I have been to every doctor I think is possible. I turn purple in my extremities (hands and feet) sometimes evern my lips and nose. They ruled out raynards phenomioam because my feet and hands also turn purple/black when I am in a hot shower! I also feel dizzy when I stand up and have a racing heart beat. I also have celiac disease but am on a gluten free diet. But still suffer some symptoms such as cramping and constipation. I have joint pain as well so that pretty much cancels out acrocyanosis. please help if you can!
My cardiologist says I have many of the symptoms of dysautonomia. Which includes dizziness when you stand and cold/blue hands and feet. But my heart rate went up instead of down when he did a tilt table test.
My vasvular specilist just threw his hadns up in the air and said I dont know and recommened somebody else.
Can anybody help me??
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