Discussions By Condition: I cannot get a diagnosis.

trying to get help for my husband

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: arkansan
  • January 10, 2009
  • 03:08 AM

My husband is a 40 yr old with well controlled type 1 Diabetes. Three yrs ago he had two spells of memory loss about three weeks apart. He lost about a week of memory for 1 to 2 hours but then it came back. At the same time he had a sore flare up on his tongue and was having speech problems. He also complained of muscle stiffness. The first time I took him to the ER. They ran test and found nothing. The second time I took him back to the Dr. He was admitted to the hospital and had MRIs, spinal tap, test for west nile, test for lyme and many other things. He was released from the hospital and had to follow up with Neuro. After many more tests and many more bills, we were told he had a spell of amnesia (we already knew that) but he didn't know what caused it. After several months, my husband was frustrated and wouldn't go back. He was fine and didn't have any more problems. Until now.......

He has not had any more memory problems. Mostly, he is having difficulty speaking. It's some stuttering and difficulty forming words. He is complaining of muscle stiffness, some muscle spasms, and some ringing in the ears. It seems to come in spells. He will be fine, then all of a sudden he starts having the speech difficulty and stiffness. It may last for a day or two and then it goes away. This has been going on for almost two months and the episodes are coming more frequently. When the speech problems first started, he went to the family doctor who said there was definitely a concern and he was referring him to a Neuro. We've been waiting since mid November for an appointment. I think he's finally going to get in next week. Problem is, he's not real thrilled about going. After the episode with the Neuro three years ago, running tests and running up bills with no real answers, he doesn't have much hope that they will find out what's wrong with him. We're keeping our fingers crossed. Any ideas?

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  • My husband is a 40 yr old with well controlled type 1 Diabetes. Three yrs ago he had two spells of memory loss about three weeks apart. He lost about a week of memory for 1 to 2 hours but then it came back. At the same time he had a sore flare up on his tongue and was having speech problems. He also complained of muscle stiffness. The first time I took him to the ER. They ran test and found nothing. The second time I took him back to the Dr. He was admitted to the hospital and had MRIs, spinal tap, test for west nile, test for lyme and many other things. He was released from the hospital and had to follow up with Neuro. After many more tests and many more bills, we were told he had a spell of amnesia (we already knew that) but he didn't know what caused it. After several months, my husband was frustrated and wouldn't go back. He was fine and didn't have any more problems. Until now....... He has not had any more memory problems. Mostly, he is having difficulty speaking. It's some stuttering and difficulty forming words. He is complaining of muscle stiffness, some muscle spasms, and some ringing in the ears. It seems to come in spells. He will be fine, then all of a sudden he starts having the speech difficulty and stiffness. It may last for a day or two and then it goes away. This has been going on for almost two months and the episodes are coming more frequently. When the speech problems first started, he went to the family doctor who said there was definitely a concern and he was referring him to a Neuro. We've been waiting since mid November for an appointment. I think he's finally going to get in next week. Problem is, he's not real thrilled about going. After the episode with the Neuro three years ago, running tests and running up bills with no real answers, he doesn't have much hope that they will find out what's wrong with him. We're keeping our fingers crossed. Any ideas? Please list all medications he is currently taking. Has he been diagnosed with type 1 diabetes his whole life? Does he have any sore of tremor? Muscle spasms? Any vision problems? Any problems with his gait? Any mood problems like depression? Do you know what his B12 levels are? Can you find out and post? Best wishesDOM
    acuann 3080 Replies
    • January 10, 2009
    • 05:15 AM
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  • Thanks for responding. He is currently on Humulog via Insulin Pump. (He has been Type 1 Diabetic for 24 years, and manages his diabetes well). He also takes Lisinopril for BP (But was just put on it at last Dr's visit). Has been taking Citilopram for a couple of years. (Since the first episode at the Hospital but before the most recent ones). He takes the Citilopram to help with anger issues. He had gotten to where he would get so angry at little things and would always be in the worst moods, snapping at everyone, to the point that he was making myself and our children miserable. He explained it to the Dr as feeling "mean". His father also had problems with this for years, but improved with antidepressants. He has complained of bad muscle spasms a few times, but mostly just that all of his muscles ache. This is all during the time that he is having speech difficulty also. No vision problems other than he has been wearing glasses since he was in elementary school. As for as his gait, the only thing I do know is that when he has an episode of speech difficulty and muscle stiffness, he has trouble getting around. It seems to me that he favors one side. As far as tremor, I've not noticed any thing shaking really. He jerks at times though. Mostly when he's about to go to sleep but also just when he is sitting watching TV or something. I don't know about his B12. When he was in the hospital it was normal but I don't know if it has been checked lately. Also, I forgot to mention: When he had the episodes of memory loss three years ago: He would get out of bed and ask what time it was and when he had to go to work. I would tell him and then he would go back to bed. A few minutes later he would get up and repeat himself. This happened over and over again. Then when he got up the last time, is when I realized he had a couple of days of memory gone. That's when I took him to the ER the first time. **Again, whatever is happening, it comes in spells or episodes (whatever you would call it). He goes from being fine, to having all these difficulties at once. It may last a day or two. Then gradually goes away. Seems to be coming more frequently though.
    arkansan 3 Replies
    • January 10, 2009
    • 03:44 PM
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  • Hi,If you believe in nutrition I am working with a health and wellness company that has an incredible product that your husband can benefit from. Sometimes you have to think outside the box and look at other alternatives such as feeding your body the very best nutrition and see how your body reacts. Your body is a miracle if fed properly.Please go to www.lovemykids2.ning.com and watch the video on Glucaffect. Let me know what you think.
    lovemykids2 28 Replies
    • January 10, 2009
    • 06:15 PM
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  • While I cannot tell you what it is , I do find it to be similar to what we are going through. Last night, my husband forgot that we had dinner,and it was less than an hour prior. He did remember it in time but this is getting kind of scary.I also noticed that stress is a trigger for him.The only difference here is that my husband is not diabetic, but the stories and ages are similar.
    Anonymous 42789 Replies
    • January 10, 2009
    • 08:28 PM
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  • I can help your husband through a nutritional supplement. If interested, I can give you more information. Your body is a miracle when you feed it a complete, balanced, optimal blend of the vitamins, antioxidants, minerals, proteins and phytonutrients the body needs every day.
    lovemykids2 28 Replies
    • January 10, 2009
    • 08:43 PM
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  • We had the appointment with the Neurologist. He ruled out a lot of things since the symptoms were episodic. He said even though the symptoms could point to many things, the fact that they cam in episodes, narrowed the possibilities. He is goig to do another MRI. Just to definitely rule some things out and so we will have peace of mind. He really thinks it all boils down to depression. Though my husband has had problems with depression, I wouldn't have thought it could cause speech and muscle problems. The Dr. said that diabetics are more likely to get this kind of depression that when not treated all the way can start to take on physical symptoms. He changed him from Celexa to Wellbutrin. I hope he's right. I'll feel better after the MRI comes back okay.
    arkansan 3 Replies
    • January 18, 2009
    • 07:23 PM
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  • Doctors are not educated in nutrition just medicine. I believe if you gave him a nutritional supplement he is going to feel ten times better. I suffer from depression and have been on Zoloft for many years. I can tell you since I started the nutritional supplement I feel so much better in more ways than one. Your body is truly a miracle if it is fed properly. If you are interested in learning more please feel free to contact me. Nancy
    lovemykids2 28 Replies
    • January 18, 2009
    • 10:14 PM
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  • We had the appointment with the Neurologist. He ruled out a lot of things since the symptoms were episodic. He said even though the symptoms could point to many things, the fact that they cam in episodes, narrowed the possibilities. He is goig to do another MRI. Just to definitely rule some things out and so we will have peace of mind. He really thinks it all boils down to depression. Though my husband has had problems with depression, I wouldn't have thought it could cause speech and muscle problems. The Dr. said that diabetics are more likely to get this kind of depression that when not treated all the way can start to take on physical symptoms. He changed him from Celexa to Wellbutrin. I hope he's right. I'll feel better after the MRI comes back okay. Good Lord! You never mentioned he was taking Celexa! How long has he been taking this drug? Has he been taking this with the citolpram? Here is a list of side effects of celexa:Possible side effects of Celexa :All medicines may cause side effects, but many people have no, or minor, side effects. Check with your doctor if any of these most COMMON side effects persist or become bothersome:Decreased sexual desire or ability; diarrhea; dizziness; drowsiness; dry mouth; increased sweating; lightheadedness when you stand or sit up; loss of appetite; nausea; stuffy nose; tiredness.Seek medical attention right away if any of these SEVERE side effects occur: Severe allergic reactions (rash; hives; itching; difficulty breathing; tightness in the chest; swelling of the mouth, face, lips, or tongue); absent menstrual period; bizarre behavior; black or bloody stools; chest pain; confusion; decreased concentration; fast or irregular heartbeat; hallucinations; memory loss; new or worsening agitation, panic attacks, aggressiveness, impulsiveness, irritability, hostility, exaggerated feeling of well-being, restlessness, or inability to sit still; persistent, painful erection; red, swollen, blistered, or peeling skin; seizures; severe or persistent anxiety or trouble sleeping; stomach pain; suicidal thoughts or attempts; tremor; unusual bruising or bleeding; unusual or severe mental or mood changes; vision changes; worsening of depression.Can you tell me when he started taking this med and if his symptoms started AFTER he was taking this for awhile? If so, then I would STRONGLY suggest that his symptoms were a result of a side effect to this med, or possible drug interaction with this med and the others he is taking. Best wishesDOM
    acuann 3080 Replies
    • January 19, 2009
    • 04:39 AM
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  • Although the Celexa is the probable cause of his symptoms,are you sure his blood sugar was normal during these episodes?Hypoglycemia can mimic any psychiatric or neurological problem.
    richard wayne2b 1232 Replies
    • January 19, 2009
    • 02:17 PM
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