Discussions By Condition: I cannot get a diagnosis.

Undiagnosed... chronic pain hands/feet, brain fog, stiffness, depression, anxiety

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: Anonymous
  • March 22, 2011
  • 06:35 PM

Hello. I thought I'd share my symptoms and treatment. Maybe others might see how I have become more productive.

OK - I am in my mid 30s. Male. No drugs, light alcohol experience. Athletic. Educated. Midwest childhood. Army Veteran. Professional. Very high pain tolerance. Currently 215lbs/73". Married w/ 2 step children.

-hand pain and weakness for 10+ years
-foot pain for 10+ years.
-both hands and feet used to be constantly cold - no longer the case (probably due to prescriptions)
-trouble holding things, or picking them up (constantly dropping screws, pens, etc)
-significant brain fog increase over last 10 years
-constant feeling like I've been beat up
-feet feel like I've just run a marathon, although I sit most of the day (with good shoes)
-hands always feel like I've "tug-of-war'd", even with light use (driving, eating, etc)
-increased anxiety over last 10 years, stabilized with prescriptions
-depression (possible result because of above)
-poor sleep habits (even extended sleep periods feel non-productive)
-"loose bowels"
-moderate blood pressure/HR

Diagnosis efforts
-neurological - nothing
-endocrine - nothing (other than light fatty liver)
-rhumatic - nothing
-sleep study - nothing
-pediatrist - nothing
-ENT - nothing
-MRI/CAT - nothing
-massage/acupuncture - nothing
-Lyme/other retro virus tests (2) - nothing
there could be more that I've missed...

Resultant actions
-Prescriptions - Lyrica, Cymbalta, Tramadol, Welbutin, anti-anflamatory (forgotton name) for nearly 4 years, with slight adjustments to no effect
-semi-regular exercise (2-3 days per week)
-poor/fair breakfast/lunch, very healthy dinner (typical)
-occasional use of prescription opiate when necessary (1-3 every couple weeks)
-elevated heart rate/hypertension (almost stage II)

My interpretation - I've gone from an assumed 100%, progressively down to maybe 40%, and back up to a typical 70% after medicating. I still deal with hand/foot pain, fatigue, cloudiness, constipation (meds), 50lbs gained in 1+ year (meds) and now stabilized, ravenous (meds), semi-effective sleep. I have a sustained quality of life, but remain curious about an improvement. Leaning towards Lyme... Considering a gluten-free phase...

I provide the above as an aid to reference, for anyone who shares my symptoms. I barely comment publicly, and may never see any questions or replies. Good luck.

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4 Replies:

  • Try adding a good vitamin B complex to your daily meds to see if it helps anything.
    taniaaust1 2267 Replies Flag this Response
  • Hello. I thought I'd share my symptoms and treatment. Maybe others might see how I have become more productive.OK - I am in my mid 30s. Male. No drugs, light alcohol experience. Athletic. Educated. Midwest childhood. Army Veteran. Professional. Very high pain tolerance. Currently 215lbs/73". Married w/ 2 step children.-hand pain and weakness for 10+ years-foot pain for 10+ years.-both hands and feet used to be constantly cold - no longer the case (probably due to prescriptions)-trouble holding things, or picking them up (constantly dropping screws, pens, etc)-significant brain fog increase over last 10 years-constant feeling like I've been beat up-feet feel like I've just run a marathon, although I sit most of the day (with good shoes)-hands always feel like I've "tug-of-war'd", even with light use (driving, eating, etc)-increased anxiety over last 10 years, stabilized with prescriptions-depression (possible result because of above)-poor sleep habits (even extended sleep periods feel non-productive)-"loose bowels"-moderate blood pressure/HRDiagnosis efforts-neurological - nothing-endocrine - nothing (other than light fatty liver)-rhumatic - nothing-sleep study - nothing-pediatrist - nothing-ENT - nothing-MRI/CAT - nothing-massage/acupuncture - nothing-Lyme/other retro virus tests (2) - nothingthere could be more that I've missed...Resultant actions-Prescriptions - Lyrica, Cymbalta, Tramadol, Welbutin, anti-anflamatory (forgotton name) for nearly 4 years, with slight adjustments to no effect-semi-regular exercise (2-3 days per week)-poor/fair breakfast/lunch, very healthy dinner (typical)-occasional use of prescription opiate when necessary (1-3 every couple weeks)-elevated heart rate/hypertension (almost stage II)My interpretation - I've gone from an assumed 100%, progressively down to maybe 40%, and back up to a typical 70% after medicating. I still deal with hand/foot pain, fatigue, cloudiness, constipation (meds), 50lbs gained in 1+ year (meds) and now stabilized, ravenous (meds), semi-effective sleep. I have a sustained quality of life, but remain curious about an improvement. Leaning towards Lyme... Considering a gluten-free phase...I provide the above as an aid to reference, for anyone who shares my symptoms. I barely comment publicly, and may never see any questions or replies. Good luck.Have you tried having your hormones checked? I had low thyroid for years and didn't know it and had almost half of the symptoms you're talking about.
    Anonymous 42789 Replies Flag this Response
  • Yes follow up on Lyme Disease, especially if you live in an area where it is more common. Get tested through IGeneX labs in N California. An LLMD would do this, or if you have a good IM or PCP, they could too. All the best.
    Anonymous 42789 Replies Flag this Response
  • In case you do read this, my husband had a sleep study where they only tested him for apnea. Did they include a test for periodic limb movement disorder? You can have that and not know that you have it and it can significantly affect your energy, mental clarity, mental health and cause issues with pain. Also, I would suggest looking into Fibromyalgia, I know a lot of people think it's not a real disorder, but more studies are showing that it has something to do with improper signals in the central nervous system, and it doesn't show up with routine tests. I had a lot of those same symptoms and that is my diagnosis. Because of some issues with my children and siblings, I've also recently begun looking into mitochondrial disorders, which apparently can cause many of these symptoms. Just some ideas to ask your doctors about if you haven't already.
    Anonymous 42789 Replies Flag this Response
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