Discussions By Condition: I cannot get a diagnosis.


Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • February 5, 2009
  • 03:07 AM

When I was 12 I was diagnosed with rheumatoid arthritis. When I was 15 I was also diagnosed with fibromyalgia. I was put on plaquenil and naproxen for the arthritis. A few years ago, while at a friend's party, I began having very bad uncontrollable muscle movements. I called my mom and she took me to the ER, where they told me it was all in my head. My family doctor blamed the episode on the plaquenil and took me off of it.

Ever since then, my fingers have twitched when they are still. I have general muscle weakness. My legs and toes also twitch, but I'm not sure if this is a result of the restless leg syndrome that often accompanies fibromyalgia. I recently went to my doctor, after years of twitching (I am 17 now). He noted that my tongue also twitches. He said that I have a "famial twitch". But no one else in my family has a twitch or tremor. Also, I thought famial twitches were rare when a person was still. I thought they mainly happened when a person was holding something.

Any information would be helpful.

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