Discussions By Condition: I cannot get a diagnosis.

Undiagnosed B12 problem.

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Anonymous
  • August 21, 2009
  • 01:35 AM

Returning from a 5weeks trip overseas last year I have been seeing my Dr for b12 deficiency. I have always felt tired and exhausted. On my trip I needed to come home and have a nap during the day. On return to the country I went to my GP and explained my fatigue and general felling of “low” energy.

I am 23 and have had low iron in the past but am on iron tablet to help maintain my stores. I eat meat, so should get plenty of b12 and iron. I requested my Dr to check B12 levels, the results came back as well below the limits where I should be.

I was given weekly b12 injection for a month while I had other testing done.

My homocystine levels were good.
I was negative for pernicious anemia.
Folate levels fine.
Kidney function good – slight low urea levels.
Liver function good.
I was then referred to a gastro where I was sent for gastroscopy and colonoscopy and biopsies of my gut where I should be absorbing my b12.

All my tests were negative, nothing wrong with my gut lining, and nothing abnormal in my GI tract. During this time I am having b12 shots every 3 months and blood tests every 6month to check my b12 level.

My Dr decided to keep going with the 3monthly injection and 6 monthly blood test. I am a bit concerned and am wanting to find the root cause. In one year I have had a total of 9 injections. I find this to be a bit extreme. If I am continually going to need injections 4 times a year I want to know why and possible be able to give myself the injection instead of having to go to the dr.

Thoughts????

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2 Replies:

  • Returning from a 5weeks trip overseas last year I have been seeing my Dr for b12 deficiency. I have always felt tired and exhausted. On my trip I needed to come home and have a nap during the day. On return to the country I went to my GP and explained my fatigue and general felling of “low” energy. I am 23 and have had low iron in the past but am on iron tablet to help maintain my stores. I eat meat, so should get plenty of b12 and iron. I requested my Dr to check B12 levels, the results came back as well below the limits where I should be. I was given weekly b12 injection for a month while I had other testing done. My homocystine levels were good.I was negative for pernicious anemia.Folate levels fine.Kidney function good – slight low urea levels.Liver function good.I was then referred to a gastro where I was sent for gastroscopy and colonoscopy and biopsies of my gut where I should be absorbing my b12. All my tests were negative, nothing wrong with my gut lining, and nothing abnormal in my GI tract. During this time I am having b12 shots every 3 months and blood tests every 6month to check my b12 level. My Dr decided to keep going with the 3monthly injection and 6 monthly blood test. I am a bit concerned and am wanting to find the root cause. In one year I have had a total of 9 injections. I find this to be a bit extreme. If I am continually going to need injections 4 times a year I want to know why and possible be able to give myself the injection instead of having to go to the dr. Thoughts???? I have Lyme Disease which depletes your system of B12. When first diagnosed, I began getting 3000cc's twice a week, then only once a week - it has been 9 months of treatment for Lyme and I now only get a shot when I need it which is about once a month. I go to my Pharmacy and the Pharmacist gives me the shot for $15.
    Jenny45 2 Replies Flag this Response
  • Im on twice weekly B12 injections which helps my memory quite a bit, im hardly functional without it, (i have CFS and methylation issues.. B12 injections are recommended in CFS by many CFS experts.. Interesting like most with CFS, the normal B12 blood test levels show me as being not deficient thou it helps me a great deal). Yes should be able to give the injections to yourself. Over where i live (in Australia) B12 is available behind the counter at the pharmacist and one can get it just by asking for it (without a script as long as one says one is taking it on a doctors recommendation.. most dont realise this fact). I find it very easy to give myself or have another give me these injections and they are quite safe unlike many other vitamins in which overdose is far more possible. Why some of us dont seem to get enough B12 for our bodies thou we eat a lot of meat, i dont have a clue.
    taniaaust1 2267 Replies Flag this Response
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