Discussions By Condition: I cannot get a diagnosis.

Turning Purlple, Doctors Can't Help!!

Posted In: I cannot get a diagnosis. 10 Replies
  • Posted By: Anonymous
  • November 5, 2006
  • 04:39 AM

I have been to every doctor I think is possible. I turn purple in my extremities (hands and feet) sometimes evern my lips and nose. They ruled out raynards phenomioam because my feet and hands also turn purple/black when I am in a hot shower! I also feel dizzy when I stand up and have a racing heart beat. I also have celiac disease but am on a gluten free diet. But still suffer some symptoms such as cramping and constipation. I have joint pain as well so that pretty much cancels out acrocyanosis. please help if you can!

My cardiologist says I have many of the symptoms of dysautonomia. Which includes dizziness when you stand and cold/blue hands and feet. But my heart rate went up instead of down when he did a tilt table test.

My vasvular specilist just threw his hadns up in the air and said I dont know and recommened somebody else.

Can anybody help me??

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10 Replies:

  • Anybody Know Anything That Can Help Me?
    Anonymous 42789 Replies
    • November 6, 2006
    • 08:51 PM
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  • ill probably just die
    Anonymous 42789 Replies
    • December 15, 2006
    • 02:59 AM
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  • Please search out an acupuncturist who is very well trained in chinese herbal medicine and who has preferably been trained in China or was taught by someone who has trained in China. One saved my quadriplegic friend who I care for when her bladder decided to stop functioning and the doctors gave her no hope. They can fix things that are mostly unknown to modern medicine; there is too much focus on labelling things instead of looking at a person as a whole. You may have more than one condition so have the doctors baffled. Combine this with a visit to a naturopath who is familiar with and has treated celiac disease and is also heavy into Chinese medicine. Though you may be on a good diet for your condition you may still be surprised.All the best,agape,Searchingsam
    searchingsam 54 Replies
    • December 15, 2006
    • 11:44 AM
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  • Someone mentioned seeing an accupuncturist(sp?). I would definitely try this. I have Raynauds(sp?), I still think it sounds like that, too. I have quite a few problems that aggrivate me much more than my personal degree of the hand/nose/feet etc. issues, and accupunture thus far has worked much better than any prescription medicines I take.Did you google skin color changes? I've seen blue/black issues somewhere. I will try to find it again.I don't like that doctors just say they can't help you. I'm sure my doctors think I have mentally lost it because I won't accept that anymore. Hang in there!!!!
    Anonymous 42789 Replies
    • December 15, 2006
    • 07:02 PM
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  • I think it's definitely either cardiological or infectious. Are you constantly purple, or does it change/occur in different environments or in response to different stimuli? How often do you change color, and have you noticed if the affected areas have spread at all?
    eleven 55 Replies
    • December 15, 2006
    • 11:01 PM
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  • I have been to a cardioulogist who said i do have a problem with my heart. He wasn't quite sure along with ALL THE OTHER doctors!!When I go into a hot shower my feet turn pretty much black. But if I am walking around my feet and toes are purple. My hands usually only turn purple when I am affected by cold tempatures. My knees and legs are purple as well, usually all the time mostly in the cold.
    Anonymous 42789 Replies
    • December 16, 2006
    • 00:31 AM
    • 0
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  • I have been to a cardioulogist who said i do have a problem with my heart. He wasn't quite sure along with ALL THE OTHER doctors!! When I go into a hot shower my feet turn pretty much black. But if I am walking around my feet and toes are purple. My hands usually only turn purple when I am affected by cold tempatures. My knees and legs are purple as well, usually all the time mostly in the cold. Did he say precisely what the problem might be? I'd also suggest seeing a neurologist, especially as this is affected by temperature.
    eleven 55 Replies
    • December 17, 2006
    • 09:48 PM
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  • he suggested disautonomia?!?! They just dont know what the problem is!but again when i had the test for it, it was pretty much normalhe just suggeted going to a specialist 900 miles away, which I am going to so in a couple of months.Well thank you very much for your help.
    Anonymous 42789 Replies
    • December 18, 2006
    • 00:17 AM
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  • Look up Addison's disease on google..skin pigmentation changes are one of the main symptoms
    Anonymous 42789 Replies
    • December 18, 2006
    • 05:12 PM
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  • Thank you very much but addison causes a bronze pigmintation of the skin!!Thank you all again for your suggestions and help!!!
    Anonymous 42789 Replies
    • December 19, 2006
    • 01:50 AM
    • 0
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