Discussions By Condition: I cannot get a diagnosis.

undiagnosed autoimmune flare up

Posted In: I cannot get a diagnosis. 10 Replies
  • Posted By: Debremp
  • October 8, 2008
  • 04:02 PM

This is my second, maybe third flare up in six years and the doctors can't figure it out. Here are my symptoms - burning, weak muscles, headache, fever, dry mouth, night sweats, trouble starting urination, fatigue, pain in eyes, dizziness, chest pain, tingling in left hand, some weight loss. Two years ago my Rheum diagnosed a virus, (that lasted 10 weeks) but now that it's back he doesn't know what to think. Both times my sed rate and CRP are high, but nothing else. ANA is negative. Lyme is negative.

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10 Replies:

  • Maybe celiac disease.
    aquila 1263 Replies
    • October 8, 2008
    • 06:07 PM
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  • Maybe autoimmune triggered by some food contaminant such as antibiotics in meats...are you allergic to any antibiotics?I have Sjogren's syndrome, which is bothered by tons of a variety of things, so I just have to be careful. I am allergic to chicken, which gives me joint pains; many antibiotics and other stuff. Most of these things cause the autoimmune symptoms to come out.Chronic low grade infections can also be a problem, such as sinus infection.Good luck. Marionstar
    marionstar 228 Replies
    • October 9, 2008
    • 00:38 AM
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  • classic signs of multiple sclerosis, especially with the rate of relapse.
    Anonymous 42789 Replies
    • October 10, 2008
    • 09:16 AM
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  • Even people is really obvious Lyme can easily get a negative lyme test. I got 6 of them over the years of searching for answers. A specialty lab can offer a better chance of a correct test. And a LLMD Lyme Literate Medical Doctor can better tell you if they suspect Lyme. Most regular doctors don't like to treat Lyme because of the touch subject it is right now. Check this out... it is a fast two minutes of info which might help you see if you want more answers. MyFox New York | Raising Awareness of Lyme Disease
    Anonymous 42789 Replies
    • October 10, 2008
    • 03:54 PM
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  • Neg.ANA doesn't rule out lupus
    mae3057 50 Replies
    • October 11, 2008
    • 02:57 AM
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  • I was also misdiagnosed with Lupus and MS several times over the years. Most people are first Dx'ed with Lupus or MS, or ALS, or a ton of other things. Yes... check them out... but if they lead nowhere, just remember the Lyme Disease possibility.
    Anonymous 42789 Replies
    • October 11, 2008
    • 06:42 AM
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  • Thanks for the info everyone. I'm new at this and not sure how to respond individually. I've been looking on the internet trying to see how to find an LLMD in my area, but can't seem to find a list. Anyone know how?
    Debremp 2 Replies
    • October 11, 2008
    • 02:50 PM
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  • Hi there, You can go to the Lyme site and then fill out the information and they will send you the closest LLMD to you. Most of us have to travel a bit to find a good Lyme doc. If you have any other questions, I will be glad to try to help. I will be off the computer for two days, but I will catch up with this thread as soon as I can. Be patient for the Lyme site to send you back information... it takes a couple of days usually. Good luck ...here's the site to find your closest Support Group which could help you a lot-- put in your state: The Lyme Disease Network Support Groups Listing Fill out this form for a LLMD near you:Doctor Referrals for Lyme Disease Care If there is any problem with these links, let me know... good luck.
    Anonymous 42789 Replies
    • October 12, 2008
    • 07:36 AM
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  • This is my second, maybe third flare up in six years and the doctors can't figure it out. Here are my symptoms - burning, weak muscles, headache, fever, dry mouth, night sweats, trouble starting urination, fatigue, pain in eyes, dizziness, chest pain, tingling in left hand, some weight loss. Two years ago my Rheum diagnosed a virus, (that lasted 10 weeks) but now that it's back he doesn't know what to think. Both times my sed rate and CRP are high, but nothing else. ANA is negative. Lyme is negative.OMG I have the same symptoms as you, ive had them since I was 6 and now im 22 and they are just now enough symptoms for a doctor to care enough to send me to specialist but I am just starting it
    Anonymous 42789 Replies
    • February 23, 2011
    • 11:15 PM
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  • OMG I have the same symptoms as you, ive had them since I was 6 and now im 22 and they are just now enough symptoms for a doctor to care enough to send me to specialist but I am just starting itI can't imagine feeling that way for all of those years. Mine has gone and not come back. I think it was an auto-immune reaction to an anti-biotic that I had taken both times. It's called a serum sickness. Hope you get a diagnosis.
    Anonymous 42789 Replies Flag this Response
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