Discussions By Condition: I cannot get a diagnosis.

undiagnosed and scared...please help

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: Anonymous
  • September 11, 2007
  • 03:58 PM

i am a 26 year old female, who is generally healthly, thankfully. over the past 5 years i have battled a multinodular thyroid which caused me to be over active at times. during thoes times i took anti thyroid meds and betablockers. i never had any weight loss symptoms of hyperthyriodism jsut all the others for a year or 2 i was fine. about 9 months ago i began to loose some hair and i felt on edge and depressed. i thought my thyroid was acting up again so i went to the DR for bloodwork. it came back fine and i broke down i was hoping for the hyperthyroidism to explain the symptoms...none the less all was fine except my b12 the dr gave me a shot and a perscription for wellibutrin and sent me to a shrink i saw 3 yrs ago.....now im on topimax and wellibutrin.....and my endocronologist found antibodies in my nodules but no changes in thyroid function for now, but she suspects polysystic ovarian syndrom as my insulin is high and my hair is still falling out and my periods are very very painful. i am so concerned. i beleive there is jsut one root cause here since all of these things are connected, depression, thryroid, ovaries, hormones...all govenerd by the hypothalamous......when i talk to the DRs like this they act like im crazy (espically when they hear i see a shrink) or like im telling them how to do their job but im jsut trying to take an active role in my care. i trully beleive it is like a domono effect and if i can find the root cause i can fix the provlem rather than continue to treat each symptom with various meds which is what i feel the doctors are doing. please... anyone.... help!
thank you in advance

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5 Replies:

  • polycystic ovaries could give you many of these symptoms.
    rad-skw 1605 Replies
    • September 15, 2007
    • 09:25 AM
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  • Email me: horror_enthusiast@yahoo.comSounds VERY similar to what I'm being tormented with myself currently. Maybe we can swap ideas. I'm getting ready fro the second opinion although I'm expeiencing other type episodes which I believe are all stemming from the hormone imbalance from from the PCOS. Do you suffer from high blood pressure too? I think that id my hormone specialist can get my hormones nack in check then everything else will sort itself out.My Primary Care wants to put me on Psych meds too................not happening! My gut is certain that the issue is not in my head..If you want to talk. Email me.Sharon
    Anonymous 42789 Replies
    • September 15, 2007
    • 11:53 AM
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  • The hypothalmus is directly and most immediately affected by elevated cortisol levels. Have yourself assessed for "adrenal-exhaustion", and have your cortisol level checked (afternoon, blood-serum level not urine, should be at 8-9 mg/ml in early-mid afternoon). Make sure you're getting enough Zinc and Magnesium (take a mag/calcium supplement, the calcium's necessary for the mag. to be absorbed)-and start taking a b COMPLEX vitamin-not just b12. B5 (panthotenic acid) is actually the most important B vitamin for problems related to elevated cortisol levels. Good luck and please post again with results, etc. But the elevated cortisol/adrenal exhaustion could, in fact, be secondary to another underlying issue, i.e. environmental toxins-do you consume alcohol often?
    Anonymous 42789 Replies
    • September 15, 2007
    • 02:30 PM
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  • Hello All..thank you for your responces!My endo and I have made some progress...she convinced me to come off of my birth control pills to see if I have PCOS and she thinks I do so she now has me on metformin 500 mg 3 x daily. i am still taking the wellibutrin and topimax. I am hoping this will help restore the hormonal impalance and treat the insulin resistance....i think that has been the culprit with my inability to lose weight as since my treatment my weight was begun to come down without much difference in my food intake/excerise. Ive always been very concious of my food intake and excerize as i dont want to get fatter but i was never able to get any smaller despite my efforts. I have been on Birth control since 16 so i guess the irregular periods, main symptom of PCOS was masked all this time. To think i didnt want to come off of them to get diagnosed (fear of becoming prego) now iam so glad i did. I feel much better. I am still nervous about my general health as my hair is still thin but now i know why...im not a crazy lazy glutton like everyone said i was. as for the cortisol, i asked my endo...she said i exibit no symptoms to her that suggest irregular cortisol but she will do the test if i want.....i said its not necessary. since she has been the only one to be so patient with me and so willing to accomidate i figured i could take her word. if she saw a reason for the test she would have ordered it. was that a bad move?and the enviromental factors.......i do not drink at all. i hate it, have an adverse reaction....think its because of the PCOS...but i do smoke pot and cigarettes could that do it? i am former carbahalic....up until about 6 years ago i would say my daily intake of food was 70% carbs 20% fat 10% protien....i had no idea how bad sugars...even bread and pasta is for you. i would fast too...all day, and have a big meal at night thinking it was doing me good.....now i know it was what was probally contrabuting to this metabolic syndrome X. my liver enzymes are elevated negligabley (as my dr put it) said it was b/c of street drugs i did over 4 yrs ago or the begining of fatty liver if i dont eat better.....what could all this mean???thank you for your help and intereast in my health :)
    Anonymous 42789 Replies
    • December 19, 2007
    • 07:58 PM
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  • Yes, I agree. You need to consult with Dr. Bob, a preventive doctor in Santa Barbara and he will run an assortment of hormonal tests and get to the bottom of your problem. let me know if you think you want his number (leave your email address)
    Monsterlove 2921 Replies
    • December 20, 2007
    • 04:31 AM
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