Discussions By Condition: I cannot get a diagnosis.

undiagnosable?

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: Anonymous
  • December 16, 2008
  • 05:13 AM

So for the last 5 years i've had intense vertigo, and I went to an ENT and they've checked my ears and done all of he tilt table tests as well. Everything came back clean. About a year ago I developed sinus and ear infections that alternate basically from one to the other but never seem to subside despite the crazy amount and variation of antibiotics they are showing down me. I also have a skin pigment problem, and fatty tumors growing all over my body but primarily in my arms.. In the last few months i've had the flu, walking phnemonia, bronchitis, ear and sinus infections, and multiple colds. I've also had a host of other problems like a nasty cough left over from bronchitis and the flu that won't seem to go away, and strep like symptoms that keep coming back.

I'm dying for an answer but no one seems to have any idea, they just keep trying new antibiotics. If you have any idea at all let me know- especially about the vertigo! (im too young for common causes in elders- im only 17 and it started when I was about 12.)

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6 Replies:

  • The vertigo could be from the ear and sinus infections, but then what is causing the ear and sinus infections? Have you ever had an mri? Do you have any birthmarks? Do you run any fevers?
    qwertyuiop123 453 Replies
    • December 25, 2008
    • 01:31 AM
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  • What do these fatty tumors look like?Neurofibromatosis comes to mind,and with that you can get intracranial tumors that can cause vertigo.Is there any family history of this?:)
    richard wayne2b 1232 Replies
    • December 25, 2008
    • 01:38 AM
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  • lol, that was my first thought as well, though I would hope someone would have caught it, one indicator would be cafe au lait spots, though I'm not sure if she is still following this forum or not.
    qwertyuiop123 453 Replies
    • December 25, 2008
    • 01:43 AM
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  • What type of skin pigment problem do you have?Cafe au lait(areas of brownish pigmentation)spots are common with the disease I mentioned.:)
    richard wayne2b 1232 Replies
    • December 25, 2008
    • 01:43 AM
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  • As a person with neurofibromatosis (NF for short) I agree multiple 'fatty tumors' is good sign of NF. The light brown spots would have been there since birth but maybe not totally noticeable until 1-2 years of age. NF will cause a wide range of medical issues since the tumors grow in any size or shape and anywhere inside and outside of the body, it just depends on what the tumor is pressing against *or not pressing against* on how your other organs will be affected.
    Anonymous 42789 Replies Flag this Response
  • I'd be pushing for an MRI of the brain if I was you. Don't give up, keep pushing until the doctors listen, they are not the one's who have to live in this chronic pain state.:mad: I wish you the best of luck and pray you find the answers soon.Sammyhttp://www.undiagnosedillness.org
    Anonymous 42789 Replies Flag this Response
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