring her to another psychiatrist. If there is anyone out there who has any advice or information for us PLEASE write back!! Also, if anyone knows anything about Prader-Willi syndrome like if there are varying degrees of the illness or instances where it has been misdiagnosed and she might actually have the disorder please let us know.

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3 Replies:

  • Your daughter needs to be retested for Prader-willi.http://findarticles.com/p/articles/mi_m0876/is_n63/ai_12611704Chance she had a false-negitive result, if the chromosomes were inherited equally from both parents. Regards.
    TerryG 120 Replies
    • January 14, 2008
    • 03:12 AM
    • 0
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  • I am so sorry for what your daughter is going through. I wonder if she could have a mineral deficiency. It sounds a lot like PICA which is eating things that are not food. This can be treated with mineral supplements. It causes very similar behavior, where the child will sneak around eating mud, dirt, sand, or other non food items. Mineral deficiencies are very hard to diagnose because the minerals are not stored in one location. I would suggest trying a general mineral supplement and see if it helps. Would probably take 4 - 6 weeks to see results. Good luck!
    Anonymous 42,789 Replies
    • January 15, 2008
    • 01:02 AM
    • 0
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  • Hyperphagia; Increased appetite; Hunger; Excessive hunger; Polyphagia Definition Increased appetite is having an excess desire for food. Hyperphagia and polyphagia refer to being focused only on eating (gluttony), or eating excessively before feeling full. These can be symptoms of different diseases.Considerations Both mental conditions and endocrine gland disorders can cause polyphagia, which is fairly common.Polyphagia can come and go (intermittent), or it can last for long periods of time (persistent), depending on the cause. It does not always result in weight gain.Causes Causes of increased appetite include:AnxietyCertain drugs (such as corticosteroids, cyproheptadine, and tricyclic antidepressants)Bulimia (most common in women 18 - 30 years old)Diabetes mellitus (including gestational diabetes)Graves' diseaseHyperthyroidismHypoglycemiaHas your daughter been tested for all these things?
    rad-skw 1,605 Replies
    • January 15, 2008
    • 09:34 AM
    • 0
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