Discussions By Condition: I cannot get a diagnosis.

undiagnosed and frustrated

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: chickiecat
  • January 24, 2013
  • 03:49 AM

I have a nearly 2 year history of strange symptoms and no diagnosis. It all began with neck and upper back pain which progressed to numbness and tingling in my extremeties. Recently I have also experienced unexplained bruising and dizziness. At times I have extreme fatigue, trouble concentrating, stumbling over words when I speak, generalized muscle pain and horrible mood swings. I've had no trouble sleeping - often experiencing the opposite (after 8 hours of sleep I can barely drag myself out of bed). Contrast MRI of the brain and cervical MRI revealed no abnormalities. Nerve conduction testing was reportedly normal. My TSH was just over 5 and I'm only 44 years old - seemed high but no one is concerned. On two different occasions I've had an elevated ANA titer (1:640, and 1:80) but further testing for lupus was negative. I've been referred from family practice to neurology to rheumatology. The rheumatologist calls it fibromyalgia - I have a hard time believing it. None of it fits and I can't help but feel like there is something they've missed. I'm a professional who manages to work 40 plus hours a week despite all of the problems I've been dealing with. I'm a healthy weight, have been following a strict gluten-free diet for 3 months, and exercise regularly. If anyone has experienced something similar and can suggest further testing that might shed light on any of this, I'd be eternally grateful.

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