Discussions By Condition: I cannot get a diagnosis.

Undiagnosed abdominal pain

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: Anonymous
  • May 31, 2007
  • 11:36 PM

My 16 year old son was diagnosed with a clostridium difficile infection on March 1. He did 2-ten day rounds of Flagyl and then 28 days of Vancomycin.
The diarrhea has finally subsided...but his abdominal pain is severe. He says it is a sharp pain right where his appendix should be (it was removed 2 years ago.)

His entire lower abdomen is achey, with sharp pains in the LRQ. It is extremely painful when he has a bowel movement. It hurts to take a deep breath (hurts lower abdomen). Underneath his sternum is also achey. He has had headaches off and on (they may last all day). For a couple of weeks his stomach has been extra achey after he urinates--it hurts all around his belly button--he says that it feels all "stretched out inside". But yesterday, it started with sharp pain when he urinates.

He has had 2 colonoscopies, an upper GI with a small bowel follow thru, a hida scan, 2 CT scans of his abdomen, and an edoscopy. All tests looked normal. All blood work has come back normal. He does not have inflammatory bowel disorder.

We are now being told that his nerves are sending a message of pain to his brain that is not in proportion to the amount of pain that he should be in. But they have tried 2 different medicines that were supposed to stop the pain if that is indeed what it was. He is not getting any better.

He is extremely fatigued--barely gets off the couch.

He has NOT had any major life changes that could cause stress. I know my son, this is not in his head.

Does anyone have any ideas????

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3 Replies:

  • I had many GI issues too, and I have had the endoscopy, colonoscopy, and barium swallow. they were all normal, but I was diagnosed with food allergies and eliminating gluten from my diet made it much better. i never thought i was allergic either, but a simple blood rast test proved me wrong. It may be a start...
    jenna17273 6 Replies Flag this Response
  • Thanks for the suggestion....tested negative for any food allergies, including Celiac Disease.
    Anonymous 42789 Replies Flag this Response
  • I read something about this yesterday. The pain path-ways become over-stimulated. They recommended that a pain clinic handle the pain.
    rad-skw 1605 Replies Flag this Response
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